‘…but if you tell anyone, I’ll deny we ever met:’ the experiences of academics with invisible disabilities in the neoliberal university

Dolan, Vera L. B.

doi:10.1080/09518398.2021.1885075

Cited by 17 publications

(7 citation statements)

References 22 publications

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“…Not being accepted for who one is is a well-known problem disabled people face in general [304][305][306][307][308][309][310][311][312] as workers [313][314][315][316][317] and students [318][319][320][321][322]. Many disabled people do not disclose their "disability", whether as workers [317,[323][324][325] or students [326][327][328][329][330][331][332]. For example, in one study it was found that only 35% of youth with disabilities disclose their "disability" [333].…”

Section: Burnout and Disabled Peoplementioning

confidence: 99%

Burnout through the Lenses of Equity/Equality, Diversity and Inclusion and Disabled People: A Scoping Review

Wolbring

Lillywhite

2023

Societies

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Burnout is a problem within the workplace including in higher education, the activity of activism, and in reaction to experiencing systemic discrimination in daily life. Disabled people face problems in all of these areas and therefore are in danger of experiencing “disability burnout”/”disablism burnout”. Equity/equality, diversity, and inclusion” (EDI) linked actions are employed to improve the workplace, especially for marginalized groups including disabled people. How burnout is discussed and what burnout data is generated in the academic literature in relation to EDI and disabled people influences burnout policies, education, and research related to EDI and to disabled people. Therefore, we performed a scoping review study of academic abstracts employing SCOPUS, the 70 databases of EBSCO-HOST and Web of Science with the aim to obtain a better understanding of the academic coverage of burnout concerning disabled people and EDI. We found only 14 relevant abstracts when searching for 12 EDI phrases and five EDI policy frameworks. Within the 764 abstracts covering burnout and different disability terms, a biased coverage around disabled people was evident with disabled people being mostly mentioned as the cause of burnout experienced by others. Only 30 abstracts covered the burnout of disabled people, with eight using the term “autistic burnout”. Disabled activists’ burnout was not covered. No abstract contained the phrase “disability burnout”, but seven relevant hits were obtained using full-text searches of Google Scholar. Our findings suggest that important data is missing to guide evidence-based decision making around burnout and EDI and burnout of disabled people.

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Section: Burnout and Disabled Peoplementioning

confidence: 99%

Burnout through the Lenses of Equity/Equality, Diversity and Inclusion and Disabled People: A Scoping Review

Wolbring

Lillywhite

2023

Societies

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“…Es fundamental hacer énfasis en que, para muchas personas estas afecciones podrían o no ser percibidas como "discapacidades invisibles", por lo que la experiencia de la discapacidad en su inherente carácter individual depende, no solo de las afecciones per sé, sino que integra elementos de naturaleza social, cultural, y ambiental, donde no solo la gravedad de los síntomas, sino también de un contexto dado y el desarrollo de estrategias individuales (Matthews & Harrington, 2000;Lingsom, 2008, Norstedt, 2019Olkin et al, 2019;Syma, 2019;Blum, 2020;Dolan, 2023).…”

Section: Enfermedades Crónico-degenerativasunclassified

Memorias del 8vo Congreso Internacional de Investigación Educativa

2023

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“…However, such individuals may be criticized for not pursuing advocacy and their lived experience may be dismissed. Furthermore, a dominant researcher identity may be associated with hesitancy to disclose, as disclosure has long been discouraged 30 . While the disclosure is a highly personal decision, without disclosure, there is no difference from the current situation 31 …”

Section: How Might Lived Experience Academic Researchers Balance Thei...mentioning

confidence: 99%

Embedding lived experience into mental health academic research organizations: Critical reflections

Hawke

Sheikhan

Jones

et al. 2022

Health Expectations

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Background: As part of a growing emphasis on engaging people with lived experience of mental health conditios in mental health research, there are increasing calls to consider and embed lived experience throughout academic research institutes. This extends beyond the engagement of lay patients and also considers the potential roles of academic researchers with lived experience. When the lived experience of academic researchers is applied to academic work, there is the potential to improve the relevance of the research, while destigmatizing mental illness within academia. However, there are different and often contrasting perspectives on the way a lived experience academic researcher initiative should be implemented.Objectives: This article describes some of the key issues to be considered when planning an initiative that leverages and values the lived experience of academic researchers, including the advantages and disadvantages of each potential approach.Discussion & Recommendations: Institutions are encouraged to reflect on the ways that they might support and value lived experience among academic researchers. In developing any such initiative, institutions are encouraged to be transparent about their objectives and values, undertake a careful planning process, involve researchers with lived experience from the outset and consistently challenge the stigma experienced by academic researchers with lived experience.

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‘…but if you tell anyone, I’ll deny we ever met:’ the experiences of academics with invisible disabilities in the neoliberal university

Cited by 17 publications

References 22 publications

Burnout through the Lenses of Equity/Equality, Diversity and Inclusion and Disabled People: A Scoping Review

Burnout through the Lenses of Equity/Equality, Diversity and Inclusion and Disabled People: A Scoping Review

Memorias del 8vo Congreso Internacional de Investigación Educativa

Embedding lived experience into mental health academic research organizations: Critical reflections

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