Búsqueda de información en Internet por parte de pacientes de diferentes Comunidades Autónomas con enfermedades autoinmunitarias crónicas

Ortego-Centeno, Norbérto; Marín, Ana Celia Barnosi; Simeón-Aznar, Carmen Pilar; Jurado, Miguel Ortego

doi:10.1016/j.medcli.2008.12.028

“…Internet usage by patients to search for information about their disease has risen over the last decade, increasing from 23.9% in 200431 to 66.9% in 2009 32. For T2DM, a study conducted in 203 patients showed that 28.1% of these patients searched for information on the internet about their disease 33.…”

Section: Discussionmentioning

confidence: 99%

Cross-sectional study about the use of telemedicine for type 2 diabetes mellitus management in Spain: patient’s perspective. The EnREDa2 Study

Rodríguez-Fortúnez¹,

Franch-Nadal

²

,

et al. 2019

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ObjectivesThe usefulness of telemedicine (TM) in type 2 diabetes mellitus (T2DM) has been discussed in recent years. The aim of this study is to describe patients’ perceptions about TM and to identify preferences on TM resources, in Spain.DesignAn observational, cross-sectional study was conducted using a structured questionnaire.Participants1036 patients with T2DM accepted to participate in the study (response rate: 68%).ResultsBlood glucose values were recorded by 85.9% of the patients while data such as lifestyle habits were only recorded by 14.4% of the patients. Previous experience in TM was reported by 9.8% of the patients, out of which 70.5% were satisfied with its service and 73.5% considered that the use of TM had optimised their T2DM management. However, most of these patients noted aspects to be improved such as user-friendliness (81.4%), interaction with the medical team (78.4%) and time required for recording/transferring data (78.4%). Experienced patients had better perception about TM usefulness than naïve patients for all listed aspects (p<0.05). Among naïve patients, 38.2% expressed their willingness to participate in TM programmes, but only 4.7% were invited to do so. Patients considered that physicians’ (77.5%) and pharmacists’ (75.5%) encouragement can boost the use of TM.ConclusionsIn Spain, nearly 10% of patients with T2DM have experience with TM and it is well accepted, especially one based on glucometers. Nevertheless, in order to promote TM use, easier and time-saving programmes for patient-physician interaction should be optimised.

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Vaart

¹

,

Drossaert²,

Taal³

et al. 2014

Arthritis Care & Research

0

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We read with interest the article by van der Vaart et al published recently in Arthritis Care & Research (1) describing the information needs and support of patients with systemic sclerosis. This article partially recapitulated the results and conclusion made by us in a related study (2).Our study included 184 patients from different Spanish regions and with different autoimmune diseases, including systemic sclerosis (17.1%). Internet use for healthrelated purposes was similar among all studied patients, regardless of the pathology. The mean Ϯ SD age was 47.5 Ϯ 15.04 years, from which 72.8% were women. In total, 84% of subjects had searched the internet for information relating to their condition, a percentage similar to that reported by van der Vaart et al (1). The variables associated with internet use to find health information were age Ͻ56 years (odds ratio [OR] 5 [95% confidence interval (95% CI) 2.5-9.9], P ϭ 0.000), being a regular internet user .2], P ϭ 0.000), having a college education (OR 5.5 [95% CI 2.9 -13.8], P ϭ 0.000), dissatisfaction with the information received by the regular doctor (OR 3.4 [95% CI 1.5-7.5], P ϭ 0.003), and belonging to a patient's association (OR 1.9 [95% CI 1-3.6], P ϭ 0.05). In our study, 20.7% of the patients thought information found on the internet was of limited use or of no use at all, and 31% did not know of any website with quality or accurate information about their disease. Van der Vaart et al did not evaluate the usefulness of the information found on the internet.It is well-known that the validity of some health-related websites is questionable, and there are no laws or regulations governing the accuracy of the information on the internet (3). Quality varies widely in the field of rheumatic diseases, and URLs with the .gov and .edu suffixes are generally better (4). Furthermore, many patients experience difficulties when interpreting the information and distinguishing between good and bad information (5). More than half of the patients (66.8%) wanted their physicians to inform them on quality websites.Similarly to van der Vaart et al (1), we consider it essential that physicians participate actively in the development of quality websites to ensure that patients have accurate information as well as to promote the development of interactive health communication applications as a tool for a better followup of our patients. Better-informed patients will be more adherent to the treatments prescribed by their physicians (6,7 Reply To the Editor:We were pleased to read the reaction of Ortego-Centeno et al on our article; it is interesting to see that their results on patients' online information use (1) agreed to such a large extent with our results. In one of our previous studies, among a broader sample of patients with differing rheumatic diseases, we also found similar results (2). In that study, 82% of our respondents indicated that they had searched for health-related information on the internet. These studies all suggest that the internet is an increasingly imp...

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Health‐Related Internet Use by Patients With Systemic Sclerosis and Other Autoimmune Diseases: Comment on the Article by van der Vaart et al

Ortego-Centeno

¹

,

Callejas‐Rubio

²

,

Ríos-Fernández

³

et al. 2014

Arthritis Care & Research

0

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We read with interest the article by van der Vaart et al published recently in Arthritis Care & Research (1) describing the information needs and support of patients with systemic sclerosis. This article partially recapitulated the results and conclusion made by us in a related study (2).Our study included 184 patients from different Spanish regions and with different autoimmune diseases, including systemic sclerosis (17.1%). Internet use for healthrelated purposes was similar among all studied patients, regardless of the pathology. The mean Ϯ SD age was 47.5 Ϯ 15.04 years, from which 72.8% were women. In total, 84% of subjects had searched the internet for information relating to their condition, a percentage similar to that reported by van der Vaart et al (1). The variables associated with internet use to find health information were age Ͻ56 years (odds ratio [OR] 5 [95% confidence interval (95% CI) 2.5-9.9], P ϭ 0.000), being a regular internet user .2], P ϭ 0.000), having a college education (OR 5.5 [95% CI 2.9 -13.8], P ϭ 0.000), dissatisfaction with the information received by the regular doctor (OR 3.4 [95% CI 1.5-7.5], P ϭ 0.003), and belonging to a patient's association (OR 1.9 [95% CI 1-3.6], P ϭ 0.05). In our study, 20.7% of the patients thought information found on the internet was of limited use or of no use at all, and 31% did not know of any website with quality or accurate information about their disease. Van der Vaart et al did not evaluate the usefulness of the information found on the internet.It is well-known that the validity of some health-related websites is questionable, and there are no laws or regulations governing the accuracy of the information on the internet (3). Quality varies widely in the field of rheumatic diseases, and URLs with the .gov and .edu suffixes are generally better (4). Furthermore, many patients experience difficulties when interpreting the information and distinguishing between good and bad information (5). More than half of the patients (66.8%) wanted their physicians to inform them on quality websites.Similarly to van der Vaart et al (1), we consider it essential that physicians participate actively in the development of quality websites to ensure that patients have accurate information as well as to promote the development of interactive health communication applications as a tool for a better followup of our patients. Better-informed patients will be more adherent to the treatments prescribed by their physicians (6,7 Reply To the Editor:We were pleased to read the reaction of Ortego-Centeno et al on our article; it is interesting to see that their results on patients' online information use (1) agreed to such a large extent with our results. In one of our previous studies, among a broader sample of patients with differing rheumatic diseases, we also found similar results (2). In that study, 82% of our respondents indicated that they had searched for health-related information on the internet. These studies all suggest that the internet is an increasingly imp...

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Búsqueda de información en Internet por parte de pacientes de diferentes Comunidades Autónomas con enfermedades autoinmunitarias crónicas

Cited by 11 publications

References 13 publications

Cross-sectional study about the use of telemedicine for type 2 diabetes mellitus management in Spain: patient’s perspective. The EnREDa2 Study

Cross-sectional study about the use of telemedicine for type 2 diabetes mellitus management in Spain: patient’s perspective. The EnREDa2 Study

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Health‐Related Internet Use by Patients With Systemic Sclerosis and Other Autoimmune Diseases: Comment on the Article by van der Vaart et al

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