Burden on Caregivers of Adults with Multiple Chronic Conditions: Intersectionality of Age, Gender, Education level, Employment Status, and Impact on Social Life

Ghosh, Sunita; Choi, Won Yong; Williams, Allison; Duggleby, Wendy; Ploeg, Jenny; Markle‐Reid, Maureen; Peacock, Shelley

doi:10.1017/s071498081900045x

Cited by 6 publications

(8 citation statements)

References 34 publications

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“…Our study was not focused on the needs of carers specifically, but our small sample of carers revealed their own challenges with administering insulin and hypoglycaemia fears. There is a large body of literature that points to the burden of caring for people with long-term conditions such as diabetes [ 54 , 55 ], yet there is still some way to go in terms of making carers feel more confident, empowered and skilled [ 56 ]. There is clearly a need for developing education designed specifically for the carers of older people to enhance their ability to deliver effective diabetes care to their relatives.…”

Section: Discussionmentioning

confidence: 99%

A qualitative study of the experiences of insulin use by older people with type 2 diabetes mellitus

Langerman,

Forbes,

Robert

2024

BMC Prim. Care

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Background There is a rising prevalence of type 2 diabetes among older people. This population also suffers from co-morbidity and a greater number of diabetes related complications, such as visual and cognitive impairment, which can potentially affect their ability to manage insulin regimens. Understanding the experiences of older people when they transition to insulin will help the development of healthcare interventions to enhance their diabetes outcomes, overall health and quality of life. Aims The aims of this exploratory study were to (1) understand the experiences of older people with type 2 diabetes in relation to insulin treatment initiation and management and (2) use this understanding to consider how the insulin management support provided to older people by healthcare providers could be more tailored to their needs. Method A qualitative study using semi structured (remote) interviews with older people with diabetes (n = 10) and caregivers (n = 4) from the UK. Interviews were audio recorded and transcribed, and framework analysis was used to analyse the data. Results Three main themes, along with six subthemes, were generated from the study data. Participants generally felt at ease with insulin administration following training, yet some reported feelings of failure at transitioning to insulin use. Participants were also frustrated at what they perceived were insufficient resources for effective self-management, coupled with a lack of professional interest in optimising their health as older people. Some also expressed dissatisfaction regarding the brevity of their consultations, inconsistent information from different healthcare professionals and poor treatment coordination between primary and secondary care. Conclusion Overall, the study emphasised that older people need better support, education and resources to help manage their insulin use. Healthcare professionals should be encouraged to adopt a more individualised approach to supporting older people that acknowledges their prior knowledge, physical and psychological capabilities and motivation for diabetes self-management. In addition, better communication between different services and greater access to specialist support is clearly needed for this older population. Practice implications An integrated care pathway for insulin use in older people could be considered. This would include an assessment of the older person’s needs and capacity on their initiation to insulin; targeted education and training in self-management; timely access to appropriate emotional and peer support resources; care plans developed collaboratively with patients; and individualised glucose targets that recognise the needs and preferences of the older person.

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Section: Discussionmentioning

confidence: 99%

A qualitative study of the experiences of insulin use by older people with type 2 diabetes mellitus

Langerman,

Forbes,

Robert

2024

BMC Prim. Care

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“…Females have historically been depended on in the home for healthcare delivery, both in acute and chronic disease states (Morgan et al, 2016). As a result, females report more caregiver burden than males (Ghosh et al, 2020; Yu et al, 2019), especially in low- and middle-income settings (Akgun-Citak et al, 2020). The healthcare needs of older adults with more than one disease, such as diabetes mellitus and hypertension, result in an increased financial burden for them, their informal caregivers, and the healthcare system as a whole (Ferris et al, 2018; He et al, 2018).…”

Section: Discussionmentioning

confidence: 99%

“She is My Work”: Caregiving for Older Adults With Hypertension and Diabetes Mellitus

et al. 2023

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To explore the lived experiences of informal caregivers of older adults with hypertension and/or diabetes mellitus in Kumasi, Ghana. A qualitative research approach was used to conduct the study using informal caregivers of older adults with hypertension and/or diabetes mellitus at a teaching hospital in Ghana. In all, 20 participants were purposively sampled, interviewed, and data were analyzed using thematic analysis. Three main themes emerged: “Experience with care demands,” “Coping with care demands,” and “Motivation for caregiving.” Older adults with hypertension and/or diabetes mellitus had needs that placed a burden on informal caregivers’ work life, health, and social life. Informal caregivers of older adults with hypertension and/or diabetes mellitus are under strain. Caregiving is a difficult task, requiring a lot of time, effort, attention, and devotion. Nurses should plan the care of older adults with hypertension and/or diabetes mellitus in collaboration with their informal caregivers.

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“…Previous research related to caregivers of people at end of life and living with life‐limiting conditions and mental illness identified that the influence of caregiver sex on the risk of negative outcomes and consequences is often overlooked and misunderstood (Gardiner et al., 2020; Ghosh et al., 2020; Pinquart & Sorensen, 2006; Sharma et al., 2016). This study demonstrates that there is meaning and knowledge to be found by disaggregating caregiver data by sex.…”

Section: Discussionmentioning

confidence: 99%

“…Fromme et al (2005) suggested that women report more strain because women are more likely to share their emotions. Indeed, females do tend to have better social support (Wong & Hsieh, 2019), and poor social networks are linked to an increased risk of caregiver burden (Ghosh et al, 2020). Nevertheless, research suggests that not only are women more likely to care for more hours than men (Pinquart & Sorensen, 2006), caring for people with more complex needs.…”

Section: The 'Crisis Of Care'mentioning

confidence: 99%

Cutting through the intersections to care for caregivers: Secondary data analysis of a carers support service in Glasgow, Scotland

Drummond

Johnston

Quinn

2021

Health Social Care Comm

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Burden on Caregivers of Adults with Multiple Chronic Conditions: Intersectionality of Age, Gender, Education level, Employment Status, and Impact on Social Life

Cited by 6 publications

References 34 publications

A qualitative study of the experiences of insulin use by older people with type 2 diabetes mellitus

A qualitative study of the experiences of insulin use by older people with type 2 diabetes mellitus

“She is My Work”: Caregiving for Older Adults With Hypertension and Diabetes Mellitus

Cutting through the intersections to care for caregivers: Secondary data analysis of a carers support service in Glasgow, Scotland

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