Burden of heart failure on patients from China: results from a cross-sectional survey

Jackson, James; Cotton, S; Wirta, Sara Bruce; Proenca, C; Zhang, Milun; Lahoz, Raquel; Calado, F

doi:10.2147/dddt.s148949

Cited by 27 publications

(40 citation statements)

References 25 publications

(25 reference statements)

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“…Almost two-thirds (62%, n=933) of the patients for whom a patient record form was completed also completed a PSC, and 458 informal caregivers completed a CSC. 16 …”

Section: Resultsmentioning

confidence: 99%

“…A disease-specific program comprises three key phases: preparatory, data collection, and data processing/analysis. 15 , 16 …”

Section: Methodsmentioning

confidence: 99%

“…PSCs were completed by the same patients. Further information gathered from the patient record forms and PSCs has been reported by Jackson et al 16 CSCs were completed by the informal caregivers of the patients. The questionnaires were developed empirically, and their pharmacometric properties were not systematically assessed.…”

Section: Methodsmentioning

confidence: 99%

“…Cardiologists were identified from public lists of health care professionals and were invited to participate in the disease-specific program based on predefined eligibility criteria described elsewhere. 16 The first 150 cardiologists who met these criteria and who agreed to participate were enrolled. Participating cardiologists were asked to complete patient record forms for the next 10 patients they saw who presented with HF, immediately after each consultation.…”

Section: Methodsmentioning

confidence: 99%

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Burden of heart failure on caregivers in China: results from a cross-sectional survey

Jackson¹,

Cotton²,

Wirta

et al. 2018

DDDT

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PurposeFamily and friends play a pivotal role in caring for patients with heart failure (HF); however, evidence of the impact of caregiving is limited. The objectives of this study were to describe the burden of caregiving on informal caregivers of patients with chronic HF in China.Materials and methodsA cross-sectional survey of cardiologists, their patients with HF, and those patients’ caregivers was conducted. Patient record forms were completed by 150 cardiologists for 10 consecutive patients. Caregivers of these patients were invited to complete a questionnaire.ResultsOverall, 458 caregivers completed a questionnaire (mean ± standard deviation age 60.1±10.6 years; 60% female; 77% spouses; 74% retired). Caregivers spent a mean of 24.5 (16.9) hours caregiving per week, and a third reported a reduction in their social activity, time for themselves, or time for family. Caregivers in employment took several days off work in the past 3 months owing to caregiving, sometimes resulting in reduced income. Up to 79% of caregivers reported an impact on their physical or emotional well-being, and 57% reported deterioration in their objective health status. Inconsistencies stemming from differences in the three-level five-dimension EuroQol questionnaire and HF Caregiver Questionnaire were observed for the impact of caregiving on caregivers’ health-related quality of life.ConclusionAssisting patients with HF is associated with caregiver burden. Addressing the needs of caregivers may help to promote their continued support and improve patient outcomes.

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“…Almost two-thirds (62%, n=933) of the patients for whom a patient record form was completed also completed a PSC, and 458 informal caregivers completed a CSC. 16 …”

Section: Resultsmentioning

confidence: 99%

“…A disease-specific program comprises three key phases: preparatory, data collection, and data processing/analysis. 15 , 16 …”

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

See 2 more Smart Citations

Burden of heart failure on caregivers in China: results from a cross-sectional survey

Jackson¹,

Cotton²,

Wirta

et al. 2018

DDDT

Self Cite

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show abstract

“…Readmission rate due to HF, 30 to 60 days after discharge, has been reported to be 30%. 6,11 Although education during hospitalization and at the time of discharge is considered as the first essential step, it is inadequate, and patients require self-care behavior support and follow-ups. 12 Different methods have been proposed for patients' follow-up and providing care after discharge.…”

mentioning

confidence: 99%

Evaluating the Effect of Monitoring through Telephone (Tele-Monitoring) on Self-Care Behaviors and Readmission of Patients with Heart Failure after Discharge

et al. 2019

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Background Heart failure is one of the serious cardiovascular diseases, which poses a global pandemic and places a heavy burden on health care systems worldwide. The incidence of this disease in Iran is higher than in other Asian countries. To reduce patients' complications, readmission rates, and health care expenditures, it is necessary to design interventions, which are culturally appropriate and based on community needs. Methods In 2016, a randomized clinical trial (IRCT2017010731804N1) was initiated to compare tailored tele-monitoring intervention with usual care. In total, 80 patients completed the study after a follow-up period of 8 weeks. The primary end point was heart failure self-care, which was measured using the Iranian version of the European Heart Failure self-care questionnaire. Secondary end points were heart failure related readmission rates. Results The mean scores for self-care behaviors of the two groups showed significant difference at the baseline (p = 0.045). The results of the analysis of covariance that was used to control the differences in the pretest scores of self-care behaviors showed that the difference between both groups after the intervention was still significant (p < 0.001). The percentage of patients' readmissions in the intervention group (20%) was less than that in the control group (42.2%); however, the results were not statistically significant (p = 0/066). Conclusion This study showed that tele-monitoring improved self-care behaviors in Iranian patients with heart failure but did not reduce their readmission rates.

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Association between performance measures and clinical outcomes in patients with heart failure in China: Results from the HERO study

Zheng,

Li,

Jiang

et al. 2024

Clinical Cardiology

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BackgroundThere is great heterogeneity in the quality of care among hospitals in China, but studies on the performance measures and prognosis of patients with heart failure (HF) are still deficient.HypothesisPerformance measures have been used as a guideline to clinicans, however, the association between them and outcomes among HF patients in China remains unclear.MethodsWe analyzed 4497 patients with HF from the Heart Failure Registry of Patient Outcomes study. Performance measures were determined according to the guidelines, and the patients were divided into four groups based on a composite performance score. Multiple imputation and Cox proportional‐hazard regression models were used to assess the association between the performance measures and clinical outcomes.ResultsOverall, only 12.5% of patients met the top 25% of the performance measures, whereas 33.5% of patients met the bottom 25% of the measures. A total of 992 (22.2%) patients died within 1 year, involving a larger proportion of patients who had met only the bottom 25% of the performance measures than had met the top 25% (27.0% vs. 16.3%, respectively). The patients who met the top 25% of the measures had a lower 1‐year mortality rate (adjusted hazard ratio: 0.78, 95% confidence interval: 0.61–0.98).ConclusionsThe association between performance measures and mortality appeared to follow a dose–response pattern with a larger degree of compliance with performance measures being associated with a lower mortality rate in patients with HF. Accordingly, the quality of care for patients with HF in China needs to be further improved.

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Burden of heart failure on patients from China: results from a cross-sectional survey

Cited by 27 publications

References 25 publications

Burden of heart failure on caregivers in China: results from a cross-sectional survey

Burden of heart failure on caregivers in China: results from a cross-sectional survey

Evaluating the Effect of Monitoring through Telephone (Tele-Monitoring) on Self-Care Behaviors and Readmission of Patients with Heart Failure after Discharge

Association between performance measures and clinical outcomes in patients with heart failure in China: Results from the HERO study

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