Burden of care in primary caregivers of individuals with spinal cord injury in Iran: its association with sociodemographic factors

Khazaeipour, Zahra; Rezaei-Motlagh, F; Ahmadipour, Ehsan; Azarnia-Ghavam, M; Mirzaei, Khadijeh; Salimi, Neda; Salehi-Nejad, Alireza

doi:10.1038/sc.2016.195

Cited by 22 publications

(18 citation statements)

References 19 publications

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“…43% of the caregivers had primary school education. Khazaeipour [ 40 *] 2017 163 SCI ZARIT 44.20 Mean age of the patients: 36 ± 12.5 years Gender of the patients: 32 women and 131 men Duration of suffering from the illness: 76.5 ± 79 months Marital status of the patients: 56.5% married, 38% single, and 5.5% divorced Mean age of the caregivers: 38.1 ± 13.2 years Duration of caregiving: 69.4 ± 73.1 months Gender of the caregivers: 61 men and 102 women Bamari [ 41 *] 2016 70 Diabetes ZARIT 44.14 Gender of the patients: 40 women and 30 men Gender of the caregivers: 36 women and 34 men 70% of the caregivers were wives or husbands of patients. Vahidi [ 42 *] 2016 150 Cancer ZARIT 34.71 Gender of the caregivers: 73 women and 77 men Mean age of the caregivers: 39.6 ± 13.8 years 34.7% of the caregivers were wives or husbands of patients.…”

Section: Resultsmentioning

confidence: 99%

Burden of Care in Caregivers of Iranian patients with chronic disorders: a systematic review and meta-analysis

Rezaei

Niksima

Gheshlagh

2020

Health Qual Life Outcomes

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Introduction: Caring for patients with chronic disorders can lead to different problems for caregivers in physical, psychological, social, family, and financial domains. High levels of burden of care can make caregivers vulnerable to physical and psychological conditions and influence their quality of life. Therefore, the goal of the present study was to estimate the overall percentage of burden of care in caregivers of Iranian patients with chronic disorders. Methods: A total of 25 articles published from inception to February 2019 were reviewed. Search for articles was conducted in international (Scopus, Web of Science, and PubMed) and domestic (Scientific Information Database (SID) and MagIran) databases, using the following keywords: "Caregiver," "Burden," and "Iran," and their possible combinations. The data were analyzed using the meta-analysis method and the random effects model. All the analyses were performed using STATA, version 14. Results: The overall percentage of burden of care in caregivers of Iranian patients with chronic disorders was 53.28% (95% CI: 46.13-60.43). The highest percentage of burden of care was related to dialysis (62.75; 95% CI: 56.11-69.38), mental disorders (58.69; 95% CI: 49.70-67.69), and Alzheimer's disease (57.07; 95% CI: 46.23-67.92), respectively; and the lowest percentage of burden of care was related to diabetes (34.92; 95% CI: 18.01-51.82). Conclusions: Caregivers of Iranian patients with chronic disorders experience high levels of burden of care, especially those caring for patients undergoing dialysis, patients with mental disorders, and patients with Alzheimer's disease. Therefore, necessary measures need to be taken by Iranian health care officials to reduce burden of care in caregivers.

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Section: Resultsmentioning

confidence: 99%

Burden of Care in Caregivers of Iranian patients with chronic disorders: a systematic review and meta-analysis

Rezaei

Niksima

Gheshlagh

2020

Health Qual Life Outcomes

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“…For family educational needs, it is important to consider that SCI not only hampers individuals with SCI, but also have significant impact on families and caregivers as well. 31,32 It brings physical, mental, financial, as well as social dysregulations and thereby has a ripple effect.…”

Section: Discussionmentioning

confidence: 99%

“…High levels of burden placed on the caregiver can manifest them self as physical and emotional stress, burnout, fatigue, anger, resentment and depression among caregivers. 31 Therefore, there is a need to educate them on issues relating to these changes and maintaining a good rapport with them.…”

Section: Discussionmentioning

confidence: 99%

Personal, family and societal educational needs assessment of individuals with spinal cord injury in Iran

Khazaeipour

Abouie

Zarei

et al. 2018

NSJ

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“…The SCI is one of the chronic diseases that cause caregiver burden in healthcare providers (10). Studies have shown that perceived caregiver burden is significant among the caregivers of these patients (9,11,12). The caregiver burden can be an essential and influential risk factor for abuse (13).…”

Section: Introductionmentioning

confidence: 99%

Abuse in Patients with Spinal Cord Injury During the COVID-19 Pandemic

Komlakh

Hatefi

2022

Arch Neurosci

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Background: One of the chronic diseases with various challenges for patients and caregivers is spinal cord injury (SCI). The spread and prevalence of coronavirus disease 2019 (COVID-19) have been an influential risk factor for abuse. Objectives: The aim of this study was to assess the rate of abuse in patients with SCI during the COVID-19 pandemic. Methods: This cross-sectional descriptive study population was all SCI cases in Ilam, Iran. Researcher-made forms and questionnaires with confirmed validity and reliability, including the demographic characteristics, form and perceived abuse researcher-made questionnaire for people with SCI, were used. The perceived abuse questionnaire for patients with SCI was a researcher-made questionnaire designed based on library studies, interviews with patients, and determination of abuse instances. This instrument consists of 20 questions answered as yes (score 1) or no (score 0). After data collection, statistical analyzes were performed using the SPSS software version 16. Results: According to our results, the mean ± SD of the perceived abuse score by caregivers and patients was 8.48 ± 2.31 and 42.45% during the COVID-19 pandemic, respectively. Moreover, the mean ± SD of the age of patients was 62.86 ± 19.15 years, and the patient abuse increased with elevation in age (P = 0, F = 27.42). The possible abuse score was 0 - 20 divided into three categories of low (20, 20.4%), moderate (76, 76.5%), and high (2, 2%). The perceived abuse score was significantly higher among women and patients with a history of more than 10 years of SCI. Abuse prevalence did not have a significant relationship with income and marital status. Regarding age and abuse, our results showed a rise in perceived abuse scores with an increase in age. Conclusions: The present study showed that it is necessary to take measures to prevent abuse in patients with SCI. Moreover, the prevalence of abuse related to COVID-19 in patients with SCI was high. Therefore, preventive actions need to be proposed in this field.

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Burden of care in primary caregivers of individuals with spinal cord injury in Iran: its association with sociodemographic factors

Abstract: The burden of care among the caregivers of SCI individuals is a multidimensional issue. The sociodemographic characteristics of individuals with SCI and their caregivers can affect the caregiver's burden. Many of these factors can be modified to reduce the burden of care.

Cited by 22 publications

References 19 publications

Burden of Care in Caregivers of Iranian patients with chronic disorders: a systematic review and meta-analysis

Burden of Care in Caregivers of Iranian patients with chronic disorders: a systematic review and meta-analysis

Personal, family and societal educational needs assessment of individuals with spinal cord injury in Iran

Abuse in Patients with Spinal Cord Injury During the COVID-19 Pandemic

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