Burden and Support Needs of Carers of Persons with Borderline Personality Disorder

Bailey, Rachel; Grenyer, Brin F. S.

doi:10.1097/hrp.0b013e3182a75c2c

Cited by 88 publications

(91 citation statements)

References 42 publications

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“…Burden among families with a member with BPD has been reported to be even greater than that associated with other severe mental disorders [8, 9]. This also includes elevated objective and subjective burden, grief, impaired ‘empowerment’ (e.g., difficulties interacting with the mental health service system), and mental health problems, including depression and anxiety [8]. Parents of daughters diagnosed with BPD reported experiencing significant burden in multiple domains that include emotional and physical health problems and marital difficulties [10].…”

Section: Introductionmentioning

confidence: 99%

Evaluation of a psychoeducational group intervention for family and friends of youth with borderline personality disorder

Pearce

Jovev

Hulbert

et al. 2017

bord personal disord emot dysregul

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BackgroundDespite high levels of burden and distress among families with a member who has borderline personality disorder (BPD), only two BPD specific family psychoeducation groups have been empirically evaluated. Neither of these is designed specifically for the family and friends of young people who are presenting early in the course of BPD. This study aimed to evaluate Making Sense of Borderline Personality Disorder (MS-BPD), a three-session, developmentally tailored, manualised psychoeducational group for the family and friends of youth with BPD features.MethodsThe study employed a pre- and post-intervention, repeated measures design. Twenty-three participants completed self-report measures assessing for family burden, psychological distress, and knowledge about personality disorder. Demographic data were collected for the group participants and for their associated young person with BPD. Paired-samples t-tests were conducted to evaluate the effect of the MS-BPD intervention on participants’ burden, distress and personality disorder knowledge.ResultsAt the completion of session three (day 15), group participants reported significantly decreased subjective burden and increased personality disorder knowledge. Objective burden and distress remained unchanged.ConclusionsFamily and friends of young people with BPD features experienced subjective, but not objective, benefit from attending a brief group-based psychoeducation intervention. Longer follow-up is likely to be required to detect behavioural change. The current findings support proceeding to a randomised controlled trial of MS-BPD.

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Section: Introductionmentioning

confidence: 99%

Evaluation of a psychoeducational group intervention for family and friends of youth with borderline personality disorder

Pearce

Jovev

Hulbert

et al. 2017

bord personal disord emot dysregul

View full text Add to dashboard Cite

show abstract

“…2012). In some cases, the burden of care placed on primary carers, in particular, can have significant undesirable effects on their ability to manage their own lives, manifesting as psychological distress, including grief, anger, depression, and anxiety (Bailey & Grenyer 2013; Ulstein et al . 2008; Zauszniewski & Bekhet 2014).…”

Section: Introductionmentioning

confidence: 99%

Family carers' experience of caring for an older parent with severe and persistent mental illness

McCann

Bamberg

McCann

2015

Int J Mental Health Nurs

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While the burden of caring for older people with chronic medical illness and dementia has been well documented, considerably less is known about how carers develop the strength and resilience to sustain this important role with older family members with mental illness. The aim of the study was to understand the lived experience of primary caregivers of older people with severe and persistent mental illness, and to explore what, if anything, helps to sustain them in their caring role. An interpretative phenomenological analysis approach was adopted, and qualitative interviews were used with 30 primary caregivers. Two overarching themes, and related subthemes, were abstracted from the data. First, caring is a difficult and demanding responsibility. It affects carers adversely, emotionally, physically, socially, and financially, and their lifestyle in general. This is reflected in three subthemes: (i) physically and emotionally draining; (ii) grieving about the loss; (iii) and adverse effects on lifestyle and social relationships. Second, carers develop resilience in caring, which helps sustain them in their role, as illustrated in three subthemes: (i) caring as purposeful and satisfying; (ii) harnessing social support from others; and (iii) purposefully maintaining their own well-being. Community mental health nurses have a key role in assessing carers’ needs and supporting them in their caring role.

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“…The prevalence of parental mental illness has been estimated to be 21–23 % [2], whilst the risk for children of parents with mental illness is exacerbated to 41–77 % [3]. Significant levels of burden may be placed on children who take on the role of caring for a parent [4]. Thus, it is crucial that mental health providers are aware of their client’s status as a parent, and to assess and support their parenting capacity [2, 5–7].…”

Section: Introductionmentioning

confidence: 99%

A new intervention for people with borderline personality disorder who are also parents: a pilot study of clinician acceptability

McCarthy

Lewis

Bourke

et al. 2016

bord personal disord emot dysregul

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BackgroundEngaging parents who have a personality disorder in interventions designed to protect children from the extremes of the disorder supports both parenting skills and healthy child development. In line with evidence-based guidelines, a ‘Parenting with Personality Disorder’ brief intervention was developed, focusing on child safety, effective communication and parenting strategies.MethodRatings of acceptability for the brief intervention model were given by 168 mental health clinicians who attended training. Changes in clinician attitudes, knowledge and skills were also assessed following training.ResultsProviding clinicians treating personality disorder clients with additional skills to address parenting was well received and filled a gap in service provision. Clinicians reported improvements in clinical skills, knowledge, willingness and confidence to intervene in parenting issues with clients. Qualitative responses endorsed three major modes of learning: case study analysis, reflective learning activities, and skills-based intervention practices.ConclusionsCurrent treatment guidelines emphasise addressing parenting, but no evidence-based therapy includes specific parenting skills. This brief intervention model improved skills, efficacy and willingness to intervene. This approach can be readily added to current evidence-based therapy protocols and promises to improve client functioning and protect children from the extremes of the disorder. Clinical trials are now required to validate the approach in the field.

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Burden and Support Needs of Carers of Persons with Borderline Personality Disorder

Cited by 88 publications

References 42 publications

Evaluation of a psychoeducational group intervention for family and friends of youth with borderline personality disorder

Evaluation of a psychoeducational group intervention for family and friends of youth with borderline personality disorder

Family carers' experience of caring for an older parent with severe and persistent mental illness

A new intervention for people with borderline personality disorder who are also parents: a pilot study of clinician acceptability

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