Burden and psychological challenges in caregivers of children with intellectual disabilities in a child neurology clinic in Lagos, Nigeria

Oshodi, Yewande; Umeh, Charles S.; Lesi, F. E. A.; Eigbike-Aideyan, Mercy; Adeyemi, Joseph D.

doi:10.1179/2047387713y.0000000028

Cited by 2 publications

(1 citation statement)

References 25 publications

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“…The ZBI-22 is the reduced form of the original 29-item Zarit burden interview developed in 1980 ( Zarit, Reever, & Bach-Peterson, 1980 ). The Zarit Burden Interview scale is the instrument most consistently used in research to measure care burden among caregivers of autistic individuals, dementia and intellectual disability ( Pandey & Sharma, 2018 ; Bédard et al, 2001 ; Oshodi, Umeh, Afolabi Lesi, Eigbike-Aideyan, & Adeyemi, 2014 ). Moreover, it has been used to measure a change in the level of care burden over time ( Bédard, Molloy, Pedlar, Lever, & Stones, 1997 ) and to differentiate between study participants ( Molloy, Lever, Bédard, Guyatt, & Butt, 1996 ).…”

Section: Methodsmentioning

confidence: 99%

The impact of COVID-19 pandemic social restrictions on individuals with autism spectrum disorder and their caregivers in the Stateof Qatar: A cross-sectional study

Khan

Tahir

et al. 2021

Research in Developmental Disabilities

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Introduction Previous research has established an association between changes to the daily routine of individuals with Autism Spectrum Disorder (ASD) and increase in maladaptive behaviours. The relationship between maladaptive behaviours in autistic individuals and increase in care burden among their caregivers is also well established. However, no study has yet examined these associations in the context of the COVID-19 pandemic. The main aim of this study was to explore the impact of COVID-19 restrictions on autistic individuals and their caregivers. Methods A questionnaire-based cross-sectional study conducted with the caregivers of 58 autistic individuals across the mental health services at Hamad Medical Corporation, Doha, Qatar. The extent of care burden was measured using the Care Burden Interview, whereas changes in behaviour in autistic individuals was assessed using the Revised Overt Aggression Scale. Results A total of 58 caregivers participated in the study. Out of these, 24 (41%) reported a clinically significant increase in their care burden. Among caregivers reporting an increase in care burden, two-third were caring for individuals whose behaviour either remained unchanged or improved during social restrictions. Nine autistic people (15.5%) were reported to have no aggression prior to the implementation of COVID-19 social restrictions compared to 13 (22.4%) individuals during COVID-19 social restrictions. Minimal, mild and moderate aggression were reported in 27 (46.6%), 21 (36.2%), and 1 (1.7%) patients respectively, before COVID-19 social restrictions compared to 29 (50%), 15 (25.9), and 1 (1.7%) during COVID-19 restrictions. Severe aggression was not reported in any patient either before or during COVID-19 social restrictions. Conclusion This study showed reduced levels of aggression in autistic individuals but an increase in care burden among their caregivers during the COVID-19 social restrictions highlighting the need of supporting patients and caregivers alike.

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