Building Partnerships and Stakeholder Relationships for HIV Prevention: Longitudinal Cohort Study Focuses on Community Engagement

Abstract

American women's vulnerability to HIV. Historically, racial minorities and women are underrepresented in research, and study results often do not account for differences by race/ ethnicity. 2,3 Although the NIH mandates that women and minority populations be included in NIH-funded clinical research, 4 substantial barriers to African American women's participation remain. Several well-documented factors are known to affect minority participation in research, including lack of trust, power differences, limited access to health care

The impact of COVID-19 pandemic on HIV care continuum in Jiangsu, China

“…Being unable to maintain HIV care during the COVID-19 pandemic was a significant hindrance to achieving the “90–90–90” goal. With the temporary discontinuation of public HIV screening systems, CBOs represented one option to bridging the gap in maintaining HIV care services [ 28 – 31 ]. In addition, HIV self-testing (HIVST) is an innovative approach to providing access to HIV testing safely while maintaining social distancing.…”

Using an Equity in Research Framework to Develop a Community-Engaged Intervention to Improve Preexposure Uptake Among Black Women Living in the United States South

“…Community engagement is an effective strategy to improve trust and trustworthiness of research to increase participation and begin to reverse the large gap in scientific knowledge about Black populations (Abadie et al, 2018; Cook et al, 2018; Kwizera et al, 2020). Community engagement research can achieve this goal through the core principles of building trusting relationships, creating beneficial partnerships, improving communication, and helping to mobilize the community to advocate for and participate in solving their health concerns (DeShields et al, 2020). In this way, the community is centered, and research revolves around the desires of the community, potentially having a greater effect on improving health inequities and participating in material and system change (Agurs-Collins et al, 2019; Alvidrez et al, 2019; Berry et al, 2023), which moves research from recording Black women's voices to informing intervention development, delivery, and content preferences through participation (Bond et al, 2021).…”

“…Community advisory councils (CAC) are critical infrastructure and mechanisms for community engagement research (DeShields et al, 2020; Halladay et al, 2017; Quinn, 2004). CACs typically consist of representative community members and stakeholders who communicate the community's needs, advise researchers on the intervention's potential success, and participate in intervention design and development (Weinstein et al, 2023).…”

“…To date, research on long-running, effective research–CAC partnerships have focused on HIV prevention with male populations (Rhodes et al, 2018; Silvestre et al, 2010). Although there is emerging research with women (DeShields et al, 2020; Robillard et al, 2020), overcoming the deficit of research and barriers for Black women will take more resources. Engaging in participatory research models and methods can help narrow the gap in research by building partnerships and maximizing existing community resources, what Ferré et al (2010) call community-partnered research.…”

A Historical Perspective of Healthcare Disparity and Infectious Disease in the Native American Population

“…30 These conditions have been specifically associated with poverty in communities throughout the world, and thus represent opportunities for intervention. 26 , 27 Tuberculosis (TB) has also historically been higher among Native American communities. Currently, TB infection rates are five times higher for Alaskan Indians and American Indians and 13 times higher among Native Hawaiians and Pacific Islanders than Caucasian Americans.…”