Building a Cardiac Educational Achievement Partnership Program: Examination of Implementation

Ruehl, Christie A; Landry, Kyle K; Stoiber, Karen Callan; Brosig, Cheryl L.

doi:10.1161/circoutcomes.121.008531

Cited by 3 publications

(25 citation statements)

References 3 publications

(10 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…However, the most common practices reported were taking a medical, surgical, and/or developmental history, and conducting neurodevelopmental screening or evaluation. Only four care pathways explicitly reported assessing children's health‐related quality of life, 32,36,50,53 and only three explicitly reported performing psychological assessment or consultation 32,33,56 . Five care pathways reported providing families with feedback, education, and resources about the importance of neurodevelopmental follow‐up 33,34,48,53,54,56 and two reported offering psychological support for parents such as counselling 35,51 .…”

Section: Resultsmentioning

confidence: 99%

“…An additional three publications were identified for full‐text review by subject matter experts and one from forward citation searching of conference abstracts. Full‐text screening of these 193 publications resulted in 35 publications being included in this review 9,13–16,27–56 . The stages of the search and screening process and reasons for exclusion are presented in the PRISMA‐ScR flow diagram (Figure S1).…”

Section: Resultsmentioning

confidence: 99%

“…Ten programmes described using a database or registry to track patients and their outcomes. 31,33,34,36,38,42,44,47,50,53 Accessing follow-up care. Eligibility criteria for programmes varied widely but most included children undergoing early interventions or surgery for CHD and/or who were classified at high risk of developmental disorder according to the AHA.…”

Section: Follow-up Location Service Structure and Providersmentioning

confidence: 99%

“…Fifteen studies, [27][28][29][31][32][33][34]36,38,40,42,[49][50][51]53,56 reported outcomes related to neurodevelopmental programme adoption (uptake) by eligible children with CHD. The lowest reported uptake of neurodevelopmental follow-up was 4%, 38 accounted for by the low number of providers regularly referring into the programme, and patient no-shows due to insurance coverage.…”

Section: Outcomes Of Implementing Neurodevelopmental Follow-up Progra...mentioning

confidence: 99%

“…Alam et al 35 Children started new speech therapy (50%), occupational therapy (56%), or physical therapy (50%) as a result of attending the neurodevelopmental follow-up programme; 31% of children developed new school plans and 86% of struggling students improved grades Tan et al 47 Children received a new autism diagnosis (n = 2) or referral to autism specialist (n = 9) as a result of neuropsychological evaluation in the follow-up programme Ruehl et al 33 The follow-up programme supported 97% of children who required new or expanded education plans to achieve these. For those in the programme, 96% of children improved in at least one area of school performance recommendations.…”

Section: Reported Outcomementioning

confidence: 99%

See 4 more Smart Citations

Implementing neurodevelopmental follow‐up care for children with congenital heart disease: A scoping review with evidence mapping

Abell

Eagleson

Auld

et al. 2023

Develop Med Child Neuro

View full text Add to dashboard Cite

AimTo identify and map evidence describing components of neurodevelopmental follow‐up care for children with congenital heart disease (CHD).MethodThis was a scoping review of studies reporting components of neurodevelopmental follow‐up programmes/pathways for children with CHD. Eligible publications were identified through database searches, citation tracking, and expert recommendations. Two independent reviewers screened studies and extracted data. An evidence matrix was developed to visualize common characteristics of care pathways. Qualitative content analysis identified implementation barriers and enablers.ResultsThe review included 33 studies. Twenty‐one described individual care pathways across the USA (n = 14), Canada (n = 4), Australia (n = 2), and France (n = 1). The remainder reported surveys of clinical practice across multiple geographical regions. While heterogeneity in care existed across studies, common attributes included enrolment of children at high‐risk of neurodevelopmental delay; centralized clinics in children's hospitals; referral before discharge; periodic follow‐up at fixed ages; standardized developmental assessment; and involvement of multidisciplinary teams. Implementation barriers included service cost/resourcing, patient burden, and lack of knowledge/awareness. Multi‐level stakeholder engagement and integration with other services were key drivers of success.InterpretationDefining components of effective neurodevelopmental follow‐up programmes and care pathways, along with enhancing and expanding guideline‐based care across regions and into new contexts, should continue to be priorities.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Follow-up Location Service Structure and Providersmentioning

confidence: 99%

Section: Outcomes Of Implementing Neurodevelopmental Follow-up Progra...mentioning

confidence: 99%

Section: Reported Outcomementioning

confidence: 99%

See 3 more Smart Citations

Implementing neurodevelopmental follow‐up care for children with congenital heart disease: A scoping review with evidence mapping

Abell

Eagleson

Auld

et al. 2023

Develop Med Child Neuro

View full text Add to dashboard Cite

show abstract

Enhancing interprofessional interagency collaboration for minoritized and low-income children with chronic illnesses.

Stoiber,

Ruehl,

Landry

et al. 2024

School Psychology

Self Cite

View full text Add to dashboard Cite

Children with chronic illnesses present unique health, psychosocial, and learning challenges. Due to the complexities surrounding their needs, these children and their families often encounter multilayered barriers when accessing educational services and health care management. Medical-family-school interprofessional interagency collaborations (IIC) are needed to facilitate information sharing across institutions, treatment alignment among care partners, and equitable and high-quality school-based service delivery. This article presents a novel hospital-based school consultative liaison service, the Educational Achievement Partnership Program (EAPP), which conducts IIC with the families, schools, hospitals, and community care partners of children with chronic illnesses. We explore disproportionalities in IIC services among low-income and racially/ethnically minoritized children and examine ways to increase IIC service access and utilization. Results demonstrate that systematic changes targeting in-person communication with families significantly increased minoritized and low-income children's EAPP participation. Despite this increase, differences occurred between minoritized and White children's utilization through all stages of EAPP service delivery. These results underscore the importance of ongoing IIC service evaluation to examine the effectiveness of implementation components. We discuss implications and highlight opportunities for similar medicalfamily-school IIC under a school psychologist-led medical liaison consultative approach. We conclude that IIC is best fostered through innovations in communication models, graduate training, practice, and research. Impact and ImplicationsChildren with chronic illnesses present complex needs that call for interprofessional interagency collaboration (IIC). We present a medical-family-school partnership program and examine intervention outcomes related to equity, access, and utilization among minoritized and low-income children. We discuss future directions for improving IIC, including ways school psychologists can lead the educational sector in becoming a more health-friendly system.

show abstract

Trisomy 21 and Congenital Heart Disease: Impact on Health and Functional Outcomes From Birth Through Adolescence: A Scientific Statement From the American Heart Association

Peterson,

Clarke,

Gelb

et al. 2024

JAHA

View full text Add to dashboard Cite

Due to improvements in recognition and management of their multisystem disease, the long‐term survival of infants, children, and adolescents with trisomy 21 and congenital heart disease now matches children with congenital heart disease and no genetic condition in many scenarios. Although this improved survival is a triumph, individuals with trisomy 21 and congenital heart disease have unique and complex care needs in the domains of physical, developmental, and psychosocial health, which affect functional status and quality of life. Pulmonary hypertension and single ventricle heart disease are 2 known cardiovascular conditions that reduce life expectancy in individuals with trisomy 21. Multisystem involvement with respiratory, endocrine, gastrointestinal, hematological, neurological, and sensory systems can interact with cardiovascular health concerns to amplify adverse effects. Neurodevelopmental, psychological, and functional challenges can also affect quality of life. A highly coordinated interdisciplinary care team model, or medical home, can help address these complex and interactive conditions from infancy through the transition to adult care settings. The purpose of this Scientific Statement is to identify ongoing cardiovascular and multisystem, developmental, and psychosocial health concerns for children with trisomy 21 and congenital heart disease from birth through adolescence and to provide a framework for monitoring and management to optimize quality of life and functional status.

show abstract

Building a Cardiac Educational Achievement Partnership Program: Examination of Implementation

Cited by 3 publications

References 3 publications

Implementing neurodevelopmental follow‐up care for children with congenital heart disease: A scoping review with evidence mapping

Implementing neurodevelopmental follow‐up care for children with congenital heart disease: A scoping review with evidence mapping

Enhancing interprofessional interagency collaboration for minoritized and low-income children with chronic illnesses.

Trisomy 21 and Congenital Heart Disease: Impact on Health and Functional Outcomes From Birth Through Adolescence: A Scientific Statement From the American Heart Association

Contact Info

Product

Resources

About