Bringing Home to the Hospital: Development of the Reflection Room and Provider Perspectives

Vesely, Claire; Newman, Vivienne; Winters, Yolanda; Flori, Heidi R.

doi:10.1089/jpm.2016.0070

Cited by 4 publications

(4 citation statements)

References 9 publications

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“…This paper reiterates the fact that there is a need to continuously protect patient privacy and that patient privacy in ICU is a key issue of concern in health care internationally (HIQA ; NHS ; Vesely, Newman, Winters, & Flori, ). This protection, while understood as commonplace, is not consistently applied internationally and can be dependent on local resources and motivations.…”

Section: Discussionmentioning

confidence: 78%

Privacy at end of life in ICU: A review of the literature

Timmins

Parissopoulos

Plakas

et al. 2018

Journal of Clinical Nursing

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Section: Discussionmentioning

confidence: 78%

Privacy at end of life in ICU: A review of the literature

Timmins

Parissopoulos

Plakas

et al. 2018

Journal of Clinical Nursing

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“…Moreover, if they do travel to a hospice facility, this may limit their access to supports from friends, neighbors, and extended family members. Although support for a dying child and family is often prioritized, hospitals and hospice facilities vary in their capacity to accommodate families (Cárdenas-Turanzas et al., 2008; Vesely et al., 2017). In the context of some approaching pediatric deaths, options such as inpatient hospice facilities and home deaths may not be offered to families.…”

Section: Factors That Potentially Influence Lodmentioning

confidence: 99%

Factors Associated With the Location of Expected Pediatric Deaths in the Palliative Care Context

2020

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Early planning and knowing which factors to consider when planning the location of death (LOD) of a palliative child, may help minimize the burden of hasty decision-making in the future, and may provide families with a sense of control. The current paper reviewed which factors were associated with pediatric LOD and further considered some emerging factors that should are important to better facilitate integrative planning. Three overarching areas of consideration related to pediatric LOD planning were identified including health service factors, familial factors and patient factors. Multiple sub-factor considerations are presented. Further, the paper presents a conceptual model of the factors found to be related to pediatric LOD planning. The limitations that exist with rigorously and empirically studying pediatric LOD preferences are apparent from the dearth of knowledge seen in the field. However, future studies should continue to examine such factors more closely to better understand the nuanced implications.

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“…The complex and myriad needs of parents at EOL led some institutions to create "End of Life" checklists or packets with items completed by designated family liaisons to ensure appropriate care (4,36,38,73). Additionally, USCF Benioff Children's Hospital Oakland offers a "Reflection Room", a private home-like suite for families to stay with their child during EOL and up to 24 hours after death (74). This has decreased PICU locational death and most surveyed staff ascribe value to this resource as promoting patient-and family-centered care.…”

Section: Systems Issues the Icu Environment And Pc's "Branding"mentioning

confidence: 99%

Pediatric palliative care in the intensive care unit and questions of quality: a review of the determinants and mechanisms of high-quality palliative care in the pediatric intensive care unit (PICU)

Short¹,

Thienprayoon²

2018

Transl Pediatr

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This article reviews the state and practice of pediatric palliative care (PC) within the pediatric intensive care unit (PICU) with specific consideration of quality issues. This includes defining PC and end of life (EOL) care. We will also describe PC as it pertains to alleviating children's suffering through the provision of "concurrent care" in the ICU environment. Modes of care, and attendant strengths, of both the consultant and integrated models will be presented. We will review salient issues related to the provision of PC in the PICU, barriers to optimal practice, parental, and staff perceptions. Opportunity areas for quality improvement and the role of initiatives and measures such as education, family-based initiatives, staff needs, symptom recognition, grief, and communication follow. To conclude, we will look to the literature for PC resources for pediatric intensivists and future directions of study.

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Bringing Home to the Hospital: Development of the Reflection Room and Provider Perspectives

Abstract: This study demonstrated an overwhelmingly positive experience in providing EOL and/or PM care to children in the RR and staff would recommend this to peers. This model of care should be a serious consideration for hospitals in the United States.

Cited by 4 publications

References 9 publications

Privacy at end of life in ICU: A review of the literature

Privacy at end of life in ICU: A review of the literature

Factors Associated With the Location of Expected Pediatric Deaths in the Palliative Care Context

Pediatric palliative care in the intensive care unit and questions of quality: a review of the determinants and mechanisms of high-quality palliative care in the pediatric intensive care unit (PICU)

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