Brief Report: Preliminary Outcomes of a Peer Counselling Program for Parents of Children with Autism in the South Asian Community

Mills, Ann S.; Vimalakanthan, Kiruthiha; Sivapalan, Shivajan; Shanmugalingam, Neshanth; Weiss, Jonathan A.

doi:10.1007/s10803-020-04538-9

Cited by 6 publications

(12 citation statements)

References 31 publications

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“…The majority of the studies ( n = 10) used post designs (Akre et al, 2015; Blake et al, 2019; Borek et al, 2018; Bray et al, 2017; Dababnah & Parish, 2016; Fung et al, 2018; Martin et al, 2019; Mills et al, 2021; Niinomi et al, 2016; Wilford et al, 2020), and there was one randomized controlled trial (Boogerd et al, 2017) and one study with a non‐randomized comparison group (Stuttard et al, 2016) (Table 3). These studies were conducted across multiple countries, including the United Kingdom ( n = 5) (Blake et al, 2019; Borek et al, 2018; Bray et al, 2017; Martin et al, 2019; Stuttard et al, 2016), Canada ( n = 3) (Fung et al, 2018; Lunsky et al, 2018; Mills et al, 2021) and the United States ( n = 2) (Dababnah & Parish, 2016; Wilford et al, 2020), and included a total of 556 participants. The most common diagnosis of the children requiring care was autism spectrum disorder (ASD) ( n = 6 studies) (Dababnah & Parish, 2016; Fung et al, 2018; Lunsky et al, 2018; Mills et al, 2021; Niinomi et al, 2016; Stuttard et al, 2016).…”

Section: Resultsmentioning

confidence: 99%

“…These studies were conducted across multiple countries, including the United Kingdom ( n = 5) (Blake et al, 2019; Borek et al, 2018; Bray et al, 2017; Martin et al, 2019; Stuttard et al, 2016), Canada ( n = 3) (Fung et al, 2018; Lunsky et al, 2018; Mills et al, 2021) and the United States ( n = 2) (Dababnah & Parish, 2016; Wilford et al, 2020), and included a total of 556 participants. The most common diagnosis of the children requiring care was autism spectrum disorder (ASD) ( n = 6 studies) (Dababnah & Parish, 2016; Fung et al, 2018; Lunsky et al, 2018; Mills et al, 2021; Niinomi et al, 2016; Stuttard et al, 2016). Three studies described the needs of the children in more general terms such as additional needs or disability (Borek et al, 2018; Bray et al, 2017; Martin et al, 2019), and the remaining three evaluated interventions for parents of a child with diabetes (Boogerd et al, 2017), cancer (Wilford et al, 2020) and a variety of chronic illnesses (Akre et al, 2015).…”

Section: Resultsmentioning

confidence: 99%

“…The interventions included peer‐led parent programmes or were interventions that contained an element of peer support. Six studies included interventions that were completely peer led (Blake et al, 2019; Boogerd et al, 2017; Bray et al, 2017; Fung et al, 2018; Martin et al, 2019; Mills et al, 2021). The other studies reported on interventions that were expert facilitated and included an element of peer support.…”

Section: Resultsmentioning

confidence: 99%

“…The other studies reported on interventions that were expert facilitated and included an element of peer support. The duration of programmes varied from 1.5 days to 6 months, and many of the interventions were held weekly or fortnightly ( n = 9) (Akre et al, 2015; Blake et al, 2019; Borek et al, 2018; Bray et al, 2017; Dababnah & Parish, 2016; Martin et al, 2019; Mills et al, 2021; Stuttard et al, 2016; Wilford et al, 2020). Interventions were held in community health settings.…”

Section: Resultsmentioning

confidence: 99%

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Effectiveness of peer support programmes for improving well‐being and quality of life in parents/carers of children with disability or chronic illness: A systematic review

Lancaster

Bhopti

Taylor

et al. 2022

Child

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Aim This systematic review synthesized quantitative evidence from the past decade of the effectiveness of peer support programmes in improving the well‐being and/or quality of life (QoL) for parents/carers of children with disability/chronic illnesses. Background For children with disability or chronic illness, parents/carers are critical in enabling or limiting their child's development. The parent's/carer's ability to provide the necessary responsive and structured care is impacted by several factors, including their own personality, skills, resources and well‐being. Peer support programmes often aim to build parent/carer and/or family capabilities. Although studies and reviews have found positive benefits arising from such programmes, the impact of such programmes, specifically on well‐being and QoL, is unknown Results Quantitative studies published between 2011 and 2020 that examined the impact of programmes with a significant peer support component on parental/carer well‐being, QoL and/or distress were identified from four databases and were searched and yielded 3605 articles, with 13 articles meeting the inclusion criteria. The results suggested that peer support is effective for reducing distress and improving the well‐being and QoL among parents of children with disabilities; however, the evidence is limited by a high risk of bias in the included studies. Conclusions Although existing evidence suggests that programmes for parents/carers with a significant peer support component are beneficial for well‐being and QoL, rigorous methodologies are needed in the future to gain a better understanding of the benefits of such programmes.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Effectiveness of peer support programmes for improving well‐being and quality of life in parents/carers of children with disability or chronic illness: A systematic review

Lancaster

Bhopti

Taylor

et al. 2022

Child

View full text Add to dashboard Cite

show abstract

“…al ( 2021 ) 24 4—19 9.42 8.6 12.58 4.58 23 1.000 0.9999 6.63 0.01 Mills et. al ( 2021 ) 63 3—25 11.3 7.2 10.7 2.7 62 1.000 0.9955 0.004 0.45 Moss et al ( 2014 ) 26 8—17 11.74 2.53 10.26 2.26 25 1.00 0.9836 0.016 1.64 Radley et al ( 2014 ) 3 10—14 12.4 NR 9.6 1.6 2 0.99 0.8746 0.120 33* Ridderinkhof et al ( 2018 ) 45 8—19 13.03 2.72 8.97 0.97 44 1.00 0.8313 0.169 16.87 Rios et. al ( 2020 ) 23 …”

Section: Resultsmentioning

confidence: 99%

Stress and Anxiety Among Parents of Transition-Aged Children with Autism Spectrum Disorder: a Systematic Review of Interventions and Scales

Agarwal

Wuyke

Sharma

et al. 2022

Rev J Autism Dev Disord

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The period between adolescence to young adulthood can be stressful for parents of transition-aged children (14 to 22 years old) with autism spectrum disorder. A systematic review was undertaken to examine if existing interventions address the unique parental stressors of this phase and if the scales used to measure parental stress and anxiety are suitable for this group. Of the 9813 studies screened, only 13 studies met the inclusion criteria. Findings indicated that interventions focused on mindfulness, social functioning, or multiple components, of which only two addressed the transition period and only three specifically targeted parents of this age group. Moreover, of the six scales which assessed stress or anxiety, none were designed for these parents. Findings highlight the urgent need for more suitable scales and targeted interventions.

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Exploring long‐term outcomes of a peer support programme for parents* of children with disability in Australia

Lancaster,

Kern,

Harding

et al. 2024

Child

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Peer support groups can offer parents of children with disability, positive well‐being outcomes. Peer support groups not only provide opportunities for connections with others with similar experiences but also provide resources and information, emotional support, a sense of belonging and may help reduce stress and isolation. Peer support groups are an established form of support existing within family centred practice. However, it is unclear whether peer support groups achieve the outcomes that they aim to deliver. Further, little is known about the longer‐term outcomes for parents attending such groups. This study aimed to explore the medium‐ and long‐term outcomes and experiences of parents who participated in a peer support programme (the Now and Next programme) for parents of children with disability. Well‐being data were collected at three timepoints (Ts): prior to commencing the programme (T1), immediately after completion of the programme (T2) and 6–30 months after completion of the programme (T3). Results of the study showed empowerment and well‐being improved from T1 to T2, with gains maintained at T3. Hope scores did not significantly change over time. Participants continued to set and achieve goals over time using resources from the programme. Improvements in parents' well‐being and empowerment scores were maintained in the longer‐term. Our study contributes to evidence confirming sustained long‐term outcomes of peer support programmes and demonstrates that building parent capacity, empowerment and well‐being has a lasting effect on the parents of children with disability.

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Brief Report: Preliminary Outcomes of a Peer Counselling Program for Parents of Children with Autism in the South Asian Community

Cited by 6 publications

References 31 publications

Effectiveness of peer support programmes for improving well‐being and quality of life in parents/carers of children with disability or chronic illness: A systematic review

Effectiveness of peer support programmes for improving well‐being and quality of life in parents/carers of children with disability or chronic illness: A systematic review

Stress and Anxiety Among Parents of Transition-Aged Children with Autism Spectrum Disorder: a Systematic Review of Interventions and Scales

Exploring long‐term outcomes of a peer support programme for parents* of children with disability in Australia

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