Brief Parent-Mediated Intervention for Children with Autism Spectrum Disorder: A Feasibility Study from South India

Manohar, Harshini; Kothiyal, Preeti; Chandrasekaran, Venkatesh; Rajkumar, Ravi Philip

doi:10.1007/s10803-019-04032-x

Cited by 22 publications

(39 citation statements)

References 47 publications

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“…The home group had a 100% attendance rate, while the workshop group had a 94% attendance rate. This is a higher rate than previous studies that ranged from 80–86% [ 25 , 26 ]. In the study conducted by Manohar et al [ 25 ], 94% of the participants attended four out of five sessions, and 86% attended all five sessions.…”

Section: Discussioncontrasting

confidence: 62%

“…The recruitment rate was calculated as the number of eligible participants and started the intervention divided by the number of participants who were assessed for eligibility. Therefore, we considered a recruitment rate of at least 50% to be feasible as this recruitment rate was comparable to a previous parent-mediated intervention for children with ASD [ 25 ]. The retention rate was defined as the number of individuals who remained in the study until the follow-up test (3 months after intervention) as a proportion of the total number of participants assessed for eligibility.…”

Section: Methodsmentioning

confidence: 99%

“…The retention rate was defined as the number of individuals who remained in the study until the follow-up test (3 months after intervention) as a proportion of the total number of participants assessed for eligibility. Retention rates have ranged from 76–95% in comparable parent-mediated feasibility studies [ 25 , 26 ]. A retention rate of at least 76% was considered an acceptable measure of trial feasibility.…”

Section: Methodsmentioning

confidence: 99%

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A Randomized Feasibility Trial of a Fundamental Motor Skill Parent-Mediated Intervention for Children with Autism Spectrum Disorders

Columna

Prieto

Beach

et al. 2021

IJERPH

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The purpose of this pilot study was to examine the feasibility of a fundamental motor skills (FMS) intervention with two groups on the acquisition of FMS of children with autism spectrum disorders (ASD). We randomly assigned families (n = 15) of children with ASD aged 4–11 years into two groups (a workshop or a home-based group) focused on FMS development. Both groups participated in a 10-week intervention and were given the same instructional manual and adapted physical activity equipment. The workshop group also attended four in-person workshops targeting the needs of children with ASD and their parents. Children were tested on their FMS using the third edition of the Test of Gross Motor Development at the start and end of the intervention and then three months following the intervention. The recruitment rate was 50%, and the retention rate was 80% for all participants. The intervention for groups was safe and accepted by the participants as evaluated by post-program interviews. The outcomes of this pilot study suggest that parents can facilitate the acquisition of FMS of their children with ASD. Although these results are positive, there is a need to further identify effective interventions for FMS development in children with ASD.

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Section: Discussioncontrasting

confidence: 62%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

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A Randomized Feasibility Trial of a Fundamental Motor Skill Parent-Mediated Intervention for Children with Autism Spectrum Disorders

Columna

Prieto

Beach

et al. 2021

IJERPH

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“…Likewise Zand et al (2018) piloted a four-session, manualized, positive parenting program on 21 parents of newly diagnosed children aged 2 through 12 years and reported clinically and statistically significant reductions in child maladaptive behaviors, as well as improvements in parental and family functioning. In India, Manohar et al (2019) reported that 26 parents who received five, out-patient sessions focusing on social and adaptive skills reported more improvements in parental stress and child outcome measures compared to 24 parents in a control group.…”

mentioning

confidence: 99%

The Impact of a Brief Home-Based Intervention on Families with a Child with Autism Spectrum Disorder

Mullan¹,

Boyd²,

McConkey

2020

J Dev Phys Disabil

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A brief intervention is described and evaluated that aimed to build and strengthen relationships for families of children diagnosed with ASD aged 12 and under. A particular focus was on socially disadvantaged parents. Parents were offered around five home visits which took place on weekdays during working hours; each lasting around 90 min. They were given individualised practical tools and support to manage their children’s behaviours alongside providing a listening ear to parents’ concerns. In all, 456 children and 427 families participated over a four-year period with a take-up rate of 87% of all referrals. The drop-out rate was low (4.5%) as was the proportion of missed and cancelled appointments. Parents’ satisfaction ratings were high and most found the number of sessions provided was ‘just right’. Children improved in their personal care, had less difficulty with change, showed less anger and had fewer meltdowns. Parents reported being less stressed, not feeling so down and managing their child better. The evaluations suggested that a brief home-based intervention is a viable and effective means of providing personalized, post-diagnostic support to parents at periodic intervals, although socially disadvantaged families may require additional assistance beyond managing their child’s ASD. The project also highlighted broader issues that impede effective support for families.

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“…One year follow-up of the patients showed maintenance of gains. 31 While on the one hand, there is a quest to develop indigenous interventions suitable to the local population and available health care resources, on the other hand, adapting existing western intervention modules to our settings is proven to be efficacious. Parent mediated intervention for Autism Spectrum disorders in South Asia (PASS) intervention program has attempted to adapt, Preschool autism communication trial (PACT) intervention model, developed and tested !…”

Section: Evidence From Indian Studiesmentioning

confidence: 99%

Early intervention of Autism Spectrum Disorder: translating research into practice

Kothiyal

Manohar²

2018

ijmhns

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Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder, with increasing prevalence globally. Early intervention has been shown to improve the core deficits and result in a favorable outcome in children with ASD. Various interventional methods, novel mechanisms, and approaches are being widely researched. Though accelerating interventional research in ASD is observed globally, evidence from Indian setting is sparse. Given the uniqueness of cultural, socio-economic conditions, population statistics, existing health care and referral system, it is pivotal to develop and test interventional methods that are applicable and acceptable to the indigenous population. This paper reviews the currently available evidence-based treatment modalities in the Indian settings, with a specific focus on the behavioral interventions. Early diagnosis is seldom seen to translate into early intervention. In the background of the existing challenges, strategies to translate research into practice in terms of developing sustainable methods of service delivery, capacity building, training of trainers, need for liaison between experts and role of health care policy makers are discussed. Improving awareness among parents, medical professionals and stakeholders is the first step forward, towards translating research into practice.

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Brief Parent-Mediated Intervention for Children with Autism Spectrum Disorder: A Feasibility Study from South India

Cited by 22 publications

References 47 publications

A Randomized Feasibility Trial of a Fundamental Motor Skill Parent-Mediated Intervention for Children with Autism Spectrum Disorders

A Randomized Feasibility Trial of a Fundamental Motor Skill Parent-Mediated Intervention for Children with Autism Spectrum Disorders

The Impact of a Brief Home-Based Intervention on Families with a Child with Autism Spectrum Disorder

Early intervention of Autism Spectrum Disorder: translating research into practice

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