Breastfeeding practices for infants with inherited metabolic disorders: A survey of registered dietitians in the United States and Canada

Buckingham, Allison; Kenneson, Aileen; Singh, Rani H.

doi:10.1016/j.ymgmr.2022.100865

Cited by 3 publications

(4 citation statements)

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“…Long-term adherence to a low-phe diet is pivotal for positive outcomes and normal growth ( 1 ). Concerns about breastfeeding practices in PKU patients highlight the need for standardized guidelines, specialized training, and support for healthcare providers and families ( 9 , 10 , 12 , 13 ). Meticulous monitoring and dietary adherence before conception are crucial due to elevated complication risks.…”

Section: Discussionmentioning

confidence: 99%

“…Nutritional management is challenging because only 9 out of the 13 countries have guidelines, but most of them use international guidelines due to lack of national management protocols and regional database of Phe content of foods. (9,10,12,13). Meticulous monitoring and dietary adherence before conception are crucial due to elevated complication risks.…”

Section: Poloni Et Al (6)mentioning

confidence: 99%

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Navigating phenylketonuria management to improve it in Latin America: a systematic literature review and applicability analysis

Aguirre,

Haro,

Campodónico

et al. 2024

Front. Nutr.

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IntroductionPhenylketonuria (PKU) is an autosomal recessive metabolic disorder resulting from phenylalanine hydroxylase deficiency, which impacts neurodevelopment. Lifelong low-phenylalanine diets and multidisciplinary care are pivotal for managing PKU. Latin American challenges in PKU care include diverse newborn screening programs, limited specialized healthcare, and resource scarcity.MethodsA systematic literature review was conducted (2010–2023) on PKU management following PRISMA guidelines. Inclusion criteria encompassed English/Spanish articles focusing on PKU management guidelines approved by an organization as well as articles focusing on PKU management in Latin America. After screening 127,276 results, 6 articles were included.ResultsSix articles were analyzed, highlighting shared principles like multidisciplinary care, lifelong dietary adherence, personalized plans, and regular monitoring. Guides emphasized regional variations, breastfeeding complexities, and challenges for pregnant women with PKU.DiscussionMultidisciplinary care emerges as critical, incorporating physicians, psychologists, dietitians, nurses, and genetic counselors. Lifelong adherence to low-phenylalanine diets and personalized strategies for different life stages are emphasized. Challenges in Latin America include healthcare gaps, scarce resources, and reliance on international guidance. The importance of breastfeeding, preconception care, and comprehensive support for pregnant women with PKU is underscored.ConclusionCollaborative efforts are essential to address PKU challenges in Latin America. Advocacy for awareness, specialized training, regional databases, and international collaborations can enhance diagnosis and management, ensuring a better quality of life for PKU individuals in the region. Embracing lessons from existing guides will contribute to improved PKU care and overall well-being.

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Section: Discussionmentioning

confidence: 99%

Section: Poloni Et Al (6)mentioning

confidence: 99%

Navigating phenylketonuria management to improve it in Latin America: a systematic literature review and applicability analysis

Aguirre,

Haro,

Campodónico

et al. 2024

Front. Nutr.

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“…Additionally, it helps prevent diabetes, coronary artery disease, childhood obesity, and reduces newborn illness and mortality rates [ 1 – 4 ]. Breast milk is an ideal nutrient with high bioavailability and digestibility [ 3 , 4 ]. The benefits of breast milk extend beyond infancy and continue into adulthood [ 5 ].…”

Section: Introductionmentioning

confidence: 99%

The effect of breastfeeding education given through the teach-back method on mothers’ breastfeeding self-efficacy and breastfeeding success: a randomized controlled study

Çetindemir,

Cangöl

2024

BMC Pregnancy Childbirth

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Background An individualized education using visual aids, allowing the woman to demonstrate what she has learned, and providing the opportunity for the woman to ask questions are important in terms of breastfeeding self-efficacy, breastfeeding success, and the sustainability of the education. This study is original in evaluating the effectiveness and sustainability of breastfeeding education provided through the teach-back method in terms of breastfeeding self-efficacy and success in a short period of time. Therefore, the aim of this study is to examine the impact of teach-back method on mothers’ breastfeeding self-efficacy and breastfeeding success. Materials and methods This is a randomized controlled study. The population of this study consisted of women who gave birth in the obstetrics and gynecology department of a state hospital located in Çorlu, in the northwest region of Turkey, between March 2022 and August 2022. The sample of this study consisted of a total of 100 postpartum women, with 50 participants in the experimental group and 50 participants in the control group, who gave birth in the obstetrics and gynecology department of Çorlu State Hospital. Computer-assisted simple randomization was employed to ensure the homogeneous distribution of the women into the experimental and control groups. The women in the experimental group received education and counseling services using the Teach-Back Method, based on the content of the prepared Breastfeeding Education Guide. The control group mothers, on the other hand, received standard breastfeeding education and counseling services. The data were collected through face-to-face interviews during the first 24 h postpartum and at the 1-month follow-up visits. In the study, the data collection tools used were a Personal Information Form, LATCH Breastfeeding Assessment and Evaluation Scale, Postpartum Breastfeeding Self-Efficacy Scale (short form), and the Teach-Back Observation Tool. In the evaluation of the research findings, the SPSS (Statistical Package for the Social Sciences) version 25.0 (IBM Corp., Armonk, NY, USA) program was used for statistical analyses. Descriptive, graphical, and statistical methods were employed to examine whether the scores obtained from each continuous variable followed a normal distribution. The Kolmogorov-Smirnov test was used to assess the normality of the scores derived from a continuous variable using statistical methods. Results In the study, no significant difference was found in the distribution of the socio-demographic characteristics of the participants according to the study groups. In the experimental group, which received training with the tell-what-you-learned method, the mothers’ average EÖYÖ scores before the training, at the 24th hour after the training and at the 1st month after the training were 46.41 ± 11.26, respectively; It was determined to be 66.23 ± 6.94 and 67.84 ± 6.27. In the measurements made during the follow-up, it was determined that there was a significant difference in the study group’s EÖYÖ score averages (p < 0,001). For mothers in the experimental group, the average LATCH score of the mothers before training, 24 h after training and 1 month after training was 7.73 ± 1.81, respectively; It was determined that these values were 8.66 ± 1.61 and 9.95 ± 0.30, and there was a significant difference in the mean LATCH scores of the study group in the measurements made during the follow-up (p < 0.001). Conclusions Breastfeeding education provided through the teach-back method is more effective in increasing both breastfeeding success and breastfeeding self-efficacy when compared to standard breastfeeding education. Trial registration Iran Randomized Clinical Trial Center IRCT20220509054795N2 Date of first registration: 10/11/2022.

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“…One food that has been proven to increase the volume of breast milk is by consuming honey (Bucher & Spatz, 2019). The research results in Japan and several other drugs demonstrate that honey is able to ease the release of breast milk and the number of antibodies in breast milk (Buckingham et al, 2022). Furthermore, the baby's immunity to the disease also increases (Budiati & Setyowati, 2019).…”

Section: Introductionmentioning

confidence: 99%

The Effect of Black Cumin (Nigella Sativa) on Breastfeeding Mothers

Zakaria

Astuti

2022

j. info kesehat.

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Breast milk is the best nutrient to reduce the pain in nursing mothers and death in infants. However, for nursing mothers, too little milk volume is the cause of problems occurring during the breastfeeding process. Thus, mothers who breastfeed should consume foods that can increase the breast milk volume. One food frequently consumed by mothers to increase breast milk is honey. In fact, natural honey is challenging to discover, and the price is also high which makes it as an obstacle. A more economical alternative is required, one of which is black cumin. It is easy to obtain and the price is also affordable. Black cumin also contains galactagogue to increase prolactin that influences breast milk production. The objective of this study is to identify the effect of black cumin on the volume of breast milk. The study was a randomized controlled trial involving 60 breastfeeding mothers divided into intervention groups and control groups. The intervention group was provided 15 grams of black cumin brewed with 1000C boiling water as much as 200 ml, and the control group was assigned 15 grams of pure honey brewed boiling 1000C as much as 200 ml. Intervention and control were administered on the second day to the day of completion after giving birth. They were measuring instruments which accustomed to measure breast milk pumps. Bivariate analysis employing the Wilcoxon and Mann Whitney tests presented a significant difference between the volume of breast milk (p = 0.001) of the control and intervention groups. This study recommends the application of black cumin as a strategy to increase the volume of breast milk in nursing mothers.

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Breastfeeding practices for infants with inherited metabolic disorders: A survey of registered dietitians in the United States and Canada

Cited by 3 publications

References 42 publications

Navigating phenylketonuria management to improve it in Latin America: a systematic literature review and applicability analysis

Navigating phenylketonuria management to improve it in Latin America: a systematic literature review and applicability analysis

The effect of breastfeeding education given through the teach-back method on mothers’ breastfeeding self-efficacy and breastfeeding success: a randomized controlled study

The Effect of Black Cumin (Nigella Sativa) on Breastfeeding Mothers

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