Breast Cancer Advocacy across Europe through the work and development of EUROPA DONNA, the European Breast Cancer Coalition

Buchanan, Mary; Kyriakides, S.; Fernandez-Marcos, A.; Horvatin, Josipa; Mosconi, Paola; O’Connell, Dianne; Zernik, Nicole

doi:10.1016/j.ejca.2004.02.007

Cited by 3 publications

(3 citation statements)

References 2 publications

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“…In the early 1990s, EUROPA DONNA, the European Breast Cancer Coalition, was formed. The emergence of breast cancer advocacy throughout Europe can be traced through the development of EUROPA DONNA, a coalition of affiliated groups for countries across Europe (2). Similarly, Reach to Recovery has grown into an international network of survivor‐advocates that includes 84 groups in 50 countries.…”

Section: Resultsmentioning

confidence: 99%

“…The politics of breast cancer accelerated in the United States in the 1970s and 1980s, when well‐known women such as Betty Ford, Nancy Reagan, Happy Rockefeller, and Shirley Temple Black began to speak out about their experiences with the disease (2,3). As survivor‐advocates, these American women helped raise public awareness about breast cancer and the need for early detection programs.…”

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confidence: 99%

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Experiences of Breast Cancer Survivor-Advocates and Advocates in Countries with Limited Resources: A Shared Journey in Breast Cancer Advocacy

Errico¹,

Rowden²

2006

Breast Journal

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The last decade has been marked by rapid growth in the breast cancer advocacy movement around the world. Today such movements are well established in North America and western Europe, and are emerging and gaining momentum in regions of the world with limited resources--Africa, Asia, eastern Europe, and Latin America. Internationally breast cancer advocates have faced the challenges of dealing with many languages, cultures, countries, and health systems. Because of these differences, existing models of breast cancer advocacy are not always appropriate or reproducible across countries. At the second biennial Global Summit Consensus Conference on International Breast Health Care, 12 breast cancer survivor-advocates and advocates from around the world gave statements describing the experiences of women with breast cancer and with advocacy in their countries, and attended a roundtable meeting to discuss breast cancer advocacy from a global perspective. We used the "long table" method to analyze their comments and identify common experiences. Although participants came from diverse settings, the analysis revealed five common experiences that were consistent across cultures: 1) the experiences and fears of breast cancer survivors, 2) beliefs and taboos about breast cancer that hinder awareness programs and treatment, 3) the need for public education and breast cancer awareness programs in countries with limited resources, 4) difficulty in translating the concept and ethos of advocacy into many languages, and 5) the experiences in establishing and maintaining advocacy groups to promote breast cancer awareness and to inform public policy. These themes constitute an action agenda for breast cancer advocacy groups in countries with limited resources. In addition, they provide invaluable insight for policymakers, program planners, and others undertaking efforts to improve breast cancer outcomes in low-resource settings.

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Section: Resultsmentioning

confidence: 99%

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confidence: 99%

Experiences of Breast Cancer Survivor-Advocates and Advocates in Countries with Limited Resources: A Shared Journey in Breast Cancer Advocacy

Errico¹,

Rowden²

2006

Breast Journal

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“…Many patients and survivors have been willing to share their pain and experiences very openly, while encouraging others to join them in the fight against this disease. Their efforts have been most effective in gaining increased funding for breast cancer research and in the emphasis on breast cancer screening and early detection [4][5][6]. Advances in breast imaging and genetics, the introduction of minimally invasive diagnostic and therapeutic procedures, and the discovery of molecular targeted therapy have resulted in significant progress in enhancing the quality of life for many breast cancer patients.…”

Section: Background Informationmentioning

confidence: 99%

Breast Cancer in Resource-Limited Countries

Masood

2006

Womens Health (Lond Engl)

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The ever-changing face of breast advocacy

Wagner

2010

The Breast

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My personal journey into breast cancer advocacy resulted from a diagnosis of low grade DCIS. I joined with others throughout the world in turning adversity into advocacy to support endeavors which further public and professional education, political change and scientific research. This path took me from a mere one woman networking effort to addressing national panels of experts in Washington, D.C. charged with improving quality of breast care. It often became more than a full time job but the rewards were worth it. My family also supported my mission and the potential impact that advocacy could make on both a personal and community level. So I follow in the footsteps of other tenacious advocates and always keep in mind the singular focus of improving standards for quality breast care now and in the future. This paper describes the ever-changing face of advocacy from my viewpoint as a breast cancer survivor.

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Breast Cancer Advocacy across Europe through the work and development of EUROPA DONNA, the European Breast Cancer Coalition

Cited by 3 publications

References 2 publications

Experiences of Breast Cancer Survivor-Advocates and Advocates in Countries with Limited Resources: A Shared Journey in Breast Cancer Advocacy

Experiences of Breast Cancer Survivor-Advocates and Advocates in Countries with Limited Resources: A Shared Journey in Breast Cancer Advocacy

Breast Cancer in Resource-Limited Countries

The ever-changing face of breast advocacy

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