Brazilian Translation, Cross-Cultural Adaptation, Validity, and Reliability of the EMpowerment of PArents in THe Intensive Care 30 (EMPATHIC-30) Questionnaire to Measure Parental Satisfaction in PICUs

Abstract

Brazilian translation, cross-cultural adaptation, validity and reliability of the EMPATHIC-30 questionnaire to measure parental satisfaction in intensive care units

Impact of the COVID-19 Pandemic on Patient- and Family-Centered Care and on the Mental Health of Health Care Workers, Patients, and Families

“…Studies have shown that parents are satisfied with the care provided in PICU settings, especially with regard to providers' attitudes ( 32 – 34 ). During the COVID-19 pandemic, we have found that many health care workers have also been affected psychologically due to increased workload, fear of contamination, and shortage of human and material resources, among other factors ( 35 ).…”

Measuring family‐centred care practices in adult intensive care units: The EMPATHIC‐F questionnaire

“…10 Moreover, the FS-ICU only measures family satisfaction in two domains: satisfaction with care and satisfaction with medical decision-making. 26,27 In contrast, the EMPATHIC-30 questionnaire, which was broadly studied in PICU settings, [14][15][16][17][18] covers five FCC domains: information, organization, care and treatment, professional attitude, and parent participation. 13 The 30 statements of this questionnaire have been shown to provide a comprehensive conceptualization of parent satisfaction.…”

“…[11][12][13] Subsequently, the EMPATHIC-30 questionnaire has been validated and used in countries such as Australia, Denmark, Singapore, Brazil, and Spain to measure parent satisfaction. [14][15][16][17][18] Taking the FCC principles and domains of the EMPATHIC-30 into account, we hypothesized that the EMPATHIC-30 questionnaire could be adapted and used in adult critical care settings as a standardized measure of family members' experience and satisfaction of ICU care. Therefore, the objective of this study was to adapt and test the validated Spanish version of the EMPATHIC-30 questionnaire in adult critical care settings.…”

“…The reduced 30‐item EMpowerment of PArents in The Intensive Care (EMPATHIC‐30) questionnaire was developed and tested in eight Dutch PICUs based on the experiences of both parents and health care professionals 11‐13 . Subsequently, the EMPATHIC‐30 questionnaire has been validated and used in countries such as Australia, Denmark, Singapore, Brazil, and Spain to measure parent satisfaction 14‐18 …”

Satisfação dos pais em relação ao cuidado em unidade de terapia intensiva pediátrica

“…Ao se apropriar de conceitos sobre satisfação da família descritos na literatura, permeados pelas características culturais do ambiente onde a pesquisa foi realizada, este estudo considerou satisfação da família com o cuidado um atributo que leva em conta o respeito às necessidades dos pais, o engajamento da família no cuidado, o fornecimento de informações que auxiliam na tomada de decisão, um ambiente organizado e as atitudes profissionais que promovem cuidado adequado na perspectiva das famílias. (9) Ainda mais complexo do que definir satisfação é encontrar instrumentos que possam mensurá-la. No Brasil, identifica-se carência de instrumentos válidos para avaliar a satisfação da família em Unidade de Terapia Intensiva Pediátrica (UTIP), havendo, consequentemente, limitação de estudos que investigam sobre a temática (2) .…”