Body Image Quality of Life in Patients with Hidradenitis Suppurativa Compared with Other Dermatological Disorders

Andersen, Pernille Lindsø; Nielsen, Rikke Maria; Sigsgaard, V.; Jemec, Gregor B. E.; Riis, P. Theut

doi:10.2340/00015555-3464

Cited by 18 publications

(15 citation statements)

References 34 publications

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“…Patients with HS had significantly lower mean Body Image Quality of Life Inventory (BI-QoL) scores than controls. Predictors of negative BI-QoL scores in patients with HS were increased body mass index, female sex and symptoms of depression [ 82 ].…”

Section: Resultsmentioning

confidence: 99%

Quality of Life in Hidradenitis Suppurativa: An Update

Chernyshov

Finlay

Tómas-Aragonés

et al. 2021

IJERPH

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Knowledge on hidradenitis suppurativa/acne inversa (HS) is rapidly increasing. HS has a profound impact on patients and their family life. Several factors, such as comorbidities, unemployment and HS severity, make this impact even more severe. The most widely used instrument to measure this impact is the dermatology-specific DLQI. We also identified six HS-specific health-related quality of life (HRQoL) instruments. Of them, HIDRAdisk, HSIA, HiSQOL and HSQoL-24 are better validated but there is still lack of experience of its use. Several treatment methods showed positive effect on patients’ HRQoL. Surgery remains a method with a substantial positive effect on HRQoL. Several studies confirming a positive effect of adalimumab on the HRQoL of patients with HS were published during the last three years. Data on the influence of several other biologics on HRQoL of HS patients are controversial or based on studies with a small number of patients.

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Section: Resultsmentioning

confidence: 99%

Quality of Life in Hidradenitis Suppurativa: An Update

Chernyshov

Finlay

Tómas-Aragonés

et al. 2021

IJERPH

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“…The impact of hidradenitis suppurativa on patients' quality of life has been widely studied. Furthermore, HS has been shown to induce more damage than other skin diseases [22]. However, few studies have addressed the effect of HS on cohabitants' quality of life [23,24].…”

Section: Discussionmentioning

confidence: 99%

“…The overall score ranges from 0 to 30, using the following categories: no impact (0-1), mild (2-5), moderate (6)(7)(8)(9)(10), severe (11)(12)(13)(14)(15)(16)(17)(18)(19)(20) and very severe. A higher DLQI score correlates with worse quality of life (21)(22)(23)(24)(25)(26)(27)(28)(29)(30).…”

Section: Study Variablesmentioning

confidence: 99%

Quality of Life in Cohabitants of Patients with Hidradenitis Suppurativa: A Cross-sectional Study

Ramos-Alejos-Pita

Arias‐Santiago

Molina-Leyva

2020

IJERPH

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Hidradenitis suppurativa (HS) is a chronic inflammatory disease that impairs patients’ physical and mental health. However, few studies have considered the consequences of HS on cohabitants. The aims of this study were to explore the impact of HS on the quality of life (QOL) of cohabitants and to assess potentially associated factors. A cross-sectional study was conducted and patients with HS and their cohabitants were invited to participate. Validated questionnaires were used to measure QOL, anxiety and depression, type D personality and sexual dysfunction. The clinical variables of patients and the demographic characteristics of cohabitants were also collected. Twenty-seven patients and 27 cohabitants were included for analysis. Patients and cohabitants presented significant QOL impairment. A direct association was found between the Dermatology Life Quality Index (DLQI) and the Familiar Dermatology Life Quality Index (FDLQI). DLQI scores were associated with the presence of negative affectivity, a trait typical of type D personality, as well as with cohabitants’ anxiety. FDLQI scores were associated with cohabitant anxiety and patient depression. Hidradenitis suppurativa damages quality of life in patients and cohabitants. Identifying potential psychological factors could help us to recognize at-risk patients and apply personalized treatments for them and their environment.

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“…These lesions typically occur in the intertriginous regions of the body, can cause significant discomfort, have a malodorous discharge, and have a significant impact on the individual’s health‐related quality of life (HRQOL) 3–5 . Recent studies have also shown that HS can have a significant impact on how individuals view themselves and endorse high levels of body image impairment 6,7 …”

Section: Introductionmentioning

confidence: 99%

Internalized skin bias: validation study to explore the impact of the internalization of social stigma on those with hidradenitis suppurativa

Butt

Chinchilli

Leslie

et al. 2022

Acad Dermatol Venereol

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Background Hidradenitis suppurativa (HS) is a chronic auto-inflammatory disease that is highly associated with adverse psychopathology and impaired body image. Previous studies show that patients with HS are also impacted by social stigma associated with their skin disease. Over time, these experiences can influence the way in which patients feel about themselves, leading to internalized skin bias (ISB).Objectives To evaluate the validity and reliability of the Internalized Skin Bias Questionnaire (ISBQ) in an HS population and to determine the association of this instrument with markers of HS severity.Methods A cross-sectional survey with 72-h retest was sent to adult patients with HS from March to November 2021.Reliability for the ISBQ was evaluated using Cronbach's alpha and the Concordance Correlation Coefficient (CCC). Construct validity was evaluated using Pearson Correlation Coefficients with similar measures. ResultsInternal consistency for the ISBQ instrument was 0.89 with a CCC of 0.88. The ISBQ had moderate correlation (r = 0.63) with the experienced skin stigma questionnaire as well as the BDI-II (r = 0.66) and the psychosocial subscale of the HiSQOL (r = 0.65). ISBQ scores differed significantly across different stages of disease severity (P = 0.04). There was no significant difference between those with different durations of disease (P = 0.47). Conclusions This study shows that the ISBQ is a valid and reliable instrument that can be used to assess the psychosocial construct of ISB especially in a population of HS patients. Further, ISB places a prevalent negative impact on the psychopathology of patients with HS.

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Body Image Quality of Life in Patients with Hidradenitis Suppurativa Compared with Other Dermatological Disorders

Cited by 18 publications

References 34 publications

Quality of Life in Hidradenitis Suppurativa: An Update

Quality of Life in Hidradenitis Suppurativa: An Update

Quality of Life in Cohabitants of Patients with Hidradenitis Suppurativa: A Cross-sectional Study

Internalized skin bias: validation study to explore the impact of the internalization of social stigma on those with hidradenitis suppurativa

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