Body image altered by psoriasis. A study based on individual interviews and a model for body image

Khoury, L.R.; Danielsen, Patricia L; Skiveren, Jette

doi:10.3109/09546634.2012.739278

Cited by 50 publications

(63 citation statements)

References 17 publications

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“…Prominent physical symptoms are itching, pain, flaking/scaling and red patches of skin, any of which can significantly impact patients' emotional states and social functioning. Previous research has revealed that psoriasis has altered patients' body image negatively that resulted in psychosocial impairment of patients with visible symptoms [27], while the present study also found that visible physical symptoms might affect various aspects of patients' daily life. Patients might experience difficulties in maintaining former social interactions or establish new interpersonal relationships.…”

Section: Discussionsupporting

confidence: 48%

Dynamic Balancing in Illness Coping: An Interpretative Phenomenological Analysis on the Lived Experience of Chinese Patients with Psoriasis

Yan¹,

Yao²,

Hong³

et al. 2017

Health Sci J

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Psoriasis is a genetic, chronic and inflammatory skin disease characterized by itchiness and pain. Although it is not considered to be life-threating, its incurable nature implies life-long treatment with the potential to impact the physical, psychological, emotional and social dimensions of sufferers' lives Twelve patients with psoriasis were invited to participate in a semi-structured interview that examined their illness experience in terms of the onset of disease, its impact on their daily life, the treatment process and how they coped with the challenges they faced. Data were examined by utilizing interpretative phenomenological analysis.Three meta-themes emerged as most representative of patients' experiences:• Surviving the chronicity of the disease, • Accepting the disease and illness experience as part of their life, • Thriving with the new assumptive world.Major themes have been identified resulting in the advancement of a novel conceptual model, "Dynamic Balancing in Illness Coping" that takes account of the importance of effective coping in addressing the biopsycho-social distress arising from psoriasis. The model is considered to provide an alternative perspective to existing stage models in understanding illness experience.

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Section: Discussionsupporting

confidence: 48%

Dynamic Balancing in Illness Coping: An Interpretative Phenomenological Analysis on the Lived Experience of Chinese Patients with Psoriasis

Yan¹,

Yao²,

Hong³

et al. 2017

Health Sci J

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“…[17][18][19][20] Our findings throw light on ways in which people with CTCL adapt to and cope with their illness. This supports research in other dermatological conditions and cancer which has documented the sometimes devastating burden of disfiguring diseases.…”

Section: Discussionmentioning

confidence: 76%

‘We had to change to single beds because I itch in the night’: a qualitative study of the experiences, attitudes and approaches to coping of patients with cutaneous T-cell lymphoma

et al. 2015

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Findings from this study illuminate the diverse effects of CTCL on patients' lives. The universal experience of delays in diagnosis was striking and a concern to patients. The disease, particularly its physical symptoms, had a significant impact on patients' lives, including employment, leisure and relationships. Despite the symptom burden and its impact, participants described effective coping strategies such as drawing on social support, maintaining normal lives and becoming well informed about CTCL. Proactive holistic assessment and management of the range of patient concerns is needed in providing care for patients with CTCL and their family and friends.

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“…Psoriasis in children is characterized by well‐defined erythematous papules and plaques of varying size with silvery scales, most commonly in visible areas such as the scalp and face, and on the elbows and knees . While research in adult populations confirms that appearance‐related issues are important for understanding HRQoL in psoriasis in general, such difficulties may be particularly salient in adolescents, where peer pressure and the desire to ‘fit in’ often play a significant role in their everyday life and psychosocial development …”

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confidence: 99%

Health-related quality of life in adolescents with psoriasis: an interview-based study

et al. 2018

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SummaryBackground Psoriasis is a common skin disease affecting the physical, psychological and social well-being of patients and their families. Most research so far has been limited to adults, and little is known about the qualitative experiences of young people with psoriasis. Objectives To provide an in-depth understanding of the impact of psoriasis on adolescents' health-related quality of life (HRQoL). Methods Patients and their parents were recruited from a dermatology outpatient clinic, the Danish National Birth Cohort and the Danish Psoriasis Association. Thirty-six semistructured interviews were conducted with adolescents with psoriasis aged 12-17 years (n = 18), their parents (n = 14) and health professionals working with psoriasis (n = 4). Interviews were digitally recorded, transcribed verbatim and analysed using inductive thematic analysis. Results The participants reported psoriasis-related HRQoL challenges within six main themes: physical symptoms, feeling different, psoriasis-related worry about the future, increased attention, attempts to conceal skin, and treatment-related frustrations and worry. Taken together, a broad range of the reported difficulties appeared to arise from appearance-related concerns. The impact of psoriasis and its treatment on the adolescents' daily lives varied considerably. Conclusions This first in-depth, qualitative study of HRQoL in adolescents with psoriasis provides a conceptual framework for understanding the impact of psoriasis and its treatment on the physical, psychological and social aspects of their daily lives.

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Body image altered by psoriasis. A study based on individual interviews and a model for body image

Cited by 50 publications

References 17 publications

Dynamic Balancing in Illness Coping: An Interpretative Phenomenological Analysis on the Lived Experience of Chinese Patients with Psoriasis

Dynamic Balancing in Illness Coping: An Interpretative Phenomenological Analysis on the Lived Experience of Chinese Patients with Psoriasis

‘We had to change to single beds because I itch in the night’: a qualitative study of the experiences, attitudes and approaches to coping of patients with cutaneous T-cell lymphoma

Health-related quality of life in adolescents with psoriasis: an interview-based study

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