Bodily change following faecal stoma formation: qualitative interpretive synthesis

Thorpe, Gabrielle; McArthur, Margaret; Richardson, Barbara

doi:10.1111/j.1365-2648.2009.05059.x

Cited by 52 publications

(45 citation statements)

References 28 publications

(120 reference statements)

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“…In addition, scholars described a loss of sexual confidence in people living with an ileostomy, who may then try to hide their bodies from partners (Manderson, 2005;Ramirez et al, 2010;Thorpe et al, 2009). The findings that Laura and Nancy felt rejected by their partners, while Simon and George talked of fear of rejection from potential partners provides further evidence of this.…”

mentioning

confidence: 79%

The psychological challenges of living with an ileostomy: An interpretative phenomenological analysis.

Smith¹,

Spiers²,

Simpson³

et al. 2017

Health Psychology

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CHALLENGES FOR PERSONS WITH AN ILEOSTOMY 2The psychological challenges of living with an ileostomy:an interpretative phenomenological analysis Abstract Objectives: Ileostomy, in which the small intestine is re-directed out of an abdominal wall so that waste is collected using a bag, is used to treat conditions including Inflammatory Bowel Disease and colorectal cancer. This paper reports an in depth idiographic analysis of the experience of living with an ileostomy. Methods: 21 participants took part in semi-structured interviews about their lives and relationships. Those interviews were transcribed verbatim and analysed using the experiential qualitative methodology Interpretative Phenomenological Analysis (IPA). Results: Two super-ordinate themes arose from the data: Ileostomy's intrapersonal impact; the impact of ileostomy on relationships with others. We found that ileostomy may destabilise the sense of self, disrupt body image, and alter experience of age and sexuality. Other participants were able to employ their illness to positively reframe the self. Disclosure of ileostomy status was difficult for some. Intimate and friend relationships were often challenged by stoma status, whilst other family relationships were largely characterised as supportive. Conclusions: Ileostomy may impact upon both intra and interpersonal aspects of the lives of those who live with it, in both negative and positive ways. Consequently, the sense of self can appear challenged, and relationships with partners, family members and friendships could be causes of distress. On the other hand, some partners were supportive, and children were found to be sources of comfort.Keywords: Ileostomy; phenomenology; qualitative; relationships; selfThe psychological challenges of living with an ileostomy:an interpretative phenomenological analysis Ileostomies, in which the small intestine is re-directed out of an opening in the abdominal wall so that waste is collected in a bag, treat various conditions including Crohn's disease, ulcerative colitis, and bowel cancer. It is estimated that nearly 40,000 ileostomies are performed in the US every year, (Husain & Cataldo, 2008), while more than 9,000 ileostomy operations are carried out in the UK annually (NHS, 2014).Prior research has explored life with a range of related procedures: ileostomies, colostomies, and urostomies, collectively known as stomas (eg. Bray, Callery, & Kirk, 2012).The confluence of elements that lead to and follow stoma surgery, which often includes severe pre-and occasionally post-operative illness can be psychologically challenging groups. They contacted the second author if they wanted to take part, and were sent an information sheet giving the details of the study. Twenty-one people living with an ileostomy were interviewed. We recruited a purposive stratified sample to ensure a balanced representation of age and gender and thus we have a relatively large sample for an IPA study.Ethics and Data collection. The study was given ethical clearance by the relevant university b...

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mentioning

confidence: 79%

The psychological challenges of living with an ileostomy: An interpretative phenomenological analysis.

Smith¹,

Spiers²,

Simpson³

et al. 2017

Health Psychology

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“…Ostomized people do not only lose part of their body (intestinal segment), with the consequent change in their body image, in their daily routine, as well as the loss of continence, trust etc. This also implies the incorporation of a range of elements: the stoma, the pouch and the feeling of being different 12 .…”

Section: Discussionmentioning

confidence: 99%

“…Other studies directly appoint the need for studies that propose a comprehensive concept of bodily change, which allows the health services to better approach these people's individual needs 12 - 13 .…”

Section: Introductionmentioning

confidence: 99%

Experiences and coping with the altered body image in digestive stoma patients

Hueso‐Montoro

Bonill-de-las-Nieves

Celdrán-Mañas

et al. 2016

Rev. Latino-Am. Enfermagem

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Objective:to describe the coping of stoma patients with the news about the ostomy, as well as to analyze the meaning and the experience of their new bodily reality. Method:qualitative phenomenological study undertaken through semistructured interviews with 21 stoma patients. The analysis was based on the constant comparison of the data, the progressive incorporation of subjects and triangulation among researchers and stomal therapy nurses. The software Atlas.ti was used. Results:two main categories emerge: "Coping with the news about receiving a stoma" and "Meaning and experience of the new bodily reality". The informants' answer varies, showing situations that range from the natural acceptance of the process to resignation and rejection. The previous experiences of other family members, the possible reconstruction of the stoma or the type of illness act as conditioning factors. Conclusions:the coping with the news about the stoma is conditioned by the type of illness, although the normalization of the process is the trend observed in most informants. Nursing plays a fundamental role in the implementation of cognitive-behavioral interventions and other resources to promote the patients' autonomy in everything related to care for the stoma.

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“…Qualitative research findings have been chiefly concerned with experiences of bodily change, as indicated in a previous interpretive review of the literature undertaken to inform this research [8]. Specifically, awareness of a changed body [9], living with bodily changes [10], alienation from the body [10,11] and altered body image [11]).…”

Section: Introductionmentioning

confidence: 99%

Adjusting to bodily change following stoma formation: a phenomenological study

Thorpe

Arthur

McArthur

2016

Disability and Rehabilitation

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Purpose: Scant research has been undertaken to explore in-depth the meaning of bodily change for individuals following stoma formation. The aim of this study was to understand the experience of living with a new stoma, with a focus on bodily change.Method: The study adopted a longitudinal phenomenological approach. Purposeful sampling was used to recruit twelve participants who had undergone faecal stoma-forming surgery. Indepth, unstructured interviews were conducted at three, nine and fifteen months following surgery. A five-stage framework facilitated iterative data analysis.Results: Stoma formation altered the taken-for-granted relationship individuals had with their bodies in terms of appearance, function and sensation, undermining the unity between body and self. Increasing familiarity with and perceived control over their stoma over time diminished awareness of their changed body, facilitating adaptation and self-acceptance.Conclusions: Stoma formation can undermine an individual's sense of embodied self. A concept of embodiment is proposed to enable the experience of living with a new stoma to be understood as part of a wider process of re-establishing a unity between body, self and world. In defining a framework of care, individuals with a new stoma can be assisted to adapt to and accept a changed sense of embodied self.

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Bodily change following faecal stoma formation: qualitative interpretive synthesis

Cited by 52 publications

References 28 publications

The psychological challenges of living with an ileostomy: An interpretative phenomenological analysis.

The psychological challenges of living with an ileostomy: An interpretative phenomenological analysis.

Experiences and coping with the altered body image in digestive stoma patients

Adjusting to bodily change following stoma formation: a phenomenological study

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