Blogging Through Cancer

Keim‐Malpass, Jessica; Baernholdt, Marianne; Erickson, Jeanne M.; Ropka, Mary E.; Schroen, Anneke T.; Steeves, Richard H.

doi:10.1097/ncc.0b013e31824eb879

Cited by 53 publications

(25 citation statements)

References 35 publications

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“…Psychosexual, fertility, and body image sequelae were found among male and female AYAs [9, 17, 22, 24]. Keim-Malpass and colleagues [22] reported relevance and gender-specific effects of sexual sequelae of diagnosis/treatment (e.g., functioning, fertility, gender norms).…”

Section: Resultsmentioning

confidence: 99%

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Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review

et al. 2016

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Purpose A cancer diagnosis during adolescence or young adulthood (AYA; defined as ages 15–39) generates unique medical and psychosocial needs as developmental milestones are simultaneously impacted. Past research highlights that AYAs’ experiences and psychosocial outcomes are different, and more research and attention is needed. We aimed to identify and synthesize literature regarding psychosocial outcomes, unique needs, and existing psychosocial interventions pertaining to individuals diagnosed with cancer exclusively during AYA, and to highlight areas for future research. Methods A systematic literature search was conducted using MEDLINE (via PubMed), EMBASE, Cochrane, Web of Science, and PsycINFO (via OVID). Grey literature was searched using key term variations and combinations. Overall, 15,301 records were assessed by two independent reviewers, with 38 studies meeting inclusion criteria. Results Data synthesis of the 38 articles was organized by four main themes based on quality of life and survivorship: physical well-being (7 studies), psychological well-being (8 studies), social well-being (9 studies), and survivorship care (14 studies). The paucity of studies for such broad inclusion criteria highlights that this population is often combined or subsumed under other age groups, missing needs unique to these AYAs. Conclusions AYA cancer survivors’ experiences are nuanced, with interacting variables contributing to post-treatment outcomes. AYAs require age-appropriate and flexible care, informational needs and treatment-related education that foster autonomy for long-term survivorship, as well as improved follow-up care and psychological outcomes. Implications for Cancer Survivors By incorporating these findings into practice, the informational and unmet needs of AYAs can be addressed effectively. Education and programming is lacking specific and general subject matter specific to AYAs, incorporating ranging needs at different treatment stages.

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Section: Resultsmentioning

confidence: 99%

“…Keim-Malpass and colleagues [22] reported relevance and gender-specific effects of sexual sequelae of diagnosis/treatment (e.g., functioning, fertility, gender norms). AYAs reported significantly lower health-related quality of life compared to those diagnosed at younger ages, leukemia or sarcoma survivors, or healthy controls [49].…”

Section: Resultsmentioning

confidence: 99%

Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review

et al. 2016

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“…Internet blogs work as online diaries and can help researchers explore the impact of chronic illnesses (Robinson, 2001). Blogs constitute an authentic source of information as they offer first-person narratives on issues that are of concern to an individual (Keim-Malpass et al, 2013). They may offer advantages over other forms of data collection.…”

Section: Introductionmentioning

confidence: 99%

Aphasia blog talk: How does stroke and aphasia affect a person’s social relationships?

et al. 2014

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“…These web-based diaries or journals (Boulos & Wheeler, 2007; Perales et al, 2016) provide a means to share one’s feelings through expressive writing (Keim-Malpass et al, 2013). A variety of platforms exist in the blogging world.…”

Section: Social Media and Web-based Resourcesmentioning

confidence: 99%

Social Media: Support for Survivors and Young Adults With Cancer

Walton

Albrecht²,

Lux³

et al. 2017

CJON

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Social media use is ubiquitous among young adults. Young adults with cancer must make important decisions about where, what, and how to share information on social media. Oncology nurses are in a unique position to start conversations about the risks and benefits of social media use. This column aims to review a variety of social media platforms that may be used by young adults with cancer and provide guidance to nurses on initiating open dialogue with young adults about social media usage.

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Blogging Through Cancer

Abstract: Online illness narratives are a naturalistic form of inquiry that allows nurses to understand the experience of the patient through their own words and accounts. This study provides a foundation for nursing-based interventions that transcend traditional clinic experiences.

Cited by 53 publications

References 35 publications

Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review

Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review

Aphasia blog talk: How does stroke and aphasia affect a person’s social relationships?

Social Media: Support for Survivors and Young Adults With Cancer

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