Birth Location of Infants with Critical Congenital Heart Disease in California

Purkey, Neha J.; Axelrod, David M.; McElhinney, Doff B.; Rigdon, Joseph; Qin, Feifei; Desai, Manisha; Shin, Andrew; Chock, Valerie Y.; Lee, Henry

doi:10.1007/s00246-018-2019-0

Cited by 9 publications

(10 citation statements)

References 35 publications

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“…Purkey et al’s study 17 noted the patients with CCHD born in California had statistically significantly lower gestational ages and birth weights than the general population. Our Nevada data, on a smaller cohort of patients with CCHD than the California study, showed an average gestational age of 38 weeks and an average birth weight of 3 kg.…”

Section: Discussionmentioning

confidence: 97%

“…Although some past studies have produced equivocal results, recent reports have shown that prenatal diagnosis of CCHD provides advantages over postnatal diagnosis by facilitating neonatal management and reducing morbidity and mortality. 19,20 Purkey et al's study 17 noted the patients with CCHD born in California had statistically significantly lower gestational ages and birth weights than the general population. Our Nevada data, on a smaller cohort of patients with CCHD than the California study, showed an average gestational age of 38 weeks and an average birth weight of 3 kg.…”

Section: Discussionmentioning

confidence: 99%

“…Recently, Purkey et al reported a study from California on the birth location of patients with CCHD. 17 They found 24% of patients with CCHD were born in a facility with a level 4 neonatal intensive care unit (NICU). By definition, a level 4 NICU is in a facility capable of performing surgery for congenital cardiac malformations that require cardiopulmonary bypass.…”

Section: Discussionmentioning

confidence: 99%

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Detecting Critical Congenital Heart Disease in Nevada

Evans

Acherman

Ciccolo

et al. 2019

World J Pediatr Congenit Heart Surg

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Background: We reviewed data on patients born with critical congenital heart disease in the state of Nevada and analyzed detection via prenatal diagnosis versus newborn pulse oximetry screening, location of birth, and gestational age at birth. Methods: We inquired our databases and electronic health records for all patients with critical congenital heart disease born in Nevada between January 2016 and May 2019. Results: We identified 218 live born patients. Of the 218, average gestational age was 38 weeks (±2.2 weeks). Of the 218, 171 (78%) were prenatally diagnosed, 37 (17%) were diagnosed by immediate postnatal signs and symptoms, 8 (4%) had false-negative pulse oximetry screens that resulted in post-hospital discharge presentations, and 2 (1%) had positive pulse oximetry screens. The eight post-hospital discharge presentations included four in extremis, two with extreme cyanosis, and two dying at home. Of the 171 prenatally diagnosed patients, 157 (92%) were born at the Nevada hospital with the congenital cardiac unit. Conclusion: To the best of our knowledge, our results represent the highest statewide, general population prenatal detection of critical congenital heart disease in the United States. Our high prenatal detection rate led to the majority of patients being born at the Nevada facility with the congenital heart unit, limiting intrastate neonatal transports. On average, patients were born at term. Further, in Nevada, state-mandated, universal pulse oximetry screening resulted in more false-negative results than positive results

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Section: Discussionmentioning

confidence: 97%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Detecting Critical Congenital Heart Disease in Nevada

Evans

Acherman

Ciccolo

et al. 2019

World J Pediatr Congenit Heart Surg

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“…In 2016, the submitted data represented 318,424 live births, or 65% of the 488,925 registered live births in Vital Records that year (average – 346,854/490,404 = 71%, Table 1 ). Assuming a CCHD incidence of 25/10,000 live births in California, 14 359 newborns with CCHD were missed or unaccounted for per year in 2015 and 2016 due to non-reporting ( Figure 1 ).…”

Section: Resultsmentioning

confidence: 99%

“…The number of failed screens resulting in a CCHD diagnosis was 4.6/10,000 live births reported to DHCS in 2015 and 3.3/10,000 in 2016. Based on a CCHD incidence of 25/10,000 live births in California, 14 it is expected that 1,734 newborns with CCHD would be among the births 693,707 births reported to DHCS during the two years (or approximately 867/year - Figure 1 ). However, only 277 newborns (or 139/year) with CCHD were reported to DHCS by screening hospitals ( Table 1 , Figure 1 ).…”

Section: Resultsmentioning

confidence: 99%

Inadequacies of hospital-level critical congenital heart disease screening data reports: implications for research and quality efforts

Siefkes

Kair

Saarinen³

et al. 2020

J Perinatol

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Objective: Assess the quality of critical congenital heart disease (CCHD) screening data reports in California, where CCHD screening is not mandatory but reporting is. Study Design: Retrospective review of California hospital-level CCHD screening data to evaluate data reliability and adherence to state screening and reporting recommendations. Data were evaluated for internal consistency and compared to two databases. Results: Over one-third of hospitals did not submit data. Only 70.7% of the Vital Records live births were reported in CCHD screening data. Only 46% of reporting hospitals submitted data with matching numbers of completed screens and results, and 22% matched their respective live births in a second database. Conclusion: CCHD data reporting in California is incomplete, which may miss 359 CCHD cases/year from non-reporting. Data inconsistencies may miss additional cases. Mandatory screening, reporting and improvements in data reliability are urgently needed to inform screening modifications and enhance timely detection and disease surveillance.

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Birth Location in Infants with Prenatally Diagnosed Hypoplastic Left Heart Syndrome

Patel

Romano

et al. 2021

Pediatr Cardiol

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Birth Location of Infants with Critical Congenital Heart Disease in California

Cited by 9 publications

References 35 publications

Detecting Critical Congenital Heart Disease in Nevada

Detecting Critical Congenital Heart Disease in Nevada

Inadequacies of hospital-level critical congenital heart disease screening data reports: implications for research and quality efforts

Birth Location in Infants with Prenatally Diagnosed Hypoplastic Left Heart Syndrome

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