Biologic agents in inflammatory bowel disease – quality of internet website information

Rofaiel, Rymon; Chande, Nilesh

doi:10.4103/sjg.sjg_55_18

Cited by 7 publications

(4 citation statements)

References 19 publications

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“…Biologics, in particular TNFi, are widely used for the treatment of IBD. [ 11 ] In a cohort of patients with CD managed in a tertiary care center in Saudi Arabia, one-third were on TNFi. [ 12 ]…”

Section: Discussionmentioning

confidence: 99%

Risk of neutropenia in inflammatory bowel disease patients treated with TNF inhibitors: A single-center, retrospective cohort study

AlAskar

AlSardi

Sulais

et al. 2020

Saudi J Gastroenterol

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Background/Aim: Tumor necrosis factor inhibitors (TNFi) have become the mainstay of treatment in moderate-to-severe cases of inflammatory bowel disease (IBD). Neutropenia has been reported in patients receiving TNFi for IBD and other diseases. In this study, we aimed to ascertain the relationship between the use of TNFi and the development of neutropenia in patients with IBD. Patients and Methods: This is a retrospective cohort study including all adult patients with IBD receiving TNFi at a tertiary care center over an 11-year period. The primary outcome was the development of any neutropenic episode after starting a TNFi. For our secondary outcomes, we evaluated the impact of concomitant use of 5-aminosalicylic acid (5-ASA) or an immunomodulator on the risk of developing neutropenia. Results: The final analysis included 281 patients. Of those included, 34.2% developed at least one episode of neutropenia while on a TNFi. The majority of these episodes (67.7%) were mild with ANC between 1000 and 1500/mm 3 . No significant difference was observed in the age, gender, agent used or type of IBD between those who developed neutropenia and those who did not. Concomitant use of azathioprine (OR = 2.32, 95% CI: 1.26–4.28; P = 0.007) or 5-ASA (OR = 3.15, 95% CI: 1.55–6.39; P = 0.001) were significant independent predictors of developing neutropenia. Conclusions: In this study, mild neutropenia was common among patients with IBD on TNFi. Future prospective studies are required to further clarify the significance of neutropenia in patients with IBD receiving TNFi.

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Section: Discussionmentioning

confidence: 99%

Risk of neutropenia in inflammatory bowel disease patients treated with TNF inhibitors: A single-center, retrospective cohort study

AlAskar

AlSardi

Sulais

et al. 2020

Saudi J Gastroenterol

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“…In general, the findings of these studies indicate that these materials are of questionable quality. The majority of materials are lacking in quality and reliability which could lead to misinformation and also user needs are not met in terms of quality (Arif & Ghezzi, 2018; Azer et al, 2018; Barnes & Davies, 2015; Barrow et al, 2018; Butler & Foster, 2003; Ghodasra et al, 2018; Hughes et al, 2019; Joury et al, 2018; Rofaiel & Chande, 2018; Ronfeldt et al, 2018; Tran & Tsui, 2021; Treffalls et al, 2022; Vargas et al, 2017; Venosa et al, 2021; Vicente‐Neira et al, 2022; Yan et al, 2021; D. F. Zhang et al, 2022; H. Zhang et al, 2022; Zheng et al, 2022).…”

Section: Resultsmentioning

confidence: 99%

“…J. Patel et al, 2021;S. K. Patel et al, 2015;Patel & Cobourne, 2011;Raeis, 2006;Rai et al, 2021;Redfern et al, 2006;Richard et al, 2007;Roberts, 2006;Robins et al, 2016;Rofaiel & Chande, 2018;Ronfeldt et al, 2018;Rothrock et al, 2019;Roughead et al, 2016;Saeed & Anderson, 2017;Schairer et al, 2017;Schoberer et al, 2015;Schwarzbach et al, 2021;Shah et al, 2013;Shao et al, 2020;Shetty et al, 2020;Starkings et al, 2021;Strauss et al, 2020;Sullivan et al, 2014;Taki et al, 2015;Tan et al, 2009;Taylor-Clarke et al, 2012;Tbalvandany et al, 2018;Tirlapur et al, 2013;Townsend, 2011;Tran & Tsui, 2021;Treffalls et al, 2022;van Ballegooie & Hoang, 2021;Van Biesen et al, 2013;Vargas et al, 2017;Venosa et al, 2021;Vicente-Neira et al, 2022;Wang et al, 2017;Wasserman et al, 2014;P. White et al, 2004;R.…”

Section: Acknowledgementsunclassified

Patient education information material assessment criteria: A scoping review

Ahmadzadeh

Bahrami

Zare–Farashbandi

et al. 2023

Health Info Libraries J

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Background: Patient education information material (PEIM) is an essential component of patient education programs in increasing patients' ability to cope with their diseases. Therefore, it is essential to consider the criteria that will be used to prepare and evaluate these resources.Objective: This paper aims to identify these criteria and recognize the tools or methods used to evaluate them.Methods: National and international databases and indexing banks, including PubMed, Scopus, Web of Science, ProQuest, the Cochrane Library, Magiran, SID and ISC, were searched for this review. Original or review articles, theses, short surveys, and conference papers published between January 1990 and June 2022 were included.Results: Overall, 4688 documents were retrieved, of which 298 documents met the inclusion criteria. The criteria were grouped into 24 overarching criteria. The most frequently used criteria were readability, quality, suitability, comprehensibility and understandability. Conclusion: This review has provided empirical evidence to identify criteria, tools, techniques or methods for developing or evaluating a PEIM. The authors suggest that developing a comprehensive tool based on these findings is critical for evaluating the overall efficiency of PEIM using effective criteria.

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“…The study by Rofaiel et al [ 14 ] assessed the quality of website information about inflammatory bowel disease using the DISCERN score to assess reliability and the relevance of pertinent details. The mean DISCERN score for patient-searched websites was not statistically different from that for physician-recommended websites (3.21 vs 3.62, respectively; P =.16).…”

Section: Resultsmentioning

confidence: 99%

Factors Affecting Engagement in Web-Based Health Care Patient Information: Narrative Review of the Literature

et al. 2021

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Background Web-based content is rapidly becoming the primary source of health care information. There is a pressing need for web-based health care content to not only be accurate but also be engaging. Improved engagement of people with web-based health care content has the potential to inform as well as influence behavioral change to enable people to make better health care choices. The factors associated with better engagement with web-based health care content have previously not been considered. Objective The aims of this study are to identify the factors that affect engagement with web-based health care content and develop a framework to be considered when creating such content. Methods A comprehensive search of the PubMed and MEDLINE database was performed from January 1, 1946, to January 5, 2020. The reference lists of all included studies were also searched. The Medical Subject Headings database was used to derive the following keywords: “patient information,” “online,” “internet,” “web,” and “content.” All studies in English pertaining to the factors affecting engagement in web-based health care patient information were included. No restrictions were set on the study type. Analysis of the themes arising from the results was performed using inductive content analysis. Results The search yielded 814 articles, of which 56 (6.9%) met our inclusion criteria. The studies ranged from observational and noncontrolled studies to quasi-experimental studies. Overall, there was significant heterogeneity in the types of interventions and outcome assessments, which made quantitative assessment difficult. Consensus among all authors of this study resulted in six categories that formed the basis of a framework to assess the factors affecting engagement in web-based health care content: easy to understand, support, adaptability, accessibility, visuals and content, and credibility and completeness. Conclusions There is a paucity of high-quality data relating to the factors that improve the quality of engagement with web-based health care content. Our framework summarizes the reported studies, which may be useful to health care content creators. An evaluation of the utility of web-based content to engage users is of significant importance and may be accessible through tools such as the Net Promoter score. Web 3.0 technology and development of the field of psychographics for health care offer further potential for development. Future work may also involve improvement of the framework through a co-design process.

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Biologic agents in inflammatory bowel disease – quality of internet website information

Cited by 7 publications

References 19 publications

Risk of neutropenia in inflammatory bowel disease patients treated with TNF inhibitors: A single-center, retrospective cohort study

Risk of neutropenia in inflammatory bowel disease patients treated with TNF inhibitors: A single-center, retrospective cohort study

Patient education information material assessment criteria: A scoping review

Factors Affecting Engagement in Web-Based Health Care Patient Information: Narrative Review of the Literature

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