Bioética e cuidados paliativos: tomada de decisões e qualidade de vida

Wittmann-Vieira, Rosmari; Goldim, José Roberto

doi:10.1590/s0103-21002012000300003

Cited by 36 publications

(36 citation statements)

References 8 publications

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“…Autonomy can be related to the capacity for decisionmaking as well as functional capacity [21]. Furthermore, palliative care patients' perception of autonomy may be described as a sense of freedom along with having the right to make his or her own decisions [22].…”

Section: Introductionmentioning

confidence: 99%

The influence of spirituality on decision-making in palliative care outpatients: a cross-sectional study

et al. 2020

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Background: Decision-making in palliative care can be complex due to the uncertain prognosis and general fear surrounding decisions. Decision-making in palliative care may be influenced by spiritual and cultural beliefs or values. Determinants of the decision-making process are not completely understood, and spirituality is essential for coping with illness. Thus, this study aims to explore the influence of spirituality on the perception of healthcare decision-making in palliative care outpatients. Methods: A cross-sectional study was developed. A battery of tests was administered to 95 palliative outpatients, namely: sociodemographic questionnaire (SQ), Decisional Conflict Scale (DCS), Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being scale (FACIT-Sp), and a semi-structured interview (SSI) to study one's perception of spirituality and autonomy in decision-making. Statistical analyses involved descriptive statistics for SQ and SSI. The Mann-Whitney test was used to compare scale scores between groups and correlations were used for all scales and subscales. The analysis of patients' definitions of spirituality was based on the interpretative phenomenological process. Results: Spiritual wellbeing significantly correlated with greater levels of physical, emotional and functional wellbeing and a better quality of life. Greater spiritual wellbeing was associated with less decisional conflict, decreased uncertainty, a feeling of being more informed and supported and greater satisfaction with one's decision. Most patients successfully implemented their decision and identified themselves as capable of early decision-making. Patients who were able to implement their decision presented lower decisional conflict and higher levels of spiritual wellbeing and quality of life. Within the 16 themes identified, spirituality was mostly described through family. Patients who had received spiritual care displayed better scores of spiritual wellbeing, quality of life and exhibited less decisional conflict. Patients considered spirituality during illness important and believed that the need to receive spiritual support and specialised care could enable decision-making when taking into consideration ones' values and beliefs. Conclusion: The impact of spiritual wellbeing on decision-making is evident. Spirituality is a key component of overall wellbeing and it assumes multidimensional and unique functions. Individualised care that promotes engagement in decision-making and considers patients' spiritual needs is essential for promoting patient empowerment, autonomy and dignity.

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Section: Introductionmentioning

confidence: 99%

The influence of spirituality on decision-making in palliative care outpatients: a cross-sectional study

et al. 2020

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“…Isso permite que os pacientes tenham liberdade e respeito para tomar decisões, e possam se perceber como pessoas com autonomia (17). A restrição da autonomia não se limita à situação de doença crônica; pode também se evidenciar no processo de terminalidade.…”

Section: Discussionunclassified

Representações sociais do cuidado de doentes terminais no domicílio: o olhar do cuidador familiar

Oliveira¹,

Quintana²,

Burdo³

et al. 2016

Aquichan

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Objetivo: conocer las representaciones sociales construidas por los cuidadores familiares de pacientes terminales sobre el cuidado en el domicilio. Método: estudio cualitativo con once cuidadores familiares de enfermos terminales, registrados en el servicio de internación domiciliaria de un hospital universitario del sur de Brasil. Realizaron entrevistas narrativas, analizadas por medio del análisis de contenido. Se definieron cuatro categorías: cuidadores hombres y mujeres, una visión diferente; la inversión de roles y los cambios en el cuidado; experiencias como fuente de conocimiento para el cuidado en el hogar; y desafíos del cuidado. Resultados: para los cuidadores hombres las representaciones difieren de las de las mujeres debido a que el cuidado incluye su entorno. Los hombres no atribuyen la angustia a la sobrecarga, pero si al temor de perder un ser. Otras representaciones remiten a la imposibilidad de elección para asumir el papel de cuidador y a la inversión de roles, lo que vuelve al paciente sometido al cuidador. Conclusión: esta investigación permitió conocer cómo los cuidadores familiares construyen los significados e interpretan el cuidado que realizan en el domicilio por medio del programa de hospitalización domiciliaria. Se destaca la función de los profesionales de la salud en orientar al cuidador familiar para realizar el cuidado.

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“…These principles underlie the practice of Palliative Care and value the autonomy of the patient as one of the basic points to the pursuit of excellence of care provided by Nursing. 8 Thus, there is Bioethics, which denotes the ethics of life. The bios Greek root word means the development observed in the life sciences, such as ecology, biology, medicine, among others.…”

Section: Introductionmentioning

confidence: 99%

Cuidados paliativos e bioética: estudo com enfermeiros assistenciais Palliative care and bioethics: study with assistance nurses

Andrade

Andrade²,

Brito

et al. 2016

R. pesq. cuid. fundam. online

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Objective: The objective was to investigate the ethical observances used by nurses assisting the patient without possibilities of cure. Methods: Exploratory research, qualitative in nature, performed with 28 nurses of a public hospital, located in the city of João Pessoa/PB. The data were collected through a questionnaire, from August to October 2012 and subjected to content analysis technique. Results: The categories identified were: Palliative Care: principles of Bioethics to the patient without possibilities of cure and privacy and professional secrecy under the palliative care. Such categories indicated that the professionals are valuing the principles of Bioethics, as well as the privacy and the professional secrecy, using them as a strategy to assist the care to the patient without possibilities of cure. Conclusion: This study is expected to subsidize new investigations, because they are still incipient the research addressing bioethics in patient assistance in palliative care. Bioética, así como la privacidad y el secreto profesional, usándolos como una estrategia para auxiliar a la atención de los pacientes sin posibilidad de cura. Conclusión: Se espera que este estudio pueda subsidiar nuevas investigaciones, pues aún son incipientes las encuestas que abordan la Bioética en la asistencia al paciente bajo Cuidados Paliativos.

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Bioética e cuidados paliativos: tomada de decisões e qualidade de vida

Cited by 36 publications

References 8 publications

The influence of spirituality on decision-making in palliative care outpatients: a cross-sectional study

The influence of spirituality on decision-making in palliative care outpatients: a cross-sectional study

Representações sociais do cuidado de doentes terminais no domicílio: o olhar do cuidador familiar

Cuidados paliativos e bioética: estudo com enfermeiros assistenciais Palliative care and bioethics: study with assistance nurses

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