Bilingual problem-solving training for caregivers of adults with dementia: A randomized, factorial-design protocol for the CaDeS trial

Juengst, ShannonB; Supnet, Charlene; Kew, Chung Lin; Silva, Valeria; Vega, Marlene; Han, Gang; Kelley, Brendan J.; Smith, Matthew Lee; Maestre, Gladys E.

doi:10.1016/j.cct.2021.106506

Cited by 3 publications

(2 citation statements)

References 89 publications

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“…For example, in an ongoing trial, Juengst et al. are re‐evaluating a training intervention to reduce dementia caregiver burden with a special focus on an underserved population 40 . Study materials were culturally adapted to address the needs of Spanish‐speaking caregivers.…”

Section: Discussionmentioning

confidence: 99%

“…For example, in an ongoing trial, Juengst et al are re-evaluating a training intervention to reduce dementia caregiver burden with a special focus on an underserved population. 40 Study materials were culturally adapted to address the needs of Spanish-speaking caregivers. Randomization was stratified by language and gender, and data collection included age, gender, race, ethnicity, education and the nature of the caregiver relationship.…”

Section: Recommendations For Research and Practicementioning

confidence: 99%

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Health equity considerations in pragmatic trials in Alzheimer's and dementia disease: Results from a methodological review

Nicholls

Al‐Jaishi

Niznick

et al. 2023

Alz & Dem Diag Ass & Dis Mo

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Introduction To improve dementia care delivery for persons across all backgrounds, it is imperative that health equity is integrated into pragmatic trials. Methods We reviewed 62 pragmatic trials of people with dementia published 2014 to 2019. We assessed health equity in the objectives; design, conduct, analysis; and reporting using PROGRESS‐Plus which stands for Place of residence, Race/ethnicity, Occupation, Gender/sex, Religion, Education, Socioeconomic status, Social capital, and other factors such as age and disability. Results Two (3.2%) trials incorporated equity considerations into their objectives; nine (14.5%) engaged with communities; 4 (6.5%) described steps to increase enrollment from equity‐relevant groups. Almost all trials (59, 95.2%) assessed baseline balance for at least one PROGRESS‐Plus characteristic, but only 10 (16.1%) presented subgroup analyses across such characteristics. Differential recruitment, attrition, implementation, adherence, and applicability across PROGRESS‐Plus were seldom discussed. Discussion Ongoing and future pragmatic trials should more rigorously integrate equity considerations in their design, conduct, and reporting. Highlights Few pragmatic trials are explicitly designed to inform equity‐relevant objectives. Few pragmatic trials take steps to increase enrollment from equity‐relevant groups. Disaggregated results across equity‐relevant groups are seldom reported. Adherence to existing tools (e.g., IMPACT Best Practices, CONSORT‐Equity) is key.

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Section: Discussionmentioning

confidence: 99%

Section: Recommendations For Research and Practicementioning

confidence: 99%

Health equity considerations in pragmatic trials in Alzheimer's and dementia disease: Results from a methodological review

Nicholls

Al‐Jaishi

Niznick

et al. 2023

Alz & Dem Diag Ass & Dis Mo

View full text Add to dashboard Cite

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Culturally Adapting and Refining “Descubriendo Soluciones Juntos” for Care Partners of Adults with Neurological Conditions

Vega

Osborne

Braga

et al. 2023

J. Psychosoc. Rehabil. Ment. Health

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Multisite randomized feasibility study of Problem-Solving Training for care partners of adults with traumatic brain injury during inpatient rehabilitation

Juengst

Wright

Driver

et al. 2023

NRE

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BACKGROUND: Problem-Solving Training (PST) during inpatient rehabilitation could provide care partners the skills needed to manage their life roles after discharge. OBJECTIVE: Determine the feasibility of PST+ Education versus Education for care partners of adults with traumatic brain injury (TBI) during inpatient rehabilitation. METHODS: We conducted a multisite randomized feasibility trial across three sites. We present recruitment rates, reasons for refusal to participate, and reasons for non-completion of interventions. We measured client satisfaction, participant engagement, and fidelity for both interventions. We compared change in depressive symptoms and caregiver burden between PST and Education groups. RESULTS: Though the interventions were generally feasible, recruitment and retention rates were lower than anticipated largely due to the COVID-19 pandemic. Participants who completed >3 sessions were less likely to be employed full-time and more often spouses and co-residing. Length of inpatient rehabilitation stay was correlated with number of sessions completed. We observed potential benefits of PST over Education, specifically for reducing depression symptoms and caregiver burden CONCLUSION: High satisfaction, engagement, and fidelity, overall recruitment and retention, and positive change in outcomes suggest that PST is generally feasible and beneficial for care partners of persons with TBI. Adaptions, such as developing a 3-session version of PST, could improve feasibility.

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Bilingual problem-solving training for caregivers of adults with dementia: A randomized, factorial-design protocol for the CaDeS trial

Cited by 3 publications

References 89 publications

Health equity considerations in pragmatic trials in Alzheimer's and dementia disease: Results from a methodological review

Health equity considerations in pragmatic trials in Alzheimer's and dementia disease: Results from a methodological review

Culturally Adapting and Refining “Descubriendo Soluciones Juntos” for Care Partners of Adults with Neurological Conditions

Multisite randomized feasibility study of Problem-Solving Training for care partners of adults with traumatic brain injury during inpatient rehabilitation

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