Bibliotherapy and Bereavement: Harnessing the Power of Reading to Enhance Family Coping in Pediatric Palliative Care

Rusch, Rachel; Greenman, Jennifer; Scanlon, Caitlin; Horne, K. Blake; Jonas, Danielle

doi:10.1080/15524256.2020.1745728

Cited by 9 publications

(2 citation statements)

References 7 publications

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“…It is therefore critical to validate their grief, assist in loss management, promote intra-family cohesion and solidarity, as well as to refer the grandparents to the available resources (e.g., handouts, support from mental health professionals, contact with families in similar circumstances) [26]. Bibliotherapy has been found to be effective in promoting more adaptive coping, especially at the end of grandchildren's lives [27].…”

Section: Introductionmentioning

confidence: 99%

“I’m Afraid If This Goes Wrong… What Will Become of Me?”: The Psychological Experience of Grandparents in Pediatric Palliative Care

Nogueira,

Ribeiro

2023

Healthcare

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Portugal has been identified as the European country with the most rapid evolution of Pediatric Palliative Care provision, where approximately 7800 children have life-limiting conditions. This is a highly complex experience not only for the children and their parental caregivers, but also for their healthy siblings and grandparents. The present descriptive-exploratory study seeks to contribute to the understanding of the psychological experience of life-limiting conditions in grandparents. A total of 19 families, consisting of 15 grandmothers and 4 grandfathers, completed a sociodemographic and clinical data sheet and a semi-structured interview was conducted in which they shared their testimony. The results of the thematic analysis highlighted an integrated view on 10 important dimensions in the grandparental experience and promoted creative responses by means of their own perspective. However, it has some limitations, such as the small sample size and the data collection procedure via telephone. The results contribute to the design of specific intervention methodologies in an ecosystemic approach and suggest further research to explore more protective factors and communication with health professionals. For psychological intervention, it is suggested considering the identification of individual and family resources that contribute to the activation of key processes in resilience and posttraumatic growth.

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Section: Introductionmentioning

confidence: 99%

“I’m Afraid If This Goes Wrong… What Will Become of Me?”: The Psychological Experience of Grandparents in Pediatric Palliative Care

Nogueira,

Ribeiro

2023

Healthcare

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“…Story sharing within families and communities represents a primary way of fostering connection, providing guidance, and even affecting behaviors 2 . As an interactive therapeutic intervention, bibliotherapy uses storytelling as a means to enhance self‐understanding and promote coping skills for children 3–5 . Storybooks have potential to share information about a diagnosis or a treatment plan or a life adjustment associated with illness to expand the child's knowledge 6,7 .…”

Section: Introductionmentioning

confidence: 99%

How I approach the use of bibliotherapy in caring for children with oncologic and hematologic conditions

Weaver

Pennarola

Fry

et al. 2022

Pediatric Blood & Cancer

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Bibliotherapy utilizes storybook readings to foster expressive therapy for children. Storybooks represent a readily available yet underutilized support tool in pediatric hematology and oncology care settings. Storybooks can help explain a new diagnosis, treatment plan, body changes, and identity adjustment in a relatable way for patients to then have a safe space to process questions and emotions. This paper serves as a "how to" guide for clinicians to consider bibliotherapy for a patient, select suitable book options, and introduce and incorporate bibliotherapy as part of comprehensive care.

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Communicating with Children About an Adult’s Illness

Cincotta

Rusch

2023

Essential Clinical Social Work Series

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Bibliotherapy and Bereavement: Harnessing the Power of Reading to Enhance Family Coping in Pediatric Palliative Care

Cited by 9 publications

References 7 publications

“I’m Afraid If This Goes Wrong… What Will Become of Me?”: The Psychological Experience of Grandparents in Pediatric Palliative Care

“I’m Afraid If This Goes Wrong… What Will Become of Me?”: The Psychological Experience of Grandparents in Pediatric Palliative Care

How I approach the use of bibliotherapy in caring for children with oncologic and hematologic conditions

Communicating with Children About an Adult’s Illness

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