Beyond standard quality of life measures: the subjective experiences of living with inflammatory bowel disease

Wolfe, Barat; Sirois, Fuschia M.

doi:10.1007/s11136-008-9362-1

Cited by 54 publications

(43 citation statements)

References 38 publications

(52 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…En ocasiones, a nivel laboral, se ven obligados a solicitar bajas debido a brotes o ingresos. Sin embargo, de acuerdo con nuestros resultados, a diferencia de otros estudios, [29][30][31] parece que en España sí es posible la conciliación de la vida laboral con la realización de un esfuerzo adicional y el apoyo de los compañeros.…”

Section: Declaración De Conflicto De Interesesunclassified

Enfermedad de Crohn: experiencias de vivir con una cronicidad

et al. 2016

View full text Add to dashboard Cite

Section: Declaración De Conflicto De Interesesunclassified

Enfermedad de Crohn: experiencias de vivir con una cronicidad

et al. 2016

View full text Add to dashboard Cite

“…[21][22][23] Several patient-reported outcome measures have been developed for IBD with the goal of quantifying the holistic effects of these conditions, but they lack coverage with respect to adherence attitudes. 24,25 The objective of this study was to understand patients' attitudes toward adherence in order to help inform a conceptual model of patients' barriers to adherence. tion was 7 years, and 13 out of 27 were also on maintenance immunomodulators or biologics because of prior moderate to severe disease.…”

Section: What This Study Addsmentioning

confidence: 99%

Barriers to Mesalamine Adherence in Patients with Inflammatory Bowel Disease: A Qualitative Analysis

Devlen¹,

Beusterien²,

Yen³

et al. 2014

JMCP

View full text Add to dashboard Cite

show abstract

“…Despite advances in pharmacologic and surgical treatment strategies, patient understanding and knowledge of their disease varies widely [5] . It would appear that these advances have yet to translate into a meaningful improvement in patients' understanding of their disease [6] .…”

Section: Introductionmentioning

confidence: 99%

Assessment of disease specific knowledge and health-related quality of life among United States military veterans with inflammatory bowel disease

Hou¹,

Turkeltaub²,

McCarty³

et al. 2015

WJG

View full text Add to dashboard Cite

AIM:To evaluate the association between patient disease knowledge of inflammatory bowel disease (IBD) and health related quality of life (HRQoL) and identify patient and disease related predictors of patient knowledge of IBD. METHODS:We performed a cross-sectional study of IBD patients with an established diagnosis of IBD longer than 3 mo prior to enrollment. The Crohn's and colitis knowledge score (CCKNOW) and short inflammatory bowel disease questionnaire (SIBDQ) were selfadministered to assess patient knowledge of IBD and HRQoL, respectively. Demographic and disease characteristics were abstracted from the electronic medical record. The correlation between CCKNOW and SIBDQ scores was assessed by a linear regression model. Associations of patient knowledge and the variables of interest were calculated using ANOVA. RESULTS:A total of 101 patients were recruited. Caucasian race, younger age at diagnosis, and having Prospective Study ORIGINAL ARTICLEa college or post-graduate degree were significantly associated with higher CCKNOW scores. Patients with CD had higher CCKNOW scores compared to patients with ulcerative colitis and inflammatory bowel disease type unclassified, P < 0.01. There was no significant correlation between overall CCKNOW and SIBDQ scores (r 2 = 0.34, P = 0.13). The knowledge sub-domain of diet in CCKNOW was negatively correlated with HRQoL (r 2 = 0.69, P < 0.01).CONCLUSION: IBD diagnosis at a younger age in addition to Caucasian race and higher education were significantly associated with higher knowledge about IBD. However, patient knowledge of IBD was not correlated with HRQoL. Further studies are required to study the effect of patient knowledge of IBD on other clinical outcomes.

show abstract

Beyond standard quality of life measures: the subjective experiences of living with inflammatory bowel disease

Cited by 54 publications

References 38 publications

Enfermedad de Crohn: experiencias de vivir con una cronicidad

Enfermedad de Crohn: experiencias de vivir con una cronicidad

Barriers to Mesalamine Adherence in Patients with Inflammatory Bowel Disease: A Qualitative Analysis

Assessment of disease specific knowledge and health-related quality of life among United States military veterans with inflammatory bowel disease

Contact Info

Product

Resources

About