Beyond Health Equity: Achieving Wellness Within American Indian and Alaska Native Communities

Jernigan, Valarie Blue Bird; Peercy, Michael; Branam, Dannielle E.; Saunkeah, Bobby; Wharton, David F.; Winkleby, Marilyn A.; Lowe, John; Salvatore, Alicia L.; Dickerson, Daniel; Belcourt, Annie; D’Amico, Elizabeth J.; Patten, Christi A.; Parker, Myra; Duran, Bonnie; Harris, Raymond; Buchwald, Dedra

doi:10.2105/ajph.2014.302447

Cited by 52 publications

(35 citation statements)

References 23 publications

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“…Conducting community-engaged science with Native American communities requires tailoring research methodologies to the community’s priorities, recognizing Tribal sovereignty, and acknowledging government-to-government relationships, cultural considerations, historical distrust of academics, and legal considerations regarding data collection and ownership [69,70,71,72,73]. These considerations must be identified and addressed prior to engaging in scientific questioning.…”

Section: Discussionmentioning

confidence: 99%

A Case Study Describing a Community-Engaged Approach for Evaluating Polycyclic Aromatic Hydrocarbon Exposure in a Native American Community

Rohlman

Donatuto²,

Heidt³

et al. 2019

IJERPH

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In 2015, the Swinomish Indian Tribal Community (SITC) was impacted by an air toxic release from one of two nearby oil refineries. This experience motivated SITC members to learn more about their exposure to air toxics. On the invitation of SITC, this community-based study measured personal exposure to polycyclic aromatic hydrocarbons (PAHs) and conducted interviews with the volunteers to evaluate perceptions of the data and experience of participating. Non-smoking SITC members were recruited in March 2016 (N = 10) and January 2017 (N = 22) with seven volunteers participating both times. Volunteers wore a wristband passive sampler for 7 days and completed daily activity diaries. Wristbands were analyzed for 62 PAHs using gas chromatography mass spectrometry. Wilcoxon exact tests determined if the sum total PAHs (ΣPAH) differed by activity, proximity to the refineries, and time. Aggregated results were shared during community meetings, and volunteers received individual reports. Volunteers (N = 9) participated in individual interviews. All volunteers were exposed to different amounts and types of PAHs. Burning candles or using a wood stove and/or propane heating were associated with higher ΣPAH exposures. While ΣPAH was similar in both sampling periods, the composition of PAHs differed. More priority listed PAHs were detected in January (N = 17) versus March (N = 10). Among volunteers who participated in both sampling events, exposure to four PAHs significantly differed between seasons. Overall, volunteers reported that the study made them more aware of air pollution sources in their community. They also commented that the chemical nomenclature was difficult to understand, but appreciated the individual reports that allowed them to visually compare their data to the distribution of data collected in their community. For volunteers with lower exposures, these comparisons gave them relief. However, volunteers with higher exposures reported concern and several changed their behaviors to reduce their exposure to known PAH sources. This study provided an opportunity for SITC members to learn about their personal exposure to a class of air toxics within the context of their community. While the limitations of the study hindered the ability to identify sources of air toxics in the community, this activity appeared to raise awareness about ambient and indoor air pollution among the volunteers.

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Section: Discussionmentioning

confidence: 99%

A Case Study Describing a Community-Engaged Approach for Evaluating Polycyclic Aromatic Hydrocarbon Exposure in a Native American Community

Rohlman

Donatuto²,

Heidt³

et al. 2019

IJERPH

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“…Principles of practice were integral to program operations (48), including concepts of cultural humility (56) and tribally driven, community-based participatory approaches (57)(58)(59). In 2006, NDWP, in collaboration with IHS and TLDC, introduced the Eagle Books series for young children.…”

Section: History Of the Traditional Foods Projectmentioning

confidence: 99%

Health Promotion and Diabetes Prevention in American Indian and Alaska Native Communities — Traditional Foods Project, 2008–2014

Satterfield¹,

DeBruyn²,

Santos³

et al. 2016

MMWR Suppl.

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“…Interestingly, several articles did not report on project employment of a community member despite most articles reporting community collaboration. Most past research failed to include AIAN communities as equal partners, and rarely did an AIAN community have the capacity to take the lead on health research projects (Blue Bird Jernigan et al 2015). Employing a community member as part of the research project can help to shift this narrative.…”

Section: Discussionmentioning

confidence: 99%

Community Protections in American Indian and Alaska Native Participatory Research—A Scoping Review

et al. 2019

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Experiences with unethical research practices have caused some American Indian and Alaska Native (AIAN) individuals, organizations, and tribes to mistrust health research. To build trust and repair relationships, current research with AIAN peoples often involves participatory research (PR) approaches. This article assesses community-level protections described in the scientific literature on PR involving AIAN communities. A scoping review search in PubMed and PsychInfo for articles published between January 2000 and June 2017 yielded an AIAN PR article dataset. Of 178 articles, a subset of 23 articles that described aspects of community protections were analyzed for descriptions of community-level protection practices. We identified the presence or absence of a description of four community protection measures in each article: a tribal research department, the development of community-level mechanisms for research regulation if not present, community collaboration throughout the research process, and project employment of a community member. The development of community-level mechanisms for research regulation was described in 39% of the articles. Ninety-one percent of these articles described community collaboration during the research process. Seventeen percent included descriptions of all four community-level protection measures. The extent and consistency to which community-level protections are described is variable; the current literature lacks reporting on community-level protection practices specific to tribal communities.

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Beyond Health Equity: Achieving Wellness Within American Indian and Alaska Native Communities

Cited by 52 publications

References 23 publications

A Case Study Describing a Community-Engaged Approach for Evaluating Polycyclic Aromatic Hydrocarbon Exposure in a Native American Community

A Case Study Describing a Community-Engaged Approach for Evaluating Polycyclic Aromatic Hydrocarbon Exposure in a Native American Community

Health Promotion and Diabetes Prevention in American Indian and Alaska Native Communities — Traditional Foods Project, 2008–2014

Community Protections in American Indian and Alaska Native Participatory Research—A Scoping Review

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