Beyond dichotomies of health and illness: life after breast cancer

Abstract

While there has been a vast amount of research on breast cancer in recent years, areas within this domain remain unexplored. For instance, there have been few attempts to marry an understanding of the social context in which breast cancer occurs with an understanding of subjective experiences of this condition. The purpose of this study was to explore women's experiences of embodiment after breast cancer, utilizing a phenomenological approach rooted in a feminist perspective. The focus of this article is upon the changes to embodiment that are long-term. Twelve women were interviewed on two occasions each and were asked to talk about changes to their bodies that occurred as a result of breast cancer. Three key themes were identified: (1) how it feels (e.g. sensation and breast loss); (2) managing appearances (e.g. wearing prostheses); and (3) treatments without end (e.g. menopause). The findings of this study show that women with breast cancer are a diverse group and that survivorship is a dynamic, life-long process, which suggests that health professionals can play an important role in establishing interdisciplinary approaches to caring, beyond the conclusion of acute treatment.

The meaning of the survivor identity for women with breast cancer

“…While stigmatized persons have long worked to "pass" unnoticed in society (Goffman, 1963), survivors are simultaneously encouraged to proclaim their status via pink tshirts and ribbons and disguise the true nature of their bodies following treatment via clothing, reconstruction, and prostheses (Batt, 1994;Thomas-MacLean 2005). By enacting this "reverse passing", survivors become the "mirroring body", attempting to recreate themselves in the image of healthier bodies (Frank, 1995).…”

Writing toward well-being: A qualitative study of community-based workshops with breast cancer survivors

“…The two workshops were scheduled two weeks apart to allow for independent writing. Content, tools, and methods of delivery were developed in partnership with a professional writer whose approach incorporated an embodied orientation to writing; for instance, participants were invited to complete a mindfulness exercise involving deep-breathing and reflection upon embodiment (Thomas-MacLean, 2005) prior to beginning some of the writing exercises. Participants were also provided with journals and a writing guide.…”

Moving Forward: A Qualitative Research Inquiry to Inform the Development of a Resource Pack for Women Following Primary Breast Cancer Treatment

“…Survivorship from breast cancer has been identified to be a life-long process far beyond the end of treatment (Thomas-Maclean, 2005). For participants in this study the end of hospital based treatment marked the transition from the challenges of breast cancer diagnosis and treatment to facing the rest of their lives as breast cancer survivors.…”