Between control and freedom in the care for persons with Prader-Willi syndrome: An analysis of preferred interventions by caregivers

Temper outbursts in Prader–Willi syndrome: causes, behavioural and emotional sequence and responses by carers

“…However, it has been found that caregivers are less likely to respond to behavioural problems compared to eating problems where they have been found to respond with more active interventions (van Hooren et al . ).…”

“…To date, no research has examined the range of, and reported effectiveness of, different intervention and management strategies used by parents and carers to help reduce temper outbursts in PWS. However, it has been found that caregivers are less likely to respond to behavioural problems compared to eating problems where they have been found to respond with more active interventions (van Hooren et al 2006).…”

Sampling and ethical issues in a multicenter study on health of people with intellectual disabilities

“…One may argue that people with intellectual disabilities indeed need to be protected against the adverse consequences of their choices (e.g., as a result of possible communication problems, because they cannot read or write or do not understand the information). An argument for the opposite may be that their autonomy should be respected, in line with the recent developments of promotion of self-determination, freedom of choice, and own responsibility for people with intellectual disabilities [12].…”

Weight Status of Persons with Intellectual Disabilities

“…However, the autonomy of persons with ID must be taken into account when considering intervening upon their life‐styles. From the perspective of family members and care providers, there also is ongoing discussion on the balance between autonomy of persons with ID (e.g., in making unhealthy choices in their life styles) versus adequate support (which includes preventing them from making unhealthy choices) (Van Hooren et al. 2002, 2006).…”