Benefits of Using an Early Palliative Care Intervention in Pediatric Oncology

Madden, Jennifer R.; Vaughn, Eric A. apG.; Northouse, Brent; Tong, Suhong; Dorneman, Laura A.; Foreman, Nicholas; Rush, Sarah; Hendricks-Ferguson, Verna L.

doi:10.1097/njh.0000000000000169

Cited by 3 publications

(1 citation statement)

References 22 publications

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“…Khanjari (2018) supported our results and found a positive attitude towards EOL care among nurses. Abate et al (2018) and Lancester et al (2017) also indicated the positive attitude of nurses towards EOL care [ 31 , 32 ]. Shi et al (2019) showed that community health care providers had a positive attitude towards EOL care, but lacked professional and systematic knowledge and skills in caring for EOL patients [ 33 ].…”

Section: Discussionmentioning

confidence: 99%

The relationship between moral distress, ethical climate, and attitudes towards care of a dying neonate among NICU nurses

Rezaei,

Nematollahi,

Asadi

2023

BMC Nurs

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Background Nurses working in neonatal intensive care units play a crucial role in providing care to critically ill or premature neonates. However, is not without its challenges, particularly when it comes to making difficult ethical decisions about end-of-life care. In some cases, neonates do not survive despite the best efforts of medical professionals. The present study aimed to investigate the relationship between moral distress, ethical climate, and attitudes towards end-of-life care among nurses working in neonatal intensive care units. Methods This is a descriptive-analytical cross-sectional study (May 21, 2021).The research population included 126 nurses working in neonatal intensive care units in Kerman province (Kerman, Jiroft, Bam, and Rafsanjan). Data collection tools included four questionnaires: demographic information, the Frommelt Attitudes towards Care of the Dying (FATCOD), the Hospital Ethical Climate Survey, and the Moral Distress Scale. SPSS22 was used to analyze the data. Results The results revealed that the mean frequency and intensity of moral distress were 44.42 ± 17.67 and 49.45 ± 17.11, respectively. The mean ethical climate was 92.21 ± 17.52 and the FATCOD was 89.75 ± 9.08, indicating NICU nurses’ positive perceptions of ethical climate and their favorable attitudes towards EOL care, respectively. The results showed a direct and significant relationship between ethical climate and the FATCOD (P = 0.003, r = 0.26). Discussion We suggest policymakers and managers design strategies for better ethical climate in hospitals and reduction of moral distress among nurses.

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Section: Discussionmentioning

confidence: 99%

The relationship between moral distress, ethical climate, and attitudes towards care of a dying neonate among NICU nurses

Rezaei,

Nematollahi,

Asadi

2023

BMC Nurs

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Factors Associated With the Use of U.S. Community–Based Palliative Care for Children With Life-Limiting or Life-Threatening Illnesses and Their Families: An Integrative Review

Boyden

Curley

Deatrick

et al. 2018

Journal of Pain and Symptom Management

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Knowledge and attitudes toward end-of-life care among community health care providers and its influencing factors in China

Shi

Shan²,

Zheng

et al. 2019

Medicine

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A majority of nurses struggled with a negative emotion of anger, doubt, fear, or anxious, uncomfortable in the face of death and dying. However, little was known about community health care providers’ in China. Therefore, we conducted a study to investigate their knowledge and attitudes toward end-of-life care and analyze its influencing factors. To provide reference for developing effective strategies to promote end-of-life care in China.A total of 132 community health care providers of 10 community health care centers in Changzhi city were investigated by a Questionnaire of Knowledge and Attitudes toward Caring for the Dying from May, 2017 to December, 2017, and data was analyzed by SPSS 22.0 software.Of the 132 community health care providers who were under investigation, 70 knew about hospice care, but they rated their overall content on end-of-life care as inadequacy, especially in communication skills and knowledge of pain management. The average score of attitudes was 3.47 (SD = 0.44), the lowest score was in the subscale of nurse−patient communication, which was 2.91 (SD = 0.65). Health care providers who had worked for more than 11 years, who had experiences of the death of relatives or friends, and who had previous experiences of caring for terminal patients had more positive attitudes toward caring for the dying (P < .05 for all). There was a significant relationship between community health care providers’ attitudes toward death and their attitudes toward end-of-life care (r = −0.282, P < .01). The significant predictors of attitudes toward end-of-life care were attitudes toward death (β = −0.342), experiences of the death of relatives (β=−0.207), experiences of caring for the dying (β = 0.185), and working experience (β = 0.171).Community health care providers had positive attitudes toward end-of-life care, but they lacked systematic and professional knowledge and skills of caring for the terminal patients. Education is the top priority. It is imperative to set up palliative care courses and life-death education courses, establish an indigenous end-of-life care model, and improve policies, systems, and laws to promote end-of-life care.

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Benefits of Using an Early Palliative Care Intervention in Pediatric Oncology

Cited by 3 publications

References 22 publications

The relationship between moral distress, ethical climate, and attitudes towards care of a dying neonate among NICU nurses

The relationship between moral distress, ethical climate, and attitudes towards care of a dying neonate among NICU nurses

Factors Associated With the Use of U.S. Community–Based Palliative Care for Children With Life-Limiting or Life-Threatening Illnesses and Their Families: An Integrative Review

Knowledge and attitudes toward end-of-life care among community health care providers and its influencing factors in China

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