Benefits For Employees With Children With Special Needs: Findings From The Collaborative Employee Benefit Study

Perrin, James M.; Fluet, Christina; Honberg, Lynda; Anderson, Bruce M.; Wells, Nora; Epstein, Susan; Allen, Deborah; Tobias, Carol; Kuhlthau, Karen

doi:10.1377/hlthaff.26.4.1096

Cited by 26 publications

(26 citation statements)

References 6 publications

(5 reference statements)

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“…These findings may encourage employers' provision of benefit packages for families of CSHCN that include CC services and workplace support. 27 On the basis of our findings, doing so could foster a positive societal impact: retention of parents of CSHCN in the workforce. Recent estimates suggested that up to 40% of families with CSHCN experience financial burden, and this burden correlates with poor child health status.…”

Section: Discussionmentioning

confidence: 77%

Care Coordination for CSHCN: Associations With Family-Provider Relations and Family/Child Outcomes

et al. 2009

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OBJECTIVE: To examine the association between receiving adequate care coordination (CC) with family-provider relations and family/child outcomes. METHODS:We analyzed data from the 2005-2006 National Survey of Children With Special Health Care Needs. Eligible subjects were the 88% of families asked about experience with CC, service use, and communication. Respondents also reported on demographic characteristics, health status, family-provider relations, and family/child outcomes. Weighted, multivariate logistic regression models were constructed to assess independent associations of adequate CC with outcomes. RESULTS:Among families with children with special health care needs asked about CC, 68.2% reported receiving some type of CC help. Of these, 59.2% reported receiving adequate CC help, and 40.8% reported inadequate CC. Families that reported adequate compared with inadequate CC had increased odds of receiving family-centered care, experiencing partnerships with professionals, and satisfaction with services. They had decreased odds of having problems with referrals for specialty care, missing Ͼ6 school days because of illness (previous year), and visiting the emergency department more than twice in the previous 12 months (P Ͻ .001). Those who reported adequate compared with inadequate CC had decreased odds of the following: more than $500/y of out-of-pocket expenses, family financial burden, spending more than 4 hours/week coordinating care, and stopping/reducing work hours. CONCLUSIONS:Parental report of adequate CC was associated with favorable family-provider relations and family/child outcomes. Additional efforts are needed to discern which aspects of CC are most beneficial and for which subgroups of children with special health care needs. Pediatrics 2009;124:S428-S434

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Section: Discussionmentioning

confidence: 77%

Care Coordination for CSHCN: Associations With Family-Provider Relations and Family/Child Outcomes

et al. 2009

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“…47 Although some innovative employers offer benefits that might support employees of children with disabilities, 48 having a child with a disability is still associated with reduced parental employment. Single parents of children with technology dependencies are 15 times more likely to quit employment secondary to care responsibilities at home than those in 2-parent families.…”

Section: Parents Of Children With Disabilities Need Financial Supportmentioning

confidence: 99%

Parent-Provider-Community Partnerships: Optimizing Outcomes for Children With Disabilities

Murphy¹,

Carbone²

2011

Pediatrics

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Children with disabilities and their families have multifaceted medical, developmental, educational, and habilitative needs that are best addressed through strong partnerships among parents, providers, and communities. However, traditional health care systems are designed to address acute rather than chronic conditions. Children with disabilities require high-quality medical homes that provide care coordination and transitional care, and their families require social and financial supports. Integrated community systems of care that promote participation of all children are needed. The purpose of this clinical report is to explore the challenges of developing effective communitybased systems of care and to offer suggestions to pediatricians and policy-makers regarding the development of partnerships among children with disabilities, their families, and health care and other providers to maximize health and well-being of these children and their families. Pediatrics 2011;128:795-802 INTRODUCTIONChildren with special health care needs are a group of 10 million US children with a wide variety of conditions, medical needs, and caregiving requirements. 1 However, children with disabilities, a subset of children with special health care needs, tend to have more complex conditions and functional impairments, often with technology dependencies and recurrent hospitalizations. In fact, 6.3% of US children between 5 and 15 years of age have 1 or more disabilities, and approximately 1%, or nearly one-half million children, are unable to care for themselves. 2 Over the past 50 years, the number of children living with disabilities has tripled, largely as the result of health care advances that have allowed the survival of children with conditions that were historically incompatible with life. 3 Children and adolescents have had the highest growth rate of disability of any age group during the past decade. 3 Despite these changing demographics, the current system of health care continues to use an outdated system that emphasizes acute illness and well-child care at the expense of long-term management of chronic conditions and disabilities.Historically, hospital-based or institutional care was the only option for most children with complex medical conditions, technology dependence, and significant behavioral and emotional needs. More recently, social policy has promoted community-based programs that provide care for children with disabilities in their homes and communities. 4

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“…Children with special health care needs also require more health services and specialized or adaptive care than healthier children, often without warning (Perrin et al, 2007). Mothers of children with ADHD experienced more difficulties in performing both their jobs and unpaid work, when compared to mothers of children with behavioral and non-behavioral problems (Hakkaart-van Roijen, Zwirs, Bouwmans, Tan, Schulpen, Vlasveld, & Buitelaar, 2007).…”

Section: Adhd and Maternal Employmentmentioning

confidence: 99%

“…Such benefits include flexible work schedules, on-site child-care, and paid maternity and paternity leave (Allen, 2001), with the option of a full-time job with a flexible schedule rated as the most valuable benefit offered by an employee. However, a recent study examining the extent to which employers understood the needs of families with special needs children indicated that many employers lack awareness of the scope or potential impact of what it means to have a child with special needs (Perrin et al, 2007). On a more positive note, these authors did find that employers were enthusiastic about expanding workers' use of benefits to accommodate the needs of this population.…”

Section: Flexibilitymentioning

confidence: 99%

“…Employers have identified several possibilities to improve the benefits available to their employees with children with special needs (Perrin et al, 2007), such as ADHD. Opportunities included expanding their information and referral services and intranet information addressing a variety of services (i.e., financial planning), building parent/employee networks where people can share information and support each other around family issues, and offering seminars related to children with special needs.…”

Section: Implications For Practitionersmentioning

confidence: 99%

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Mothers of Children With ADHD: Does Employment Help?

Merson¹,

O’Brien²

2012

PsycEXTRA Dataset

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The current study examined the experiences of a sample of mothers of children with ADHD. Differences between the single and partnered, employed, and unemployed women on the variables of interest were investigated. The contributions of maternal psychological health, employment characteristics, and the marital relationship to the prediction of parenting behaviors were explored. Moreover, the moderating role of employment characteristics on the relationship between maternal psychological health and parenting behaviors was examined. Results showed differences between the single and partnered women on employment characteristics. Maternal psychological health was found to be predictive of poor monitoring and supervision and inconsistent discipline behaviors. Last, flexibility-benefits used was found to moderate the relationship between maternal psychological health and poor monitoring and supervision behaviors. Implications for clinical work and future research directions are discussed.

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Benefits For Employees With Children With Special Needs: Findings From The Collaborative Employee Benefit Study

Cited by 26 publications

References 6 publications

Care Coordination for CSHCN: Associations With Family-Provider Relations and Family/Child Outcomes

Care Coordination for CSHCN: Associations With Family-Provider Relations and Family/Child Outcomes

Parent-Provider-Community Partnerships: Optimizing Outcomes for Children With Disabilities

Mothers of Children With ADHD: Does Employment Help?

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