Beliefs on coping with illness: A consumer's perspective

Ridder, Denise de; Depla, Marja; Severens, Peter; Malsch, Marijke

doi:10.1016/s0277-9536(96)00085-8

Cited by 37 publications

(17 citation statements)

References 8 publications

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“…Research in the Netherlands has shown that people with a long term condition want their relationships with clinicians to be based on mutual trust and respect. Most want to be responsible consumers of health care if the providers of that care create an environment in which patients receive guidance when choosing between alternatives 4. There are areas in medicine in the United Kingdom, such as diabetes care, in which it has long been accepted that a person with a particular condition can play an important, and sometimes a leading, part in their own care and in the management of their disease, but most patients' organisations believe that this ideal has not yet been generally accepted 5.…”

Section: Partnerships Between Individualsmentioning

confidence: 99%

Acknowledging the expertise of patients and their organisations

Wilson¹

1999

BMJ

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Section: Partnerships Between Individualsmentioning

confidence: 99%

Acknowledging the expertise of patients and their organisations

Wilson¹

1999

BMJ

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“…Research on the role of optimism in chronic disease has rather been exclusively focused on the assumption that optimism is good, that greater optimism is better, and that optimism clearly enhances problem-focused coping and thereby fosters adaptation. This assumption is also shared by many patients who suffer from chronic diseases as they tend to idealize being optimistic and the associated behaviours of positive thinking and ghting the disease regardless of the actual problems they confront (de Ridder, Depla, Severens, & Malsch, 1997). The extent to which chronic patients actually bene t from being optimistic remains unclear.…”

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confidence: 99%

The relative benefits of being optimistic: Optimism as a coping resource in multiple sclerosis and Parkinson's disease

Ridder

Schreurs

Bensing

2000

British J Health Psychol

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Objective. To explore two issues involving the relationship between optimism and adaptation in chronically ill patients. The rst issue involves the question whether the impact of optimism on adjustment is disease-speci c, that is whether patients who are confronted with extreme levels of uncontrollability and unpredictability generated by their condition bene t more from an optimistic attitude than those who are confronted with less high levels of those disease characteristics. The second issue relates to the question whether greater optimism produces better adjustment or whether, in contrast, a medium level of optimism plays a more adaptive role. Design. The cross-sectional design involves 166 patients with Parkinson' s disease (PD) or multiple sclerosis (MS) recruited from patient' s organizations.Method. Regression analyses were employed to test for a disease-speci c effect of dispositional optimism (measured by the Life Orientation Test) on coping (measured by the Coping Inventory for Stressful Situations) and adjustment (measured by the Sickness Impact Pro le) by introducing interactions between optimism and disease in the analysis. Curvilinear effects were tested by introducing a squared optimism variable.Results. These show that optimism has a disease-speci c effect on physical adjustment and on the use of emotion-oriented and avoidant coping strategies. Although the study's cross-sectional design does not allow for causal inferences, these data suggest that MS patients may bene t more from optimism than PD patients and also that, in comparison with PD patients, optimism in MS patients does not necessarily promote avoidant and emotion-oriented coping. The results also show a medium level of optimism to promote the application of task-oriented and avoidant coping strategies. Conclusion.It is concluded that context-speci c constraints associated with type of disease may affect the assumed bene cial role of optimism on adjustment.Chronic illness confronts patients with numerous threats and challenges: the need to preserve a reasonable emotional balance and a satisfactory self-image; the need to maintain a sense of competence and mastery; the need to deal with pain, fatigue, and other symptoms of the disease; and the need to prepare for an uncertain future (Moos &

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“…[17][18][19][20] In a review, we found only 3 articles using concept mapping to engage patients in practice improvement, 21-23 only 1 of which was conducted in primary care. 23 None of these works provides a methodologic treatment of concept mapping for use in primary care practice improvement.…”

Section: Context and Resourcesmentioning

confidence: 99%

Concept Mapping as a Method to Engage Patients in Clinical Quality Improvement

LaNoue

Mills

Cunningham

et al. 2016

The Annals of Family Medicine

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Patient engagement has become a primary care research and practice priority. Little guidance exists, however, on how best to engage patients in primary care practice improvement, or how to measure the impact of their engagement. We present an overview of group concept mapping as a method for engaging patients in primary care practice improvement. We detail the group concept mapping process as a tool for use in primary care practice improvement, research, and evaluation, and we present resources to enable researchers and practice leaders to use this tool in practice improvement. To illustrate the method, we present a practice-based quality improvement project conducted with patients and staff at a large urban academic primary care practice. 2016;14:370-376. doi: 10.1370/afm.1929. Ann Fam Med INTRODUCTIONP atient engagement has been described as a "coming revolution" 1 and as a "blockbuster prescription" 2 for improving health care. It is prioritized in research funding at the Patient-Centered Outcomes Research Institute (PCORI) and the Agency for Healthcare Research and Quality (AHRQ), and it is mandated by the National Committee for Quality Assurance for patient-centered medical home (PCMH) accreditation. Patient engagement may occur across the dimensions of direct care, organizational design and governance, and policy making according to a framework proposed by Carman et al. 3 This framework posits that a continuum of engagement exists within each of these dimensions: at the highest level of the organizational design dimension, patients co-lead initiatives, including quality improvement initiatives. 3 Research supports positive outcomes associated with patient engagement in quality improvement: a systematic review by Crawford et al 4 showed that patient involvement in quality improvement efforts led to improved patient information resources and access to care. Furthermore, a recent AHRQ guide for patient and family advisory programs noted that patient involvement in improvement efforts can lead to better quality, safety, and patient and staff satisfaction. 5 Increasingly, primary care practices, including PCMHs, attempt to engage patients across a continuum that includes research and practice improvement. Early evidence suggests that practices that have involved patients in medical home transformation efforts view the engagement positively. 6,7 Attempts to engage patients in quality improvement efforts remain uncommon, however. A recent survey of 123 PCMHs found that fewer than one-third engaged patients in these efforts, although most of them reported soliciting patient input in other areas. 6 Another survey of 249 small PCMHs found that only 15% included patients on quality improvement teams.8 One barrier to directly engaging patients may be the lack of guidance on a clear method of doing so.Medical practices typically solicit patient input in practice improvement through suggestion boxes and surveys, and increasingly, with patient advisory boards. 6,5 Interviews and focus groups are more common in ...

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Beliefs on coping with illness: A consumer's perspective

Cited by 37 publications

References 8 publications

Acknowledging the expertise of patients and their organisations

Acknowledging the expertise of patients and their organisations

The relative benefits of being optimistic: Optimism as a coping resource in multiple sclerosis and Parkinson's disease

Concept Mapping as a Method to Engage Patients in Clinical Quality Improvement

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