Being a peer support mentor for individuals who have had a lower limb amputation: an interpretative phenomenological analysis

Abstract

Purpose: Although peer support has received research attention within different health related contexts, there is limited research considering individuals who have experienced an amputation. In particular, the peer mentoring role is under-explored. Therefore, this research aimed to explore the experiences of participants delivering peer support interventions to individuals with lower limb loss. Methods: Eight people who acted as peer mentors for people with limb loss took part in semistructured interviews. Data were analysed using Interpretative Phenomenological Analysis (IPA). Results: Two overarching themes were identified from the data: 'Developing a Helpful Self', in which the personal value and meaning of being a peer mentor is presented, and 'Connecting with Vulnerability', which addresses the emotional challenges of peer mentoring and the impact of these on well-being. Conclusions: Findings suggest positive experiences of providing support, including increased hope, resilience and a sense of belonging and connection to others. However, peer mentors experienced challenges related to uncertainty and doubt about their mentoring abilities and with developing and maintaining resilience in the role. Recommendations include the development of training packages and increased clarity for volunteers of the peer mentor role.

What is the cost, impact, and willingness to pay for an Amputee Peer Support Program?

“…There is at present an abundance of case study evidence in the form of case studies where peer support has positively contributed to the outcomes for patients and their families transitioning through limb loss. 3,5,6 Although physical rehabilitation is routinely provided postamputation, gaps exist with the provision of psychosocial rehabilitation. 2,7 Peer support is a key part of psychosocial rehabilitation.…”

What are the Emotional Experiences of Being a Volunteer in Palliative and End-of-Life Care Settings? A Systematic Review and Thematic Synthesis

“…This is also indicative of feelings of competence within their role. Similarly, peer support volunteers for people with limb loss also experienced positive benefits of volunteering such as feeling a sense of pride, purpose and usefulness (55). These positive aspects of volunteering can be seen as representative of intrinsic motivation from the self-determination theory (SDT) where the individual is inherently interested in their role and enjoys it; competence and relatedness have been highlighted above and volunteers also have a sense of autonomy as they are choosing to engage in their role and have freedom over their behaviour (56).…”

Impact of the TEAM Wheels eHealth manual wheelchair training program: Study protocol for a randomized controlled trial

“…Peer-trainers are an essential element of the TEAM Wheels program. The experience of being a peer mentor can be rewarding; peer mentors report feeling valued for their ability to create hope and share their lived experience with others [ 68 ]. We expect that peer-trainers in the TEAM Wheels program will have similar positive experiences and see this as important and meaningful vocation.…”