Being a Parent on Dialysis: A Literature Review

Wadd, Kaylene M.; King, Lindy; Bennett, Paul N.; Grant, Julian

doi:10.1111/j.1755-6686.2011.00220.x

Cited by 11 publications

(9 citation statements)

References 17 publications

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“…Health-related quality of life (HRQoL) is a sub-domain of QoL and can be defined as the subjective perception of how health-related factors impact the well-being and life satisfaction [4]. It is increasingly recognized as an important outcome of the CKD treatment [5–7]. This applies not only to the patient’s current life situation but it may also influence the patient’s functioning in the future.…”

Section: Introductionmentioning

confidence: 99%

Perception of health-related quality of life in children with chronic kidney disease by the patients and their caregivers: Multicentre national study results

et al. 2013

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ObjectiveThe aim of the study was to analyse the health-related quality of life (HRQoL) in Polish children with chronic kidney disease (CKD) dependant on the CKD stage, treatment modality and selected social life elements in families of the patients. Furthermore, potential differences between self-report and parent/proxy reports and the factors influencing them were assessed.MethodsA total of 203 CKD children (on haemodialysis (HD), peritoneal dialysis (PD) and conservative treatment (CT)) and their 388 parent/proxies were enrolled into a cross-sectional national study. The demographic and social data were evaluated. We used the Paediatric Quality of Life Inventory 4.0 Generic Core Scales to assess the HRQoL in children.ResultsHealth-related quality of life scores for all CKD groups were significantly lower in all domains compared with population norms, the lowest one being in the HD group. In CT children, HRQoL did not depend on the CKD stage. Both parents assessed the HRQoL of their children differently depending on their involvement in the care. There are differences between the HRQoL scores of the children and their parents.ConclusionThe HRQoL in children with CKD is lower than in healthy children. This is already observed in the early stages of the disease. The disease itself influences the child’s mental state. Children on HD require special support on account of the lowest demonstrated overall HRQoL. Children’s lower rating of the quality of life observed by their parents may render the patients unmotivated and adversely affect their adjustment to life in later years. It may also create conflicts between the parents and the children.

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Section: Introductionmentioning

confidence: 99%

Perception of health-related quality of life in children with chronic kidney disease by the patients and their caregivers: Multicentre national study results

et al. 2013

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“…Sadness is related to chronic disease, the dialysis treatment and the drastic changes in their lives, such as feeling fatigued and unable to participate in family and social gatherings. Furthermore, they expressed feelings of uncertainty and fear associated with life, death, dialysis and the future (9) .…”

Section: Discussionmentioning

confidence: 99%

Changes in the self-concept mode of women undergoing hemodialysis: a descriptive study

Frazão

Bezerra

Paiva

et al. 2014

Online Brazilian Journal of Nursing

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Aim: Identify the changes in the self-concept mode of Roy's theoretical model in women undergoing hemodialysis. Method: This is a descriptive study, carried out in a city in northeastern Brazil, which involved 24 women undergoing dialysis treatment due to chronic kidney disease (CKD). Results: The main alterations were: low self-esteem in the personal self and sexual dysfunction in the physical self, in terms of the self-concept mode. Discussion: Women undergoing hemodialysis present self-adaptive problems as in Roy's theoretical model; therefore, nurses should direct their care, emphasizing these adaptive problems. Conclusion: The changes identified in women undergoing hemodialysis were low self-esteem and sexual dysfunction, in terms of the self-concept mode of Roy's theoretical model.

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“…Prior to May 2003, only 23 (0.4%) of the 6043 main research articles published in five nephrology journals with the highest impact factor were qualitative in design (17). A review study conducted by Wadd et al also emphasized the need for research about the experiences and needs of patients under hemodialysis for providing specialized nursing care based on the patients' experiences (2).…”

Section: Implication For Health Policy/practice/research/medical Educmentioning

confidence: 99%

“…CRF patients undergo dialysis for at least 18 hours per week (2). Nurses comprise the main providers of hemodialysis care.…”

Section: Introductionmentioning

confidence: 99%

The care preferences of patients under hemodialysis

Vafaei¹,

Nobahar²

2017

J Renal Inj Prev

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Being a Parent on Dialysis: A Literature Review

Abstract: More should be known about challenges that face parents who receive dialysis. This review established an urgent need for further research to determine the experiences and needs of this population to provide empirical, person-centred nursing care.

Cited by 11 publications

References 17 publications

Perception of health-related quality of life in children with chronic kidney disease by the patients and their caregivers: Multicentre national study results

Perception of health-related quality of life in children with chronic kidney disease by the patients and their caregivers: Multicentre national study results

Changes in the self-concept mode of women undergoing hemodialysis: a descriptive study

The care preferences of patients under hemodialysis

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