Behavioural innovation is key to improving the health of one million Australians living with type 2 diabetes

Speight, Jane

doi:10.5694/mja16.00556

Cited by 10 publications

(5 citation statements)

References 27 publications

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“…Tools have been developed for health professionals to identify and address psychological and behavioural barriers to diabetes self‐care or to integrate diabetes distress into a routine diabetes consultations . However, these tools are only a first and small step in facilitating the much‐needed paradigm shift . Furthermore, significant systematic barriers remain, one being the lack of system‐level incentives for addressing psychosocial well‐being and the lack of diabetes psychologists within diabetes teams .…”

Section: Discussionmentioning

confidence: 99%

'I wish my health professionals understood that it's not just all about your HbA_1c!'. Qualitative responses from the second Diabetes MILES – Australia (MILES‐2) study

et al. 2020

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Aims Optimal diabetes management requires daily selfmanagement. While little time is spent with health professionals, they can have a substantial impact on how a person manages and feels about living with diabetes. The aim of this qualitative study was to explore what people with diabetes wish their health professionals understood about living with diabetes.Methods Thematic analysis was conducted of responses to a single open-ended question, 'What do you wish your health professional understood about living with diabetes?', which was part of the Diabetes MILES-2 survey, assessing the psychological and behavioural aspects of living with type 1 or type 2 diabetes in Australian adults.Results In total, 1316 responses (56% response rate) were collected, with 1190 responses included for analysis (54% from respondents with type 1 diabetes, 46% from those with type 2 diabetes). Seven major themes emerged; respondents wished their health professional understood: 1) the potential barriers to diabetes management; 2) that it is 'easier said than done'; 3) the social/emotional impact; 4) that they want, need and deserve more; 5) that judgements, assumptions and negative perspective are not helpful; 6) more about diabetes; and 7) that the respondent is the expert in his/her diabetes. Other comments suggested satisfactory experiences with health professionals, highlighting that some respondents had no wish for their health professional to understand more.Conclusions This study highlights that, although some adults with diabetes are satisfied with their health professionals' understanding of living with diabetes, many report unmet needs and perceive a lack of person-centred care from their health professionals. Diabet. Med. 37, 971-981 (2020)

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Section: Discussionmentioning

confidence: 99%

'I wish my health professionals understood that it's not just all about your HbA_1c!'. Qualitative responses from the second Diabetes MILES – Australia (MILES‐2) study

et al. 2020

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“… 21 Resolving these issues is crucial to bolster adherence to pharmacotherapy regimens and participation in lifestyle modification programs, and to underline the need for investments in initiatives seeking to support mental health and to ameliorate the risk of social isolation among people with T2DM. 22 …”

Section: Introductionmentioning

confidence: 99%

Impact of a type 2 diabetes diagnosis on mental health, quality of life, and social contacts: a longitudinal study

Feng

Astell-Burt

2017

BMJ Open Diab Res Care

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AimsThe aim was to examine whether a type 2 diabetes mellitus (T2DM) diagnosis increases the odds of psychological distress, a worsening in overall quality of life, and a potential reduction in social contacts.MethodLongitudinal data were obtained from the 45 and Up Study (baseline 2006–2008; 3.4±0.95 years follow-up time). Fixed effects logistic and negative binomial regression models were fitted on a complete case on outcome sample that did not report T2DM at baseline (N=26 344), adjusted for time-varying confounders. The key exposure was doctor-diagnosed T2DM at follow-up. Outcome variables examined included the Kessler Psychological Distress Scale, self-rated quality of life, and four indicators of social contacts.ResultsA modest increase in the odds of psychological distress associated with T2DM diagnosis (OR=1.30) was not statistically significant (95% CI 0.75 to 2.25). A T2DM diagnosis was associated with a fivefold increase in the odds of a participant reporting that their quality of life had become significantly poorer (OR 5.49, 95% CI 1.26 to 23.88). T2DM diagnosis was also associated with a reduction in times spent with friends and family (RR 0.88, 95% CI 0.82 to 0.95), contacts by telephone (RR 0.95, 95% CI 0.87 to 1.02), attendance at social clubs or religious groups (RR 0.82, 95% CI 0.73 to 0.91), and the number of people nearby but outside the home that participants felt they could rely on (RR 0.92, 95% CI 0.86 to 0.98).ConclusionsA T2DM diagnosis can have important impacts on quality of life and on social contacts, which may have negative impacts on mental health and T2DM management in the longer term.

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“…To date, the Medical Research Future Fund has invested more than AUD$100 million in diabetes research projects [ 7 ]. However, in Australia [ 8 , 9 ] and worldwide, diabetes research remains underfunded, relative to some other conditions [ 10 – 12 ], and particularly so for behavioural and psychosocial research [ 13 ]. Thus, it is imperative that limited research funding responds directly to the needs and interests of the community living with diabetes.…”

Section: Introductionmentioning

confidence: 99%

Diabetes Research Matters: A Three-Round Priority-Setting Survey Consultation with Adults Living with Diabetes and Family Members in Australia

Hendrieckx,

Russell-Green,

Skinner

et al. 2024

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Objective We aimed to identify the health and quality-of-life research priorities of Australians with diabetes or family members. Methods Through an iterative, three-step, online survey process we (1) qualitatively generated research topics (long list) in response to one question “What research is needed to support people with diabetes to live a better life?”; (2) determined the most important research questions (short list); and (3) ranked research questions in order of importance (priorities). We aimed to recruit N = 800 participants, with approximate equal representation of diabetes type and family members. Results Participants ( N = 661) were adults (aged 18+ years) in Australia with a self-reporting diagnosis of diabetes (type 1, n = 302; type 2, n = 204; prior/current gestational, n = 58; less common types, n = 22, or a family member, n = 75). Retention rates for Surveys 2 and 3 were 47% ( n = 295) and 50% ( n = 316), respectively. From 1549 open-text responses, 25 topics and 125 research questions were identified thematically. Research priorities differed by cohort, resulting in specific lists developed and ranked by each cohort. The top-ranked research question for the type 1 diabetes cohort was “How can diabetes technology be improved …?” and for the type 2 diabetes cohort: “How can insulin resistance be reversed …?”. One question was common to the final lists of all cohorts: “What are the causes or triggers of diabetes?” Within cohorts, the top priorities were perceived as being of similar importance. Conclusions The research priorities differ substantially by diabetes type and for family members. These findings should inform funding bodies and researchers, to align future research and its communication with community needs. Supplementary Information The online version contains supplementary material available at 10.1007/s40271-024-00688-5.

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Behavioural innovation is key to improving the health of one million Australians living with type 2 diabetes

Cited by 10 publications

References 27 publications

'I wish my health professionals understood that it's not just all about your HbA_1c!'. Qualitative responses from the second Diabetes MILES – Australia (MILES‐2) study

'I wish my health professionals understood that it's not just all about your HbA_1c!'. Qualitative responses from the second Diabetes MILES – Australia (MILES‐2) study

Impact of a type 2 diabetes diagnosis on mental health, quality of life, and social contacts: a longitudinal study

Diabetes Research Matters: A Three-Round Priority-Setting Survey Consultation with Adults Living with Diabetes and Family Members in Australia

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Behavioural innovation is key to improving the health of one million Australians living with type 2 diabetes

Cited by 10 publications

References 27 publications

'I wish my health professionals understood that it's not just all about your HbA1c!'. Qualitative responses from the second Diabetes MILES – Australia (MILES‐2) study

'I wish my health professionals understood that it's not just all about your HbA1c!'. Qualitative responses from the second Diabetes MILES – Australia (MILES‐2) study

Impact of a type 2 diabetes diagnosis on mental health, quality of life, and social contacts: a longitudinal study

Diabetes Research Matters: A Three-Round Priority-Setting Survey Consultation with Adults Living with Diabetes and Family Members in Australia

Contact Info

Product

Resources

About

'I wish my health professionals understood that it's not just all about your HbA_1c!'. Qualitative responses from the second Diabetes MILES – Australia (MILES‐2) study

'I wish my health professionals understood that it's not just all about your HbA_1c!'. Qualitative responses from the second Diabetes MILES – Australia (MILES‐2) study