Behavior Problems, Psychiatric Symptoms, and Quality of Life for Older Adults With Intellectual Disability With and Without Autism

Totsika, Vasiliki; Felce, David John; Kerr, Michael Patrick; Hastings, Richard P.

doi:10.1007/s10803-010-0975-1

Cited by 96 publications

(90 citation statements)

References 48 publications

(57 reference statements)

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“…These results are in line with findings in the international literature (Izard et al, 2006;Mayer, Roberts, Barsade, 2008;Sappok et al, 2014;Matson 2009a,b;Totsika 2010). Divergent from the design in which we used the setting of a team, the intra-and inter-raterreliability was based on scores given by single team members.…”

Section: Discussionsupporting

confidence: 88%

“…Therefore, an integrative approach, combining pedagogical, psychological, pharmaceutical, and social treatment and support methods is warranted (Dosen, 2007). From this point of view, it might be relevant in terms of an efficient therapeutic process to evaluate the level of development in different dimensions, including cognitive functions, social-adaptive behaviour, and emotional abilities (La Malfa, 2009;Matson, 2009a,b;Totsika, 2010;Sappok, 2014).…”

Section: Introductionmentioning

confidence: 99%

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A study on the usefulness and reliability of the “Scheme of Appraisal of Emotional Development” (SAED) for persons with ID using direct observation in a group-based assessment procedure

Elstner

Diefenbacher

Kirst³

et al. 2016

Research in Developmental Disabilities

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Introduction: Whereas instruments for the assessment of intellectual and social abilities are widely available, instruments for the evaluation of emotional development of persons with intellectual disabilities (ID) are rare. The Scheme of Appraisal of Emotional Development (SAED), an internationally used tool developed by Dosen ( 2005a,b), is one of the latter and is based on interviews with caregivers. The present study aims to investigate the internal consistency and interrater-reliability by changing the interview procedure into a direct observation and evaluation approach by a whole team instead of by one expert. Method:The level of emotional development of 175 patients admitted to a psychiatric inpatient unit specialized in the treatment of adults with ID was evaluated with the SAED by the treatment team after an observation period of up to two weeks. The inter-and intra-raterreliability was assessed by direct observation of the behaviour of an additional 50 patients by two pairs of raters. Results:The internal consistency of the SAED dimensions, once rated by team approach, is excellent, and the reliability measures show also good statistical results. Conclusion and implications:The evaluation of the level of emotional development using the SAED by a group-led and/or direct observational procedure show to be a reliable and useful approach. The group-based procedure yields equal results compared with the usual interview guidelines and might lead to an additional training effect within the respective teams. The rater-reliability measures align with those reported in other studies.

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Section: Discussionsupporting

confidence: 88%

Section: Introductionmentioning

confidence: 99%

A study on the usefulness and reliability of the “Scheme of Appraisal of Emotional Development” (SAED) for persons with ID using direct observation in a group-based assessment procedure

Elstner

Diefenbacher

Kirst³

et al. 2016

Research in Developmental Disabilities

View full text Add to dashboard Cite

show abstract

“…This higher rate of acceptance can lead to more opportunities such as employment, personal relationships, and other forms of community inclusion [3]. This integrative mindset can help individuals feel as though they are a part of the community in which they live, which can lead to higher rates of self-esteem and mitigate depression [41,42].…”

Section: Discussionmentioning

confidence: 99%

Clinician Perspectives of Adult High-Functioning Autism Support Groups’ Use of Neurodiversity Concept

Barnhart¹

2017

Journal of Neurology and Neurological Disorders

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Ample research has examind the impact of autism for children and families, but less has addressed the effects of this condition for adults. The literature indicates that adults on the autism spectrum suffer from depression and have a heightened risk of suicidal ideation because of their social skills deficits [1]. Research also shows that individuals with high-functioning autism (HFA) can benefit from participating in support groups. In addition, research indicates that use of the term "neurodiversity" rather than other diagnostic labels encourages increased self-esteem to persons on the autism spectrum. This grounded theory study sought to understand the belief of clinicians with regard to the incorporation of the concept of neurodiversity in support groups for adults with HFA [2].

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“…Other factors have also been suggested to be related to outcome, including symptom severity, repetitive/stereotyped behaviors in childhood, adaptive behavior, education, gender, the presence of a diagnosed medical disorder, onset of epilepsy before age 5 years, and joint attention skills (Billstedt et al 2007;De Meyer et al 1973;Farley et al 2009;Gillespie-Lynch et al 2012;Howlin and Goode 1998;Totsika et al 2010;Venter et al 1992). For instance, Farley et al (2009) reported that adaptive behavior measures (in particular the Daily Living Skills domain) evaluated at follow-up were most closely correlated to better outcomes.…”

Section: Predictors Of Adult Independencementioning

confidence: 99%

“…Totsika et al (2010) found that an older (50 years or older) group of adults with ASD and ID presented with fewer behavioral problems than the younger (<50 years) group, which is consistent with reports of decreases in behavior problems in the general adult intellectual disability population (Holden and Gitlesen 2006). Billstedt et al (2007) found that social interaction problems were still present in the vast majority of adults with ASD, but the occurrence of behavioral impairments (maladaptive and stereotyped behaviors) was much more variable with only a few symptoms in each category affecting half or more of the study sample.…”

Section: Diagnostic Stability and Symptom Severitymentioning

confidence: 99%

Life Course Health Development in Autism Spectrum Disorders

Drmic

Szatmári

Volkmar

2017

Handbook of Life Course Health Development

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Life course health development (LCHD) incorporates theories and empirical evidence from the biological, physical, and social sciences to formulate a framework that explains how health develops over the life course. The life course health development conceptual framework can be applied to autism spectrum disorders (ASD) to help prioritize a research agenda and improve health development across the lifespan for individuals with ASD, their families, and communities. The following chapter highlights some issues and findings that are pertinent to an understanding of ASD using the lens of the life course health development principles. The chapter begins with a description of the clinical phenotype, followed by epidemiology of the disorder, and reviews changes in classification and diagnosis over time. Pathogenesis of the disorder is discussed, including information pertaining to hereditability, genetic and nongenetic factors, epigenetics, biomarkers, and genotype-phenotype correlations. Long-term follow-up outcome studies of adult independence and quality of life are reviewed, including examination of predictors of outcome, as well as stability of the diagnosis, symptom presentation, and cognitive functioning over time. Areas of key transitions over the life course are discussed from childhood to later adulthood. In addition, the importance of mental health status and care are highlighted. Finally, a number of research, data/methods, and translational priorities are offered that may help lead to a better understanding of life course health development in ASD.

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Behavior Problems, Psychiatric Symptoms, and Quality of Life for Older Adults With Intellectual Disability With and Without Autism

Cited by 96 publications

References 48 publications

A study on the usefulness and reliability of the “Scheme of Appraisal of Emotional Development” (SAED) for persons with ID using direct observation in a group-based assessment procedure

A study on the usefulness and reliability of the “Scheme of Appraisal of Emotional Development” (SAED) for persons with ID using direct observation in a group-based assessment procedure

Clinician Perspectives of Adult High-Functioning Autism Support Groups’ Use of Neurodiversity Concept

Life Course Health Development in Autism Spectrum Disorders

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