‘Becoming a co-operative?’: Emergent Identity and Governance Struggles in the Context of Institutional Ambiguity in a Citizen-Led Health-Care Cooperative

Werner, Mirjam D.; Jellema, Sylke F.

doi:10.1007/978-3-319-95486-8_12

Cited by 2 publications

(1 citation statement)

References 8 publications

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“…Our findings from the literature review as well as the user research suggest that the most important stakeholder group for initiating a cooperative founding process are citizens, who are willing to engage with the formulated vision. In order to motivate participation, the value proposition must be obvious and understandable for this respective group (Werner & Jellema, 2019). A convincing and directly perceivable value proposition for this main stakeholder group is crucial for a successful cooperative.…”

Section: Discussionmentioning

confidence: 99%

Governance of Digital Health Data on Cooperatively Organized Platforms – a Design Thinking Approach

Burmann,

Langer,

Bosompem

et al. 2023

Proceedings of the Annual Hawaii International Conference on System Sciences

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More and more stakeholders are collecting data for improving their services: from scientific research over public administration to commercial enterprises. Existing data management services offer few rights of co-determination for their users. Data cooperatives aim to provide a democratic alternative to this. Through such a platform cooperative members are supposed to be enabled to share their data in a selfdetermined way. In this paper, we present a design thinking-based user research with stakeholders of data cooperatives in a health-data context. We provide an overview of motivations, expectations, and interfaces between a cooperative and individuals as cooperative members, organizations, representatives from research, and policy makers. In an iterative process, 34 interviews were conducted with different stakeholder groups, from which 7 personas were subsequently derived. For these, 4 prototypes were developed and tested with potential users. Our results show that all interviewed groups were very interested in the concept of data cooperatives. At the same time, it proves challenging to reconcile the conflicting internal and external requirements and to implement attractive value propositions for all stakeholders.

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Section: Discussionmentioning

confidence: 99%

Governance of Digital Health Data on Cooperatively Organized Platforms – a Design Thinking Approach

Burmann,

Langer,

Bosompem

et al. 2023

Proceedings of the Annual Hawaii International Conference on System Sciences

View full text Add to dashboard Cite

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(Data-) Cooperatives in health and social care: a scoping review

Lauer,

Merkel,

Bosompem

et al. 2024

J Public Health (Berl.)

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Aim To gather information about the structure of cooperatives in health and social care, in general, and data cooperatives, in particular, to derive implications for their future implementation. Subject and methods Health and social care systems are currently under pressure due to rising costs and demands. Many hopes lie on digitization, digitalization, and the potentials of health data. A scoping review was conducted searching nine databases and grey literature. Data on information about aim, type, and structure of the cooperatives, member structure, founding process, and their way of financing were extracted. Results All searches resulted in 9080 articles and websites. Overall, we included 26 cooperatives and categorized them as follows: (1) worker cooperatives with focus on workers’ rights and service provision to clients, (2) consumer cooperatives, (3) consumer and worker cooperatives, (4) cooperatives of institutions, (5) general practitioner (GP) cooperatives, (6) cooperatives as health insurance models, and (7) health data cooperatives. Conclusions Information provided on (data) cooperatives differed greatly in detail. Their common goal is to tackle and overcome existing barriers in their field such as working conditions or unequal health care. We identified five challenges: (1) salary structures; (2) cooperating with other providers and surrounding institutions; (3) building an identity and recruiting potential members; (4) motivation of members to participate actively; and (5) distinction from other types. Benefits are: (1) improvement of conditions; (2) being stronger together; (3) support of research; and (4) data governance. When successful and competent, (data) cooperatives can be powerful tools on public, scientific, and political levels.

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‘Becoming a co-operative?’: Emergent Identity and Governance Struggles in the Context of Institutional Ambiguity in a Citizen-Led Health-Care Cooperative

Cited by 2 publications

References 8 publications

Governance of Digital Health Data on Cooperatively Organized Platforms – a Design Thinking Approach

Governance of Digital Health Data on Cooperatively Organized Platforms – a Design Thinking Approach

(Data-) Cooperatives in health and social care: a scoping review

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