Barriers to transition in young adults with neurogenic bladder

Grimsby, Gwen M.; Burgess, R.; Culver, Stephanie; Schlomer, Bruce J.; Jacobs, Micah A.

doi:10.1016/j.jpurol.2016.04.015

Cited by 30 publications

(36 citation statements)

References 14 publications

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“…the Lurie Children's Hospital SB Clinic affiliated with the Shirley Ryan AbilityLab and the Texas Children's SB Transition Clinic affiliated with the Baylor College of Medicine Transition Medicine Clinic [55,56]. Urology transition research has identified that AYASB often have active urologic concerns during transition and thus, urology-specific transition clinics have been proposed as well [57][58][59][60]. Interagency models linking SB pediatric clinics with community-based programs or camps for transition and self-management independence support have also been described [38,61].…”

Section: Models Of Carementioning

confidence: 99%

Spina bifida transition to adult healthcare guidelines

Fremion

Dosa

2019

PRM

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With an estimated 85% of individuals with spina bifida (SB) surviving into adulthood, SB-specific transition to adult healthcare guidelines are warranted to address the diverse and complex medical, adaptive, and social needs particular to this condition. This commentary discusses the SB Transition Healthcare Guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida, reviews current transition care models in which such guidelines can be implemented, and explores further research topics in SB transition care.

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Section: Models Of Carementioning

confidence: 99%

Spina bifida transition to adult healthcare guidelines

Fremion

Dosa

2019

PRM

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“…Other important issues that represented evolution of the current transition model included risk of abuse due to a daily need for bladder catheterization and the natural development of sexual awareness. Therefore, the topics of sexual readiness, sexual activity, birth control, sexually transmitted diseases, and sexual abuse must be addressed prior to transition to adult care 20,21,32 . Some prophylactic measures may be started as early as 12 years of age (i.e., HPV vaccine) but the overall process is a gradual one that begins in early adolescence and continues through transition.…”

Section: Discussionmentioning

confidence: 99%

The development of a lifetime care model in comprehensive spina bifida care

Hopson

Rocque

Joseph

et al. 2018

PRM

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Purpose: To describe the development and implementation of the Children’s of Alabama (COA) Spina Bifida (SB) Lifetime-Care-Model, including standardized care protocols and transition plan. Methods: In 2010, members of the pediatric team at COA began to evaluate limitations in access to care for patients with SB at various stages of life. Through clinic surveys, observations, and caregiver report, a Lifetime-Care-Model was developed and implemented. Partnerships were made with adult medicine colleagues to create an interdisciplinary model at each stage. Since developing this program, it has evolved to include standardized care protocols. Results: Since 2011, there have been 42 prenatal clinics; 114 families received counseling and prenatal care. Of these, 106 have delivered at our center and established care in our pediatric clinic. There are currently 474 patients in the pediatric and 218 in the adult clinics. Conclusions: Our institutional experience suggests that patients with SB benefit from continuity of care throughout their lifetime. This article describes early failures which led to an evolution in approach and implementation of a Lifetime-Care-Model which results in a smooth transition between all phases of life. We hope that other institutions may adapt and build upon it to create programs unique to their specific patient needs.

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“…In the United States, as patients reach adulthood, insurance options such as Medicaid or the Children's Health Insurance Program become inaccessible. 29 It is thereby imperative that transition of care discussions also include consideration in insurance coverage that is adequate to their ongoing needs.…”

Section: Adult/transition Considerationsmentioning

confidence: 99%

Transition of Care of the Spina Bifida Patient from Childhood to Adulthood

Tomei

Zhou

2020

Journal of Pediatric Neurology

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Spina bifida is a complex disease process, the care of which involves multiple physicians and other healthcare providers in several disciplines. As our treatment of this disorder has improved over time, thus has survival of these patients into adulthood. Consideration in the care of young adults and adults with spina bifida poses significant challenges that parallel many other disease processes of childhood where medical advances have improved survival. We attempt to discuss the complex disorder that is spina bifida and some of the challenges associated with transition of care of these patients into adulthood.

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Barriers to transition in young adults with neurogenic bladder

Cited by 30 publications

References 14 publications

Spina bifida transition to adult healthcare guidelines

Spina bifida transition to adult healthcare guidelines

The development of a lifetime care model in comprehensive spina bifida care

Transition of Care of the Spina Bifida Patient from Childhood to Adulthood

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