Barriers to Self-management of Serious Mental Illness and Diabetes

Blixen, Carol; Kanuch, Stephanie; Perzynski, Adam T.; Thomas, Charles L.; Dawson, Neal V.; Sajatovic, Martha

doi:10.5993/ajhb.40.2.4

Cited by 71 publications

(120 citation statements)

References 34 publications

(30 reference statements)

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“…These findings contrast with studies that viewed family relationships as negative or problematic (e.g. Blixen et al., ; Davidson et al., ; Green, Hayes, Dickinson, Whittaker, & Gilheany, ). Importantly, providers recognised that their support could not replace the natural affection of family ties.…”

Section: Discussioncontrasting

confidence: 91%

Supported housing for adults with psychiatric disabilities: How tenants confront the problem of loneliness

Piat

Sabetti

Padgett

2017

Health Soc Care Community

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The objective of this study was to examine the experience of loneliness among people with psychiatric disabilities after moving from custodial housing, including group homes, boarding homes, and family-type residences to independent, supported apartments in the community. Qualitative research methods guided by a naturalistic/constructivist framework were used. Data collection occurred between May 2014 and July 2015 and consisted of individual semi-structured interviews with 24 tenants residing in five supported housing sites across three Canadian provinces; interviews were also conducted with a designated family member for each tenant and with their service providers. Group interviews were conducted with housing workers in the five housing sites. The interviews were transcribed verbatim, codes generated and a thematic analysis undertaken using a constructivist approach. Results showed that for most tenants living in independent apartments with support loneliness was not a serious problem or was an issue that could be overcome. Most study participants viewed supported housing as preferable to custodial housing and as a normalising experience that facilitated community integration. While housing conditions, particularly those associated with congregate housing, sometimes helped attenuate loneliness among tenants, managing loneliness was primarily contingent on the ability of individuals to develop and maintain social connections, as well as on family involvement.

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Section: Discussioncontrasting

confidence: 91%

Supported housing for adults with psychiatric disabilities: How tenants confront the problem of loneliness

Piat

Sabetti

Padgett

2017

Health Soc Care Community

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“…The sample size varied between seven and 30 participants. In most of the articles, the authors discuss or mention the implications of a small sample size as a limitation for the research results (Bjørkedal et al, 2016; Blixen et al, 2016; Burke et al, 2016; de Jager et al, 2016; Jones et al, 2016; Landon, Shepherd, McGarry, Theadom, & Miller, 2016; Rhodes, Parrett, & Mason, 2016; Topor, Ljungqvist, & Strandberg, 2016), whereas other authors do not discuss this issue, even if fewer than 10 participants were interviewed (Singh et al, 2016; van Langen et al, 2016). …”

Section: Resultsmentioning

confidence: 99%

“…In some cases, this was probably due to the included interview study being part of a larger study (Blixen et al, 2016; Saavedra, López, Gonzáles, & Cubero, 2016; Waite et al, 2016). Nevertheless, for most of the studies recruitment was performed by the healthcare staff or clinicians, who approached eligible candidates for the studies in their daily work (Barut et al, 2016; Bjørkedal et al, 2016; Jones et al, 2016; Kidd et al, 2016; Landon et al, 2016; Paul, 2016; Rhodes et al, 2016; van Langen et al, 2016).…”

Section: Resultsmentioning

confidence: 99%

“…One of the authors in the reviewed articles was usually responsible for the main analysis and the other authors served as additional evaluators in the analysis procedure (Bjørkedal et al, 2016; Kidd et al, 2016; Paul, 2016; Rhodes et al, 2016). Others went a step further, and included more than one author to independently read the transcripts and initial analysis (Barut et al, 2016; Blixen et al, 2016; Burke et al, 2016; Jones et al, 2016; Landon et al, 2016; Saavedra et al, 2016; Topor et al, 2016; van Langen et al, 2016; Waite et al, 2016). …”

Section: Resultsmentioning

confidence: 99%

“…The recruitment strategy, sample size and that no record was written about dropouts are discussed. Only those who completed the entire intervention participated in the interviewBlixen et al (2016), USABarriers to self-management of serious mental illness and diabetesTo asses perceived barriers to self-management among patients with both serious mental illness and diabetes to inform healthcare delivery practicePhenomenological approach; semi-structured interviews. An urban safety-net care setting20 participants with a diagnosis of severe mental illness, from a larger study.…”

Section: Methodsmentioning

confidence: 99%

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Ethical and methodological issues in qualitative studies involving people with severe and persistent mental illness such as schizophrenia and other psychotic conditions: a critical review

Carlsson

Blomqvist

Jormfeldt

2017

International Journal of Qualitative Studies on Health and Well

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Undertaking research studies in the field of mental health is essential in mental health nursing. Qualitative research methodologies enable human experiences to become visible and recognize the importance of lived experiences. This paper argues that involving people with schizophrenia in research is critical to promote their health and well-being. The quality of qualitative research needs scrutinizing according to methodological issues such as trustworthiness and ethical standards that are a fundamental part of qualitative research and nursing curricula. The aim of this study was to critically review recent qualitative studies involving people with severe and persistent mental illness such as schizophrenia and other psychotic conditions, regarding descriptions of ethical and methodological issues in data collection and analysis. A search for relevant papers was conducted in three electronic databases, in December 2016. Fifteen qualitative interview studies were included and reviewed regarding methodological issues related to ethics, and data collection and analysis. The results revealed insufficient descriptions of methodology regarding ethical considerations and issues related to recruitment and sampling in qualitative interview studies with individuals with severe mental illness, putting trustworthiness at risk despite detailed descriptions of data analysis. Knowledge from the perspective of individuals with their own experience of mental illness is essential. Issues regarding sampling and trustworthiness in qualitative studies involving people with severe mental illness are vital to counteract the stigmatization of mental illness.

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How Should Clinicians Ally With Patients Whose Health Is Unlikely to Be Improved by Even Numerous Clinical Encounters?

2022

AMA Journal of Ethics

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Patients experiencing homelessness and mental illness face conditions and circumstances that deserve focused ethical and clinical attention. The first commentary on the case applies insights from qualitative research about social determinants of health to these patients' care and dignity. The second commentary describes 3 kinds of power wielded by physicians-charismatic, social, and Aesculapian-each of which is considered in terms of whether and to what extent physicians' power should be owned, aimed, or shared.Case JJ is a 27-year-old man with schizophrenia, who is brought to the clinic by staff members from a local shelter. JJ does not adhere well to his antipsychotic medication, has experienced several inpatient psychiatric civil commitments and other encounters with numerous clinicians in the region's health care system, and does not have reliable access to shelter, food, water, or hygiene. You, JJ's caregiver in the clinic right now, empathize with him, staff from the shelter, and others trying to help JJ avoid poor health outcomes for which he is at such high risk.You refilled JJ's medication and reviewed his laboratory values, but you know there is little you can do for JJ that can counter the myriad and well-known social determinants undermining the effectiveness of even the most skilled intervention any clinician could offer JJ during a clinical encounter. You wonder how to make the most of this moment you have with JJ on his life journey.

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Barriers to Self-management of Serious Mental Illness and Diabetes

Cited by 71 publications

References 34 publications

Supported housing for adults with psychiatric disabilities: How tenants confront the problem of loneliness

Supported housing for adults with psychiatric disabilities: How tenants confront the problem of loneliness

Ethical and methodological issues in qualitative studies involving people with severe and persistent mental illness such as schizophrenia and other psychotic conditions: a critical review

How Should Clinicians Ally With Patients Whose Health Is Unlikely to Be Improved by Even Numerous Clinical Encounters?

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