Barriers to Hospice for Children as Perceived by Hospice Organizations in North Carolina

Varela, Ana Milena Sanchez; Deal, Allison M.; Hanson, Laura C.; Blatt, Julie; Gold, Stuart; Dellon, Elisabeth P.

doi:10.1177/1049909111412580

Cited by 24 publications

(30 citation statements)

References 16 publications

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“…This finding likely speaks to a lack of hospice facilities with pediatric expertise in the United States . To date, only 14% of participating hospice agencies report having formal pediatric PC services with specialized staff, and a number of educational, procedural, and sociocultural barriers further impede provision of community‐based EOL care for children and families . Development and implementation of interventions to improve access to pediatric PC and hospice in the community is a valuable area of research that remains largely unexplored …”

Section: Discussionmentioning

confidence: 99%

“…70,71 To date, only 14% of participating hospice agencies report having formal pediatric PC services with specialized staff, 71 and a number of educational, procedural, and sociocultural barriers further impede provision of community-based EOL care for children and families. 72 Development and implementation of interventions to improve access to pediatric PC and hospice in the community is a valuable area of research that remains largely unexplored. 73 Importantly, three-quarters of PPO patients at this institution had PC involvement prior to the LMOL, with the median time between initial consultation and death falling at approximately 2.5 months.…”

Section: Association Between Timing Of Pc Involvement Before Death Anmentioning

confidence: 99%

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Illness and end‐of‐life experiences of children with cancer who receive palliative care

Kaye

Gushue

DeMarsh

et al. 2017

Pediatric Blood & Cancer

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Children with cancer who receive PC experience a high burden of intensive treatments and often die in inpatient intensive care settings. Delayed PC involvement is associated with increased odds of dying in the intensive care unit. Prospective investigation of early PC involvement in children with high-risk cancer is needed to better understand potential impacts on cost-effectiveness, quality of life, and delivery of goal concordant care.

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Section: Discussionmentioning

confidence: 99%

Section: Association Between Timing Of Pc Involvement Before Death Anmentioning

confidence: 99%

Illness and end‐of‐life experiences of children with cancer who receive palliative care

Kaye

Gushue

DeMarsh

et al. 2017

Pediatric Blood & Cancer

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“…In addition, few hospice programs in the United States advertise the provision of pediatric services, and those that do may have such a low pediatric census that they fail to acquire or maintain comfort and expertise with this patient population . Despite increasing community‐based needs, the percentage of hospices offering pediatric care actually decreased from 2002 to 2008, and increasing competition among hospices has been associated with a decreased probability of having pediatric services .…”

Section: Introductionmentioning

confidence: 99%

Pediatric palliative care in the community

Kaye

Rubenstein

Levine

et al. 2015

CA A Cancer J Clinicians

104

117

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Take free quizzes online at acsjournals.com/ce ONLINE CONTINUING EDUCATION ACTIVITYAfter reading the article "Pediatric Palliative Care in the Community" the learner should be able to: 1. Describe the scope of pediatric palliative care and community-based pediatric palliative care. 2. Review the indications for referral of children with cancer to pediatric palliative care and community-based pediatric palliative care. 3. Discuss the benefits of and barriers to referral of children with cancer to pediatric palliative care and community-based pediatric palliative care. ARTICLE TITLE: Pediatric Palliative Care in the Community CONTINUING MEDICAL EDUCATION ACCREDITATION AND DESIGNATION STATEMENT:Blackwell Futura Media Services is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education (CME) for physicians.Blackwell Futura Media Services designates this enduring material for a maximum of 1.5 AMA PRA Category 1 Credit™. Physicians s hould only claim credit commensurate with the extent of their participation in the activity. CONTINUING NURSING EDUCATION ACCREDITATION AND DESIGNATION STATEMENT:The American Cancer Society (ACS) is accredited as a provider of continuing nursing education (CNE) by the American Nurses Credentialing Center's Commission on Accreditation.Accredited status does not imply endorsement by the ACS or the American Nurses Credentialing Center of any commercial products displayed or discussed in conjunction with an educational activity. The ACS gratefully acknowledges the sponsorship provided by Wiley for hosting these CNE activities. EDUCATIONAL OBJECTIVES: ACTIVITY DISCLOSURESThis work was supported by the American Lebanese Syrian Associated Charities (ALSAC). ACS CONTINUING PROFESSIONAL EDUCATION COMMITTEE DISCLOSURESEditor, Director of Continuing Professional Education, and ACS Director of Medical Content Ted Gansler, MD, MBA, MPH, has no financial relationships or interests to disclose. Deputy Editor and ACS Director of Prostate and Colorectal CancersDurado Brooks, MD, MPH, has no financial relationships or interests to disclose. Lead Nursing and Associate Editor Marcia Grant, RN, PhD, FAAN, has no financial relationships or interests to disclose. Associate Editor and Chief Cancer Control Officer Richard C. Wender, MD, has no financial relationships or interests to disclose. AUTHOR DISCLOSURESErica C. Kaye, MD, Jared Rubenstein, MD, Deena Levine, MD, Justin N. Baker, MD, Devon Dabbs, BBA, and Sarah E. Friebert, MD have no financial relationships or interests to disclose.CNE CME SCORING A score of 70% or better is needed to pass a quiz containing 10 questions (7 correct answers), or 80% or better for 5 questions (4 correct answers). INSTRUCTIONS ON RECEIVING CME CREDITThis activity is intended for physicians. For information concerning the applicability and acceptance of CME credit for this activity, please consult your professional licensing board.This activity is designed to be completed within 1.5 hours; physicians should claim only those...

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“…Recent studies have demonstrated that hospice care provides physical and psychosocial benefits for children and their families (3–4). Despite the potential value of hospice care for children, it is estimated that approximately 90% of children who may benefit from hospice services never receive it, and as few as 40% of community-based hospices provide care to children (5–6). …”

Section: Introductionmentioning

confidence: 99%

Factors Associated With the Provision of Hospice Care for Children

Lindley

Mark

Lee

et al. 2013

Journal of Pain and Symptom Management

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Context Children at end of life often lack access to hospice care at home or in a dedicated facility. The factors that may influence whether or not hospices provide pediatric care are relatively unknown. Objectives The purpose of this study was to understand the institutional and resource factors associated with provision of pediatric hospice care. Methods This study used a retrospective, longitudinal design. The main data source was the 2002 to 2008 California State Hospice Utilization Data Files. The sample size was 311 hospices or 1368 hospice observations over seven years. Drawing on institutional and resource dependence theory, this study used generalized estimating equations to examine the institutional and resource factors associated with provision of pediatric hospice care. Interaction terms were included to assess the moderating effect of resource factors on the relationship between institutional factors and provision of care. Results Membership in professional groups increased the probability (19%) of offering hospice services for children. Small- (−22%) and medium-sized (−11%) hospices were less likely to provide care for children. The probability of providing pediatric hospice care diminished (−23%) when competition increased in the prior year. Additionally, small size attenuated the accreditation-provision relationship and medium size magnified the membership-provision relationship. Conclusion Professional membership may promote conformity to industry standards of pediatric care and remove the unknowns of providing hospice care for children. Hospices, especially medium-sized hospices, interested in developing or expanding care for children may benefit by identifying a pediatric champion to join a professional group.

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Barriers to Hospice for Children as Perceived by Hospice Organizations in North Carolina

Cited by 24 publications

References 16 publications

Illness and end‐of‐life experiences of children with cancer who receive palliative care

Illness and end‐of‐life experiences of children with cancer who receive palliative care

Pediatric palliative care in the community

Factors Associated With the Provision of Hospice Care for Children

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