Barriers to accessing psycho-oncological support in head and neck cancer: A qualitative exploration of healthcare professionals’ perspectives

Gurren, Lorna; O’Sullivan, Eleanor; Keogh, Ivan; Dunne, Simon

doi:10.1016/j.ejon.2022.102145

Cited by 8 publications

(10 citation statements)

References 36 publications

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“…The Make It Training was described as a low-threshold and efficient format to receive psycho-oncological support. This was perceived as extraordinarily helpful as some participants had previously experienced difficulties with receiving proper psycho-oncological support, which is known to be a common problem in certain regions [ 10 , 17 , 18 ]. In this regard, the retrieval of content independent of time and place was described as being helpful with internalizing learned skills and accessing psychological support quickly when needed.…”

Section: Discussionmentioning

confidence: 99%

Evaluation of the e–Mental Health Intervention Make It Training From Patients' Perspectives: Qualitative Analysis Within the Reduct Trial

Krakowczyk,

Truijens,

Teufel

et al. 2024

JMIR Cancer

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Background Make It Training is an e–mental health intervention designed for individuals with cancer that aims to reduce psychological distress and improve disease-related coping and quality of life. Objective This study evaluated the experienced usefulness and usability of the web-based Make It Training intervention using a qualitative approach. Methods In this study, semistructured interviews were conducted with participants at different cancer stages and with different cancer entities. All participants had previously taken part in the Reduct trial, a randomized controlled trial that assessed the efficacy of the Make It Training intervention. The data were coded deductively by 2 independent researchers and analyzed iteratively using thematic codebook analysis. Results Analysis of experienced usefulness resulted in 4 themes (developing coping strategies to reduce psychological distress, improvement in quality of life, Make It Training vs traditional psychotherapy, and integration into daily life) with 11 subthemes. Analysis of experienced usability resulted in 3 themes (efficiency and accessibility, user-friendliness, and recommendations to design the Make It Training intervention to be more appealing) with 6 subthemes. Make It Training was evaluated as a user-friendly intervention helpful for developing functional coping strategies to reduce psychological distress and improve quality of life. The consensus regarding Make It Training was that it was described as a daily companion that integrates well into daily life and that it has the potential to be routinely implemented within oncological health care either as a stand-alone intervention or in addition to psychotherapy. Conclusions e–Mental health interventions such as Make It Training can target both the prevention of mental health issues and health promotion. Moreover, they offer a cost-efficient and low-threshold option to receive psycho-oncological support.

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Section: Discussionmentioning

confidence: 99%

Evaluation of the e–Mental Health Intervention Make It Training From Patients' Perspectives: Qualitative Analysis Within the Reduct Trial

Krakowczyk,

Truijens,

Teufel

et al. 2024

JMIR Cancer

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“…7 It is a branch whose success relies on collaboration and cross-disciplinary interactions to understand the need, timely address the issues and apply the concepts in clinical context. 3,4,7 It is an evolving field just like the other sub-specialties of cancer and attempts to explain the intricacies of relationship between the psyche and the cancer, the emotions involved, the adaptation and response of the patients' and caregivers to the evolving cancer and its ramifications. 8 Social, cultural and individual beliefs and perceptions all affect a patient or a caregiver's adaptation to cancer and facilitating a positive adaptation in these aspects also falls in the domain of psycho-oncology.…”

Section: Scope Of Psycho-oncologymentioning

confidence: 99%

“…8 Social, cultural and individual beliefs and perceptions all affect a patient or a caregiver's adaptation to cancer and facilitating a positive adaptation in these aspects also falls in the domain of psycho-oncology. 4,7,8 Its scope is vast as shown in Figure 1 and covers a lot of psychological, behavioral and often social factors that may play a role in cancer prevention, treatment choices, and prognosis. It also provides a valuable tool to teach how to properly approach the disease as a person, as family, as society and globally.…”

Section: Scope Of Psycho-oncologymentioning

confidence: 99%

“…interpersonal, social, rehabilitative and psychological components, though being recognized as essential to cancer care pathway, are not witnessing a similar progress, more so in developing countries like India. 4,5 With a definite prediction regarding the increase in incidence of cancer across the globe, this needs to be addressed so as to enable a holistic approach to cancer care. This is where the field of psycho-oncology and cancer rehabilitation comes into being.…”

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confidence: 99%

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The unmet need of psycho-oncology services for integrated cancer care in India: a review

Brahmbhatt¹,

Desai

2023

Int J Community Med Public Health

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Cancer has varied effects on mental health of the patients, their family and friends as well as the caregivers. The emotional, social, interpersonal, rehabilitative and psychological effects of cancer on all of them can contribute to psycho-social distress. Appropriately addressing psychological, social and behavioral issues through psycho-oncology services improves the physician-patient relationship, increase satisfaction to the ongoing treatment, create a positive attitude towards treatment and outcomes and improve the quality of life. It also has a role in preventive oncology as well as in cancer rehabilitation. Global recognition of the need of psycho-oncology services has led to establishment of a lot of international organizations and societies in the developed countries. On the other hand, there are no societies or standard guidelines for psychosocial care in India. Also, due to lack of awareness and cancer education, the stigma associated with this care compounded by the stigma associated with cancer is a major hindrance to availing mental health care in India. Identifying this unmet need, creating awareness about the need of distress management during key transitions in cancer care pathway and providing training and research opportunities in this field in India will pave the way to improve the outcomes of cancer treatment delivery and patient compliance as well as satisfaction to the provided care. Psycho-oncology services need to be integrated into the existing cancer care pathways in a structured manner so as to enable ease of availability of these services for the patients and their families when in need.

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“…Yet, such interventions are not suitable for all, and access issues persist ( Jacobsen and Jim, 2008 ). Some of the barriers to accessing cancer-related psychological support include resource constraints ( Vaccaro et al, 2019 ), psychiatric symptoms adversely impacting on engagement with services ( Leahy et al, 2021 ), stigma ( Gurren et al, 2022 ) and individuals’ expressing concerns about the nature of the available interventions ( Christy et al, 2013 ). Indeed, the COVID-19 pandemic has further shone a light on the need for greater variety of forms of remote delivery of psychological interventions ( Wright and Caudill, 2020 ), and studies assessing efficacy and acceptability of such interventions are required ( Capobianco et al, 2023 ; Nguyen et al, 2022 ).…”

Section: Introductionmentioning

confidence: 99%

A qualitative feasibility and acceptability study of an acceptance and commitment-based bibliotherapy intervention for people with cancer

Keenan,

Morris,

Vasiliou

et al. 2023

J Health Psychol

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Self-directed bibliotherapy interventions can be effective means of psychological support for individuals with cancer, yet mixed findings as to the efficacy of these interventions indicate the need for further research. We investigated the experience of individuals with cancer after using a new self-help book, based on Acceptance and Commitment Therapy (ACT). Ten participants with cancer (nine females and one male, 40–89 years old) were given access to a bibliotherapy self-help ACT-based book and participated in post-intervention semi-structured interviews. Five themes were generated from reflexive thematic analysis: (1) The value of bibliotherapy (2) Timing is important (3) Resonating with cancer experiences (4) Tools of the book (5) ACT in action. The book was found to be acceptable (self-directed, accessible, understandable content, good responsiveness to exercises) and feasible (easy to use, ACT-consistent). Although not explicitly evaluated, participants’ reports indicated defusion, present moment awareness, and consideration of values, as the ACT processes that contributed to adjustment, via helping them to regain control over their lives and become more present within the moment. Findings also indicate that the intervention may be best accessed following completion of initial medical treatment.

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Barriers to accessing psycho-oncological support in head and neck cancer: A qualitative exploration of healthcare professionals’ perspectives

Cited by 8 publications

References 36 publications

Evaluation of the e–Mental Health Intervention Make It Training From Patients' Perspectives: Qualitative Analysis Within the Reduct Trial

Evaluation of the e–Mental Health Intervention Make It Training From Patients' Perspectives: Qualitative Analysis Within the Reduct Trial

The unmet need of psycho-oncology services for integrated cancer care in India: a review

A qualitative feasibility and acceptability study of an acceptance and commitment-based bibliotherapy intervention for people with cancer

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