Barriers and facilitators to implementing the Carer Support Needs Assessment Tool in a community palliative care setting

Horseman, Zoe; Milton, Libby; Finucane, Anne

doi:10.12968/bjcn.2019.24.6.284

Cited by 13 publications

(10 citation statements)

References 29 publications

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“…The caregivers in this study repeatedly brought up that they put their own lives on hold to be able to take care of their loved one. Horseman et al (2019) confirm that caregivers disregard their personal needs and that this prevents them from admitting they require support. The caregivers reported that the relationship with their loved one was transformed from one of a spouse or a child to that of a caregiver.…”

Section: Discussionmentioning

confidence: 81%

Needs of caregivers of patients receiving in-home palliative and end-of-life care

Pepin¹,

Hébert²

2020

CONJ

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Home support for patients receiving in-home palliative and end-oflife care (PELC) is greatly dependent on the daily presence of caregivers and their involvement in care delivery. However, the needs of caregivers throughout the care trajectory of a loved one receiving in-home PELC are still relatively unknown. Objectives and methodology: This descriptive qualitative study focuses on the role of caregivers who have cared for a person receiving in-home PELC with the goal of describing their needs throughout the care trajectory. As part of this process, 20 caregivers took part in semi-directed interviews. Results and discussion: This study sheds light on the multiple needs of caregivers of loved ones receiving in-home PELC. These informational, emotional, and psychosocial needs show that caregivers experience changes in their relationship with their loved one. Spiritual needs were expressed through the meaning ascribed to the home support experience. And the practical needs expressed by participants highlight the importance of round-the-clock access to PELC services and the essential importance of nursing support. Conclusion: The needs of caregivers of loved ones receiving in-home PELC are not being met to a satisfactory degree. It is important to consider these needs in the care trajectory, alongside the needs of the patients themselves, in order to improve the support experience leading up to the bereavement period.

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Section: Discussionmentioning

confidence: 81%

Needs of caregivers of patients receiving in-home palliative and end-of-life care

Pepin¹,

Hébert²

2020

CONJ

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“…Les PA mentionnent de façon récurrente avoir mis de côté leur propre vie afin de pouvoir prendre soin de leur proche. De fait, Horseman et al (2019) précisent que les PA font abstraction de leurs besoins personnels, ce qui nuit à la reconnaissance de leurs besoins de soutien. Par ailleurs, les PA rapportent que la relation qui les unit à leur proche se transforme, laissant de côté le rôle de conjoint(e) ou d'enfant pour prendre celui de soignant.…”

Section: Discussionunclassified

Besoins des proches aidants qui accompagnent une personne en soins palliatifs et de fin de vie à domicile

Pepin

Hébert

2020

CONJ

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“…Implementation of CSNAT represents a challenge for the practitioners. Implementing it can block due to various barriers: practitioners' beliefs and attitudes, lack of knowledge or training, and lack of time or resources [39]. The barrier can also be the number of practitioners ready to adopt the implementation of the new tool.…”

Section: Barriers and Facilitates In Implementing Of The Csnat Approachmentioning

confidence: 99%

An Overview of Measurement Systems and Practices in Healthcare Systems Applied to Person-Centred Care Interventions

Raposo

Antonić

Nova

et al. 2022

Intelligent Systems for Sustainable Person-Centered Healthcare

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Person-centred care (PCC) is an increasing international priority and a shift in health systems orientation and development. Innovative models are required across Europe to prototype healthcare based on health promotion and PCC to improve healthcare quality and costs containment. Regardless of the type of intervention, investments will be required, and it will be essential to demonstrate the value created, comparing consequences and the associated costs. Independent of PCC intervention, we must consider different decision levels and stakeholders in the process. This work aims to focus on a broader perspective of health governance on PCC implementations, considering the need and importance of measurement systems (outcomes and costs) to support and evaluate innovative health service delivery models. It is necessary to have a global view of the entire system considering, from a health governance perspective, the different decision-making levels, the multiple stakeholders and the alignment of their interests. Value-Based Healthcare (VBHC), Value for Money (VfM) and economic evaluation provide concepts, methodologies, and tools that can be used to compare costs and consequences evaluating their impact on society. We need accurate outcomes and costs measurement systems and evaluation tools that can be incorporated in an organizational environment supporting organizational learning and interaction in exchanging knowledge and experience about implementation.

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Barriers and facilitators to implementing the Carer Support Needs Assessment Tool in a community palliative care setting

Cited by 13 publications

References 29 publications

Needs of caregivers of patients receiving in-home palliative and end-of-life care

Needs of caregivers of patients receiving in-home palliative and end-of-life care

Besoins des proches aidants qui accompagnent une personne en soins palliatifs et de fin de vie à domicile

An Overview of Measurement Systems and Practices in Healthcare Systems Applied to Person-Centred Care Interventions

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