Barriers And Facilitators To Community-Based Participatory Mental Health Care Research For Racial And Ethnic Minorities

Delman, Jonathan; Progovac, Ana M.; Flomenhoft, Tali; Delman, Deborah; Chambers, Valeria; Cook, Benjamin Lê

doi:10.1377/hlthaff.2018.05040

Cited by 15 publications

(6 citation statements)

References 12 publications

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“…Hence, recruitment of adults with mental health issues relied on fliers and/or word of mouth. Delman et al (2019) suggests that building trust is especially important in the beginning phase of a partnership, stating "partners are likely to have not worked together previously, there may be mutual mistrust, and community stakeholders often face power and resource imbalances when attempting to assert themselves equally" (p. 392). As new researchers to the community, the FGs were used as an initial means to develop trusting relationships between the institution and the community.…”

Section: Recruitmentmentioning

confidence: 99%

“…Establishing a lasting community and academic partnership to address mental health issues is not easy. Barriers to establishing a successful partnership have been previously identified as including trepidation of community stakeholders, complex research methods, uncertainty among academic partners, and unclear partnership decision-making principles (Delman et al, 2019). Despite this difficulty, mental health research has sustained successful community partnerships for years (Dobransky-Fasiska et al, 2009).…”

Section: Introductionmentioning

confidence: 99%

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Rural Community Engagement for Mental Health

Kelter

Shirely

Janney

et al. 2022

Collaborations: A Journal of Community-Based Research and Practice

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Community-engagement strategies have been used successfully in mental health research and have been proposed as ideal for addressing stigma associated with mental illness. However, little has been published about using a community-engaged approach to address mental health and associated stigma in rural communities. We aimed to develop a mental health patient-centered research community and advisory board for two rural communities in Michigan with the long-term goal of improving mental health care, self-management, and outcomes in these communities. The project used principles from community-based participatory research (CBPR) and patient-centered outcomes research (PCOR) models. Focus groups and the development of a mental health research advisory committee (MHRAC) were used to engage the community. Five focus groups were conducted with a total of 38 participants, including several individuals who self-identified as having mental health issues, to identify unmet mental health needs as well as available resources. MHRAC consisted of 24 volunteers and prepared written summaries from the focus group transcripts to identify key mental health themes expressed by participants in the focus groups. When comparing the original transcript to the focus group summaries compiled by MHRAC, we determined differences between the reports, but found stigma to be a common theme. This project served as a catalyst to prioritize and address selected mental health issues in these rural communities.

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Section: Recruitmentmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Rural Community Engagement for Mental Health

Kelter

Shirely

Janney

et al. 2022

Collaborations: A Journal of Community-Based Research and Practice

View full text Add to dashboard Cite

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“…The safety net academic-clinical center (i.e., clinical center providing care to patients regardless of insurance status or ability to pay, and therefore serving a higher proportion of people who are low-income or on public insurance) included a clinical-research group (health services researchers, mental health and/or primary care clinicians) as well as community members (volunteer community health workers and team members with mental health patient experience). A description of the launch of the research-practice-community partnership has been published elsewhere (Delman et al, 2019). The statewide peer advocacy organization and CBPR consultant were involved in early co-development of the research project grant.…”

Section: Description Of Research Teammentioning

confidence: 99%

Understanding the Role of Past Health Care Discrimination in Help-Seeking and Shared Decision-Making for Depression Treatment Preferences

Progovac

Cortés

Chambers³

et al. 2020

Qual Health Res

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As a part of a larger, mixed-methods research study, we conducted semi-structured interviews with 21 adults with depressive symptoms to understand the role that past health care discrimination plays in shaping help-seeking for depression treatment and receiving preferred treatment modalities. We recruited to achieve heterogeneity of racial/ethnic backgrounds and history of health care discrimination in our participant sample. Participants were Hispanic/Latino ( n = 4), non-Hispanic/Latino Black ( n = 8), or non-Hispanic/Latino White ( n = 9). Twelve reported health care discrimination due to race/ethnicity, language, perceived social class, and/or mental health diagnosis. Health care discrimination exacerbated barriers to initiating and continuing depression treatment among patients from diverse backgrounds or with stigmatized mental health conditions. Treatment preferences emerged as fluid and shaped by shared decisions made within a trustworthy patient–provider relationship. However, patients who had experienced health care discrimination faced greater challenges to forming trusting relationships with providers and thus engaging in shared decision-making processes.

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“…Data on health status and social determinants of health are owned by individuals within society and need to be willingly shared with researchers for investigative purposes. However, people from ethnic communities may not want to share their health data with researchers due to multiple factors such as fear of discrimination, mistrust of medicine and researchers, or culturally insensitive research programs [ 10 ]. Employing transformative health research methods like participatory action research can boost the quality, uptake, and knowledge translation of [ 11 ].…”

Section: Introductionmentioning

confidence: 99%

Color Coded Health Data: Factors related to willingness to share health information in South Asian community members in Canada

Naeem

Aroua

Chowdhury

et al. 2023

IJPDS

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IntroductionData unavailability poses multiple challenges in many health fields, especially within ethnic subgroups in Canada, who may be hesitant to share their health data with researchers. Since health information availability is controlled by the participant, it is important to understand the willingness to share health information by an ethnic population to increase data availability within ethnocultural communities. MethodsWe employed a qualitative descriptive approach to better understand willingness to share health information by South Asian participants and operated through a lens that considered the cultural and sociodemographic aspect of ethnocultural communities. A total of 22 in-depth interviews were conducted between March and July 2020. ResultsThe results of this study show that health researchers should aim to develop a mutually beneficial information-sharing partnership with communities, with an emphasis on the ethnocultural and socio-ecological aspects of health within populations. ConclusionThe findings support the need for culturally sensitive and respectful engagement with the community, ethically sound research practices that make participants feel comfortable in sharing their information, and an easy sharing process to share health information feasibly.

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Barriers And Facilitators To Community-Based Participatory Mental Health Care Research For Racial And Ethnic Minorities

Cited by 15 publications

References 12 publications

Rural Community Engagement for Mental Health

Rural Community Engagement for Mental Health

Understanding the Role of Past Health Care Discrimination in Help-Seeking and Shared Decision-Making for Depression Treatment Preferences

Color Coded Health Data: Factors related to willingness to share health information in South Asian community members in Canada

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