Barriers and facilitators of the transition to adulthood for foster youth with autism spectrum disorder: Perspectives of service providers in Illinois

Havlicek, Judy; Bilaver, Lucy; Beldon, Marissa

doi:10.1016/j.childyouth.2015.11.025

Cited by 23 publications

(15 citation statements)

References 37 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…[ 34 , 40 , 41 ] Hare et al [ 40 ] and Weiss et al [ 34 ] focused on family carers and crisis from acute demands, such as caregiving, multiple stressors, and lack of support from healthcare providers. Hare et al [ 40 ] and Havlicek et al [ 41 ] identified a significant importance in the transition period for people with ASD from the pediatric to adult healthcare system. There is limited coordination, the transition is usually fast which can be distressing and there is a lack of attention to personal needs.…”

Section: Resultsmentioning

confidence: 99%

“…There is limited coordination, the transition is usually fast which can be distressing and there is a lack of attention to personal needs. [ 41 ]…”

Section: Resultsmentioning

confidence: 99%

“…The evidence for life changes such as the confusion of accessibility of future services for autistic people is very limited compared with healthcare in general. [ 41 ] Transitioning from the pediatric to the adult healthcare system can be overwhelming and difficult to locate relevant and appropriate services for autistic people. This study focused on foster youth transitioning to the adult healthcare system, however, the change of clinicians can also be of concern, where the history of the patient will have to be understood.…”

Section: Discussionmentioning

confidence: 99%

“…These changes are important and vital for wellbeing and care of all autistic adults, from our review, interventions for autistic adults around the transition period from the pediatric to adult healthcare system is limited and this can be problematic in the future. [ 41 ] An existing study by Nicolaidis et al [ 43 ] identified recommendations specifically for online toolkits that clinicians can access to increase knowledge and confidence for their patients with autism. This toolkit enables clinicians to better support autistic patients, however, clinicians need to be informed of such toolkits that are available for use.…”

Section: Discussionmentioning

confidence: 99%

See 3 more Smart Citations

Healthcare access for autistic adults

Calleja¹,

Islam²,

Kingsley³

et al. 2020

Medicine

View full text Add to dashboard Cite

show abstract

Section: Resultsmentioning

confidence: 99%

“…There is limited coordination, the transition is usually fast which can be distressing and there is a lack of attention to personal needs. [ 41 ]…”

Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 2 more Smart Citations

Healthcare access for autistic adults

Calleja¹,

Islam²,

Kingsley³

et al. 2020

Medicine

View full text Add to dashboard Cite

show abstract

“…As autistic students leave the structure of the schooling system, they typically experience a 'service cliff' or a decrease in service use (Havlicek, Bilaver & Beldon, 2016). This is due to a lack of services, expertise and knowledge to specifically address the needs of autistic adults (Costley, Baldwin, Bruck, Haas & Ritzrow, 2017 My findings show that the DSP can be used as a 'means to an end' to support autistic young people to experience a gradual transition from school and give them more time.…”

Section: Timing Of Lives -"I Just Need a Bit More Time"mentioning

confidence: 99%

An exploration from a life course perspective of the transition from school for autistic young people

Taggart¹

View full text Add to dashboard Cite

The transition from school is a feature of typical adolescence, but can be challenging for autistic young people. While their experiences at school can be difficult, schools also afford structure and routine and can provide external support for young autistic people and their families. They provide reasonably predictable social networks as well as opportunities to encounter others outside of the family. Upon leaving school, autistic young people lose ready access to expected routines and established social groups and often disengage from the community. For many, the transition from school is confusing and stressful.In this thesis, I explore, from a life course perspective, the transition from school for autistic young people without intellectual impairment. Life transitions involve relinquishing some roles and adopting others. Adopting new roles such as worker, homemaker, parent and spouse, which are more complex and less predictable than the role of school child, can be problematic for autistic young people. For example, the unpredictability of interview processes and environments (e.g., the questions to be asked, bright lights, distracting noises) can make getting a job difficult. Difficulties identifying and responding to unspoken social rules and workplace routines can result in loss of employment.The transition from school is one of many turning points within a person's whole life.This transition follows experiences earlier in life (e.g., childhood and at school) and precedes later life stages. It also occurs in particular social and historical contexts.

show abstract

Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware

et al. 2021

View full text Add to dashboard Cite

The study aimed to collect data from families of children and youth with Autism Spectrum Disorder (ASD) in the state of Delaware, USA to understand their ongoing needs and challenges in accessing child healthcare and family support services. We analyzed responses from 263 caregivers of children and youth with ASD from 3 to 24 years using a statewide needs assessment survey. Over 50% caregivers indicated having unmet needs relative to both child/youth healthcare services and family support services. Between 24 and 38% caregivers expressed unmet needs for healthcare services such as social skills training, speech‐language therapy, behavioral intervention, and occupational therapy for their child and 20–24% expressed needs for family support services such as respite care, parent/sibling support groups, counseling, and babysitting support. Additionally, number of prior early interventions received, limitations in accessing healthcare services, and unmet needs for family support services significantly predicted child/youth unmet healthcare needs. Greater ASD severity and difficulties accessing child/youth healthcare services predicted participant's functional dependence on caregivers for activities of daily living. Together, these findings call for designing holistic, family‐centered interventions that address needs of both children and youth with ASD and their families. Lay summary A statewide needs assessment survey of caregivers of children and youth with ASD revealed that 50% responders had unmet needs relative to both child/youth healthcare services and family support services. Number of prior services received, limitations in accessing healthcare, and unmet needs for family support are linked to child/youth unmet healthcare needs. Severity of autism and difficulties accessing child/youth healthcare are associated with participant's functional dependence. Together, these findings call for placing the family at the heart of the service system in ASD.

show abstract

Barriers and facilitators of the transition to adulthood for foster youth with autism spectrum disorder: Perspectives of service providers in Illinois

Cited by 23 publications

References 37 publications

Healthcare access for autistic adults

Healthcare access for autistic adults

An exploration from a life course perspective of the transition from school for autistic young people

Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware

Contact Info

Product

Resources

About

Barriers and facilitators of the transition to adulthood for foster youth with autism spectrum disorder: Perspectives of service providers in Illinois

Cited by 23 publications

References 37 publications

Healthcare access for autistic adults

Healthcare access for autistic adults

An exploration from a life course perspective of the transition from school for autistic young people ​​​​​​​

Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware

Contact Info

Product

Resources

About

An exploration from a life course perspective of the transition from school for autistic young people