Barriers and enablers to meaningful youth participation in mental health research: qualitative interviews with youth mental health researchers

Faithfull, S; Brophy, Lisa; Pennell, Kerryn; Simmons, Magenta

doi:10.1080/09638237.2018.1521926

Cited by 55 publications

(94 citation statements)

References 27 publications

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“…The perspectives of Y-PARC users and their carers were gained in in-depth interviews and analysed alongside information given by staff and stakeholders to enrich understanding of the service model, practice elements and impact. Interpreted within a hierarchy of user participation [51], the evaluation approach was informed by an understanding of the value of seeking contribution from young service users in active, empowering and capacity-building roles [52] and disruption of hierarchical relationships characterising research interviews. Therefore, young people who have been consumers of mental health services were engaged as co-researchers and contributed to the design of research questions, co-facilitation of qualitative interviews, data analysis, development of recommendations, writing of an evaluation report and this manuscript 2.…”

Section: Methodsmentioning

confidence: 99%

Key features of an innovative sub-acute residential service for young people experiencing mental ill health

et al. 2019

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BackgroundNumerous studies across international settings have highlighted a need to improve the appropriateness and continuity of services for young people experiencing mental ill health. This paper examines key features of a sub-acute youth mental health residential service model, Youth Prevention and Recovery Care (Y-PARC) service. Y-PARC provides up to 4 weeks care to 16 to 25 year-olds at risk of hospitalisation and to those transitioning out of hospital inpatient units. The research was conducted at one of three Y-PARCs located in Victoria, Australia.MethodsThis paper presents findings from analysis of two data sources collected during evaluation of a Y-PARC service in 2015–17. Routinely collected administrative data of Y-PARC residents (n = 288) were analysed and semi-structured interviews were conducted with 38 participants: a) former residents (n = 14); b) family members of group a) (n = 5); key stakeholders (n = 9); and, Y-PARC staff (n = 10 respondents in 3 group interviews). Analysis of the qualitative data was thematic and structured by the interview guide, which covered the key service aims.ResultsConsistent with the aims of the service, respondents described practice at Y-PARC that aligns with recovery-oriented care. Key features emphasised were: a safe and welcoming environment for residents and families; provision of person-centred care; promotion of autonomy and self-help; informal interactions with staff allowing for formation of naturalistic relationships; time spent with other young people with similar experiences; and, assurance upon exit that the ‘door is always open.’High levels of satisfaction were reported. Outcomes described included: improved resilience; better understanding of mental health; the importance of seeking help; and, stronger connections to therapeutic services. Longer and multiple stays were associated with progressive and sustained change. Family members and stakeholders widely reported that the service fills a gap between community services and acute inpatient mental health hospital wards.Some challenging areas of practice identified included: integration of evidence-based psychosocial interventions; provision of care within a model that blends clinical and psychosocial support services; and, negotiation of family-inclusive practice.ConclusionsThe Y-PARC service model shows promise with young people experiencing mental ill health, particularly in improving the range and availability of options across a spectrum of need.

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Section: Methodsmentioning

confidence: 99%

Key features of an innovative sub-acute residential service for young people experiencing mental ill health

et al. 2019

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“…While youth have traditionally been research participants, youth engagement practices call for youth to be engaged in the research process as full partners 3 . Youth engagement is valuable in any area of research regarding youth, ranging from mental health and substance use, 12‐14 health promotion 15 and social inequity, 16 to organizational change 17 and educational reform 18 . By engaging young people in all stages of a research project, from design and development through to knowledge translation, researchers can help ensure that the research they are conducting is relevant to the realities facing young people today 3,19 .…”

Section: Introductionmentioning

confidence: 99%

INNOVATE Research: Impact of a workshop to develop researcher capacity to engage youth in research

Hawke

Darnay

Brown

et al. 2020

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“…We have more women as first or last authors than men (54% vs 42%), a fact that was pleasing (e.g. Aschbrenner et al, 2019;Faithfull et al, 2019;Harrington et al, 2019;Khalid et al, 2019;Mulfinger et al, 2019;Weir et al, 2019). But as we investigated the data further, we find that women are more likely to be represented as first or sole authors (68%) and men to be positioned as last author (57%).…”

mentioning

confidence: 61%

Gender diversity in the Journal of Mental Health – how are we doing and what do we need to do?

Wykes

Evans

2020

Journal of Mental Health

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Barriers and enablers to meaningful youth participation in mental health research: qualitative interviews with youth mental health researchers

Cited by 55 publications

References 27 publications

Key features of an innovative sub-acute residential service for young people experiencing mental ill health

Key features of an innovative sub-acute residential service for young people experiencing mental ill health

INNOVATE Research: Impact of a workshop to develop researcher capacity to engage youth in research

Gender diversity in the Journal of Mental Health – how are we doing and what do we need to do?

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