Back Pain in Mothers of Cerebral Palsied Children

Czupryna, Krzysztof; Nowotny-Czupryna, Olga; Nowotny, Janusz

doi:10.5604/15093492.1128840

Cited by 19 publications

(14 citation statements)

References 17 publications

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“…Long-term responsibility for a disabled child, combined with a necessity to face adversities and challenges associated with handling the child, frequently leads to negative emotions, such as anxiety, sadness, anger, hopelessness and distress, experienced by the person, and adversely affecting the functioning of the parents and the entire family [13,14,15]. The most common effects of long-lasting caregiver burden include depressive and anxiety disorders of varied intensity [1,6,16,17,18,19,20,21,22,23,24,25,26]. However, intensity of anxiety and depressive symptoms in the parents is not related exclusively to predictors associated with the child’s disability, but is also linked to personal, social and economic variables resulting from the parents’ needs and health status as well as factors occurring in the family; this fact reflects the multidimensional effects of these determinants in health-related quality of life (HRQOL) in individuals taking care of children with CP [27].…”

Section: Introductionmentioning

confidence: 99%

Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors

Gugała

Penar-Zadarko

Pięciak-Kotlarz

et al. 2019

IJERPH

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Background: Taking care of a child with Cerebral Palsy (CP) may be linked with adverse effects in the parents’ physical and mental health. The causes of anxiety and depression symptoms associated with childcare are still not fully understood. Aim: To assess the intensity of anxiety and depression symptoms in parents of children with CP compared to a control group and to identify selected mental health predictors. Design and Methods: Data were collected from 301 respondents, including 190 parents of children with CP (study group) and 111 parents taking care of children developing normally (control group). Intensity of anxiety and depression was rated using the Hospital Anxiety and Depression Scale (HADS) scale. Gross Motor Function Classification System for Cerebral Palsy (GMFCS), Sense of Coherence Scale (SOC-29), Berlin Support Social Scales (BSSS) scales and a specially designed questionnaire were used to assess the predictors. The investigated variables included the children’s and the parents’ characteristics, as well as environmental factors. The analyses applied Spearman’s rank correlation coefficient, M(SD) as well as multiple regression. Results: The level of anxiety and depression was clearly higher in the parents of children with CP–the mean levels of anxiety and depression in the study group and the controls amounted to 8.1 vs. 4.7 and 6.8 vs. 3.7, respectively. The factors associated with intensity of anxiety and depression in the parents of children with CP included lack of social support, mainly perceived and received support, unsatisfying parental health status, poor economic status of the family, as well as difficult living conditions, sense of coherence, loneliness, the parent’s gender, and the child’s intellectual disability. Conclusions: Identification of significant anxiety and depression predictors, understood as modifiable factors, should be considered in determining and planning comprehensive support for a child with CP and his/her primary parental caregiver.

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Section: Introductionmentioning

confidence: 99%

Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors

Gugała

Penar-Zadarko

Pięciak-Kotlarz

et al. 2019

IJERPH

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“…Posluszny et al (2015) reported that parents of children with disabilities are more exposed to cervical spine pain, which can be explained by the static and dynamic overload, common in the caregiver's activity postures (Knibbe & Knibbe, 2012; Nelson & Baptiste, 2006). Long‐term daily care of children with disabilities seems to favour their mothers' low back pain, and the intensity of this pain is associated with the child's level of functionality and independence, body weight, age and the number of additional tasks performed by mothers (Czupryna et al, 2014).…”

Section: Discussionmentioning

confidence: 99%

Musculoskeletal pain and quality of life in mothers of children with microcephaly, due to congenital Zika virus syndrome

Araújo

Guimarães‐do‐Carmo

Andrade

et al. 2022

Child

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Purpose The purpose of this study is to observe the prevalence and intensity of musculoskeletal pain and the quality of life in mothers of children with microcephaly and also to compare the scores of the quality of life domains between mothers who had or did not have musculoskeletal pain. Methods This is a cross‐sectional study that evaluated mothers of children with a clinical diagnosis of microcephaly, due to congenital Zika virus syndrome, in the state of Pernambuco, northeast region, Brazil. To assess musculoskeletal pain, the Nordic Questionnaire of Musculoskeletal Symptoms was used, pain intensity was assessed by the Visual Analogue Scale and quality of life by the SF‐36 Questionnaire. Results Of the 63 mothers evaluated, 59 (93.7%) reported currently experiencing musculoskeletal pain. The lumbar spine was the body region with the highest prevalence of pain (77.8%), followed by the thoracic spine (57.1%) and cervical spine (50.8%). Pain intensity was higher in the lumbar spine (6.00 ± 0.47), thoracic spine (4.44 ± 0.52) and shoulders (3.81 ± 0.51). The domains that presented the lowest scores in the quality of life assessment were general health status (49.0 ± 3.19), emotional aspects (49.7 ± 5.88) and pain (49.7 ± 2.50). Mothers who had musculoskeletal pain had lower scores in all domains of quality of life assessment compared to mothers who did not have pain, demonstrating significant differences for functional capacity (P = 0.035), physical aspects (P = 0.047) and pain (P = 0.002). Conclusion A high prevalence of musculoskeletal pain was observed in mothers of children with microcephaly, with a higher prevalence and intensity in the lumbar spine. The domains related to physical and emotional health presented the worst scores in the quality of life of the evaluated mothers and the presence of musculoskeletal pain reduced the quality of life of the mothers of children with microcephaly in this study.

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“…As falas indicam a indispensabilidade de um maior apoio psicológico e social para essas famílias, incluindo visitas domiciliares da equipe multidisciplinar. Por se tratar de uma condição crônica, as crianças necessitam de altos níveis de apoio parental, social e educacional, enfatizando que continuarão a exigir indefinidamente altos níveis de cuidados básicos pessoais aos cuidadores, no caso, os pais e familiares envolvidos; isso pode gerar prejuízos na saúde e qualidade vida dos pais, incluindo sintomas de depressão, ansiedade e dores musculares (17,29) . A insegurança foi relatada pelos participantes no que concerne ao conhecimento com profundidade pela equipe de saúde sobre a "nova" microcefalia pelo mosquito, conforme relatos dos familiares, por ser uma doença de causas e consequências diferentes das "outras microcefalias": Não se pode esquecer que, por ser uma condição da atualidade emergencial e relativamente nova, as informações sobre o ZIKV e seus efeitos em mulheres grávidas, fetos, recém-nascidos, lactentes e crianças, incluindo outras complicações neurológicas e comorbidades associadas, são gradualmente conhecidas e disponibilizadas para a sociedade, à medida que as pesquisas avançam, o que causa bastante desconforto na sociedade, principalmente nas equipes de saúde e famílias envolvidas.…”

Section: Microcefalia Por Vírus Zika E As Mudanças No Contexto Familiarunclassified

Produção de sentidos parentais no cuidado de crianças com microcefalia por vírus zika

Sá

Andrade

Nogueira

et al. 2017

RBPS

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Jovanka Soares Monteiro Lopes Núcleo de Tratamento e Estimulação Precoce -NUTEP/UFC -Fortaleza (CE) BrasilAntônia Paula Érika Pinheiro Silva Núcleo de Tratamento e Estimulação Precoce -NUTEP/UFC -Fortaleza (CE) Brasil Amanda Maria Veras de Assis Núcleo de Tratamento e Estimulação Precoce -NUTEP/UFC -Fortaleza (CE) Brasil RESUMOObjetivo: Identificar as necessidades parentais quanto ao cuidado para o desenvolvimento de lactentes e crianças com microcefalia causada pelo vírus da Zika (ZIKV). Métodos: Pesquisa qualitativa realizada em um centro de tratamento e estimulação precoce da Universidade Federal do Ceará, em Fortaleza, Brasil, no período de julho de 2016. Participaram do estudo 23 responsáveis, entre pais e familiares, de crianças com diagnóstico de microcefalia causada por Zika, cujos dados foram coletados por meio de grupos focais e analisados através da análise de conteúdo. Resultados: Os participantes relataram a necessidade de maior atenção, compreensão e apoio psicossocial por parte da instituição e dos profissionais envolvidos; mais conhecimento sobre o contexto geral da condição da criança; e intervenções educativas em saúde com acompanhamento continuado (follow-up) voltadas para as reais necessidades das crianças e suas famílias. Conclusão: Evidenciouse nos resultados a ausência e urgência da necessidade do desenvolvimento e implementação de estratégias e ações em saúde que favoreçam a escuta ativa e humanizada das famílias, reduzam o impacto negativo causado pela condição das crianças nas famílias e viabilizem um maior e melhor desenvolvimento de lactentes e crianças com microcefalia causada pelo vírus da Zika.Descritores: Deficiências do desenvolvimento; Pais; Microcefalia; Zika Virus. ABSTRACT Objective: To identify parental needs with respect to the care for the development of infants and children with microcephaly caused by the Zika virus (ZIKV

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Back Pain in Mothers of Cerebral Palsied Children

Cited by 19 publications

References 17 publications

Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors

Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors

Musculoskeletal pain and quality of life in mothers of children with microcephaly, due to congenital Zika virus syndrome

Produção de sentidos parentais no cuidado de crianças com microcefalia por vírus zika

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