Awareness and practice of patient rights from a patient perspective: an insight from Upper Egypt†

Mohammed, Eman Sameh; Seedhom, Amany Edward; Ghazawy, Eman Ramadan

doi:10.1093/intqhc/mzx182

Cited by 31 publications

(44 citation statements)

References 6 publications

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“…Our findings are consistent with the literature which highlights awareness about rights as a prerequisite to exercising one's agency. [38][39][40][41][42] Our findings highlight that while being aware is necessary, mere awareness is not enough for exercising agency and rights, echoing the literature on limited feedback by the socioeconomically disadvantaged in Nepal, Russia and Israel 11 41 42 and highincome contexts such as the UK. 43 Fears of retribution and distrust of the system consistently underpin people's decisions not to complain.…”

Section: Collecting Feedbacksupporting

confidence: 55%

How do patient feedback systems work in low-income and middle-income countries? Insights from a realist evaluation in Bangladesh

et al. 2021

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BackgroundWell-functioning patient feedback systems can contribute to improved quality of healthcare and systems accountability. We used realist evaluation to examine patient feedback systems at health facilities in Bangladesh, informed by theories of citizenship and principal–agent relationships.MethodsWe collected and analysed data in two stages, using: document review; secondary analysis of data from publicly available web-portals; in-depth interviews with patients, health workers and managers; non-participant observations of feedback environments; and stakeholder workshops. Stage 1 focused on identifying and articulating the initial programme theory (PT) of patient feedback systems. In stage 2, we iteratively tested and refined this initial theory, through analysing data and grounding emerging findings within substantive theories and empirical literature, to arrive at a refined PT.ResultsMultiple patient feedback systems operate in Bangladesh, essentially comprising stages of collection, analysis and actions on feedback. Key contextual enablers include political commitment to accountability, whereas key constraints include limited patient awareness of feedback channels, lack of guidelines and documented processes, local political dynamics and priorities, institutional hierarchies and accountability relationships. Findings highlight that relational trust may be important for many people to exercise citizenship and providing feedback, and that appropriate policy and regulatory frameworks with clear lines of accountability are critical for ensuring effective patient feedback management within frontline healthcare facilities.ConclusionTheories of citizenship and principal–agent relationships can help understand how feedback systems work through spotlighting the citizenship identity and agency, shared or competing interests, and information asymmetries. We extend the understanding of these theories by highlighting how patients, health workers and managers act as both principals and agents, and how information asymmetry and possible agency loss can be addressed. We highlight the importance of awareness raising and non-threatening environment to provide feedback, adequate support to staff to document and analyse feedback and timely actions on the information.

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Section: Collecting Feedbacksupporting

confidence: 55%

How do patient feedback systems work in low-income and middle-income countries? Insights from a realist evaluation in Bangladesh

et al. 2021

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“…Our ndings are consistent with the literature which highlights awareness about rights as a prerequisite to exercising one's agency (38)(39)(40)(41)(42). Our ndings suggest that while being aware is necessary, mere awareness is not enough for exercising agency and rights, echoing the literature on lack of complaining by the socio-economically disadvantaged in Nepal, Russia and Israel (19,41,42).…”

Section: Figure 3 and 4 Heresupporting

confidence: 90%

How do patient feedback systems work in low- and middle-income countries? Insights from a realist evaluation in Bangladesh.

Mirzoev

Kane

Azdi

et al. 2020

Preprint

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Background Well-functioning patient feedback systems can contribute to improved quality of healthcare and ultimately make health systems more accountable. We used realist evaluation to understand the functioning of patient feedback systems at frontline health facilities in Bangladesh. Methods We collected and analysed data in two stages using: document review; secondary analysis of data from publicly-available web-portals; in-depth interviews with patients, health workers and managers; non-participant observations of feedback environments; and stakeholder workshops. Stage 1 focused on identifying and articulating the initial program theory of patient feedback systems. In Stage 2, we iteratively tested and refined this initial theory, through analysing data and grounding emerging findings within substantive theories and empirical literature, to arrive at a refined program theory. Results Multiple patient feedback systems operate in Bangladesh, essentially comprising stages of collection, analysis and actions on feedback. Key contextual enablers include political commitment to accountability, whereas key constraints include limited patient awareness of feedback channels, lack of guidelines and documented processes, local political dynamics and priorities, institutional hierarchies and accountability relationships. Findings highlight that relational trust may be important for many people to exercise citizenship and providing feedback, and that appropriate policy and regulatory frameworks with clear lines of accountability are critical for ensuring effective patient feedback management within frontline healthcare facilities. Conclusion Tolib Information, Mirzoev*, Sumit Kanea, Bassey Ebenso1,b

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“…The lowest score would be 0 points while the highest score would be 18 points. A cut-off point was determined based on the median value of the total knowledge score (12) at or above the median value were classified as good knowledge, whereas those having a knowledge score less than the median value classified as having poor knowledge (9) For the practice questions (done was scored 1 and not done was scored 0) with maximum total score 17, the practice score was considered poor if the score was less than or equal 8 (less than 50%), moderate if the score was 9 to 12 (50% to 70%) and good if the score was 13 to 17 (71% to 100%) (10) .…”

Section: ) Study Toolsmentioning

confidence: 99%

Awareness of Patient Rights and Practice at Fayoum University Hospital

2020

IJFMT

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Awareness and practice of patient rights from a patient perspective: an insight from Upper Egypt†

Cited by 31 publications

References 6 publications

How do patient feedback systems work in low-income and middle-income countries? Insights from a realist evaluation in Bangladesh

How do patient feedback systems work in low-income and middle-income countries? Insights from a realist evaluation in Bangladesh

How do patient feedback systems work in low- and middle-income countries? Insights from a realist evaluation in Bangladesh.

Awareness of Patient Rights and Practice at Fayoum University Hospital

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