Awareness and Perceptions of Palliative Care Among the Elderly: A Qualitative Study

Lei, Lei; Ya, LU; Gan, Quanxi; Hu, Zongping; Luo, Yongli

doi:10.1177/08258597221082393

Cited by 5 publications

(7 citation statements)

References 53 publications

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“…Ultimately, new sub‐themes were discovered, including the specificity of the ICU context and less attention paid to palliative care in the ICU. These emerging sub‐themes may be associated with the public's concept, China's policy on the functional positioning of ICUs, as well as the limited experience of ICUs in providing palliative care 39,40 …”

Section: Discussionmentioning

confidence: 99%

“…These emerging sub-themes may be associated with the public's concept, China's policy on the functional positioning of ICUs, as well as the limited experience of ICUs in providing palliative care. 39,40 Previous studies from other countries were mostly based on clinical experiences in palliative care. 24,41,42 In contrast, palliative care is not widely integrated into ICUs in China.…”

Section: The Specificity Of the Icu Contextmentioning

confidence: 99%

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Exploring the barriers and facilitators of palliative care in the adult intensive care unit from nurses' perspectives in China: A qualitative study

Xie,

Liu,

Chen

et al. 2024

Nursing in Critical Care

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BackgroundIntensive care units (ICUs) in China primarily focus on active rescue efforts, and it is not common to provide palliative care services within the ICU. As nurses play a primary role as caregivers for end‐of‐life patients in the ICU, it is necessary to explore the factors that impede or facilitate palliative care from their perspective.AimTo explore the barriers and facilitators associated with implementing palliative care in Chinese adult ICUs from nurses' perspectives.Study DesignThis study utilized a descriptive phenomenological research approach and purposive sampling to conduct face‐to‐face semi‐structured interviews with nurses working in adult ICUs from three comprehensive hospitals in China during the period between February and May 2023. A total of 17 nurses were interviewed, and the collected data were transcribed, coded, and synthesized thematically.ResultsTwo themes of barriers and facilitators of palliative care in the Chinese adult ICU were extracted. The three sub‐themes of hindering factors are as follows: (1) The influence of Chinese traditional culture. (2) The specificity of the ICU context. (3) Lacking sufficient attention in the ICU. The three sub‐themes of the promoting factors are as follows: (1) Government and society value palliative care. (2) Patients and their families have palliative care needs. (3) Nurses view palliative care positively.ConclusionCurrently, integrating palliative care into the ICU may face challenges such as cultural factors, the specificity of the ICU context, and insufficient attention. However, it is worth noting that as the government and society place more emphasis on palliative care, more and more people are gradually paying attention to the palliative care needs of critically ill patients and their families.Relevance to Clinical PracticeThis study serves as a reference for exploring an ICU palliative care service model that is suitable for China's national conditions, such as education and training, resource allocation, service processes, and the palliative care environment, among others.

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Section: Discussionmentioning

confidence: 99%

Section: The Specificity Of the Icu Contextmentioning

confidence: 99%

Exploring the barriers and facilitators of palliative care in the adult intensive care unit from nurses' perspectives in China: A qualitative study

Xie,

Liu,

Chen

et al. 2024

Nursing in Critical Care

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“…During this stage, numerous needs emerge regarding the care and well-being of the cancer patient and their caregivers which are not always acknowledged or identified. Recognition and awareness of these needs can ensure early access and comprehensive treatment for cancer patients with palliative care needs, while also meeting the needs of their caregivers [ 2 , 3 ].…”

Section: Introductionmentioning

confidence: 99%

End-of-life care needs in cancer patients: a qualitative study of patient and family experiences

López-Salas,

Yanes-Roldán,

Fernández

et al. 2024

BMC Palliat Care

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Background Cancer is a disease that transcends what is purely medical, profoundly affecting the day-to-day life of both patients and family members. Previous research has shown that the consequences of cancer are greatly aggravated in patients at the end of life, at a time when they must also grapple with numerous unmet needs. The main objective of this study was to obtain more in-depth insight into these needs, primarily in patients with end-stage cancer nearing death. Methods Semi-structured interviews were conducted in Spain with cancer patients at the end of life (n = 3) and their family members (n = 12). The findings from the interviews were analyzed using qualitative thematic analysis and a grounded theory approach. Results Four major themes emerged from the interviews that explored the needs and concerns of patients with cancer at the end of life: (1) physical well-being (2) emotional well-being (3) social well-being and (4), needs relating to information and autonomous decision-making. The interviews also shed light on the specific needs of family members during this period, namely the difficulties of managing increased caregiver burden and maintaining a healthy work-life balance. Conclusions A lack of support, information and transparency during a period of immense vulnerability makes the end-of-life experience even more difficult for patients with cancer. Our findings highlight the importance of developing a more in-depth understanding of the needs of this population, so that informed efforts can be made to improve palliative healthcare and implement more comprehensive care and support at the end of life.

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“…Previous studies of death and dying, and the role of hospices and palliative care, have found understanding among the public is mixed, with women and older people more commonly aware of the role of hospices ( 1 ). Lack of understanding can result in hospice care and community support being difficult to navigate ( 2 ), with hospice care underutilized, leading to calls for increased education and engagement ( 3 , 4 ). Early conversations about death and dying are helpful in providing care and preparing for loss ( 5 ) but can be challenging conversations to have ( 2 , 6 , 7 ).…”

Section: Introductionmentioning

confidence: 99%

“…Considerable research on death and dying has been conducted through traditional methods such as interviews and surveys ( 3 ), but these rarely include ‘public deliberation, whereby people engage collectively with an issue, consider it from all sides, and struggle to understand it’ ( 11 ). Challenges in public engagement around death and dying include resistance and lack of interest in planning ahead, a view that one is living rather than dying (even when experiencing significant or complex illness) and understanding how to demonstrate the relevance of the subject matter, beyond those experiencing death, dying or grief ( 12 ).…”

Section: Introductionmentioning

confidence: 99%

Is there a role for citizen science in death and dying research?

Wilkinson,

Llewellyn,

McCabe

2023

Front. Public Health

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The COVID-19 pandemic has brought conversations about death and dying to the fore in a way not experienced for generations. This raises questions around perceptions of death and dying; the role of healthcare and the community in care; and the use of digital media for information and support. Public engagement can provoke a two-way conversation between researchers and the public and includes techniques that can engage the community not only with the topic but also in research. This perspective article considers the potential role of citizen science in death and dying research, including considerations around its potential benefits and constraints.

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Awareness and Perceptions of Palliative Care Among the Elderly: A Qualitative Study

Cited by 5 publications

References 53 publications

Exploring the barriers and facilitators of palliative care in the adult intensive care unit from nurses' perspectives in China: A qualitative study

Exploring the barriers and facilitators of palliative care in the adult intensive care unit from nurses' perspectives in China: A qualitative study

End-of-life care needs in cancer patients: a qualitative study of patient and family experiences

Is there a role for citizen science in death and dying research?

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