Available, but not always accessible: A nationwide, qualitative study of multidisciplinary healthcare providers’ experiences with follow‐up care after paediatric brain tumour

Abstract

Paediatric brain tumours (PBT) are the second most common type of cancer in children, with a current average five-year survival rate to 75%, largely thanks to great improvements in treatment (Ward et al., 2014). This results in a growing population of PBT survivors, many whom are at high risk of extended early-onset and late effects compared to other childhood cancer survivors (Turner et al., 2009). Radiation therapy directed towards the developing brain is associated with a high risk of experiencing progressive neurocognitive, physical, psychological and psychosocial decline (Turner et al., 2009). Neurocognitive late effects include problems related to

Prepared for survivorship? Multidisciplinary healthcare professionals' experiences with adolescents’ transition off cancer treatment: A focus group study

“…Research is limited on how HCPs perceive this transition phase (Keller et al, 2020;Walker et al, 2016), despite the fact that they can help identify strengths and limitations within the current system and provide recommendations to improve follow-up care (Berg et al, 2016;Mouw et al, 2017;Ålykkja et al, 2020). Further research is therefore needed on HCPs' present practices, in order to address the persistent need to develop models around preparation, education and follow-up for adolescents entering cancer survivorship.…”