Autonomy and Dignity: A Discussion on Contingency and Dominance

Brussel, Leen Van

doi:10.1007/s10728-012-0217-0

Cited by 15 publications

(14 citation statements)

References 27 publications

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“…Subjective dignity is described as ''something that people experience of themselves'' (Leget, 2013;Leung, 2007). Social and relational dignity refers to the recognition of one's social position; whereas intrinsic dignity, originating from the work of Cicero, is unique to humans and separates them from other beings (Leget, 2013;Van Brussel, 2012). This study focuses on aspects of subjective dignity through patient experience.…”

Section: Introductionmentioning

confidence: 99%

What’s Dignity Got To Do With It? Patient Experience of the Dignity Care Intervention

et al. 2017

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The delivery of palliative care in the community setting has been recognized as a valued and challenging aspect of nursing care. To this end, care pathways have been shown to support nurses in a variety of settings to deliver individualized patient care. This study provides a qualitative evaluation of an end-of-life intervention known as the Dignity Care Intervention (DCI) based on patients' perspectives. The DCI consists of four sections: a manual, the Patient Dignity Inventory, reflective questions, and evidence-based care actions. A qualitative design underpinned by the philosophy of Merlau-Ponty was employed for the evaluation of the DCI. Data collection included individual interviews with participants (n ¼ 25). Interview data were analyzed using framework thematic analysis. Four theme categories were identified: ''experience of DCI,'' ''responding to my illness concerns,'' ''how illness affects me as a person,'' and ''how illness concerns affect my relationships.'' The DCI was found to enable patients to discuss openly important issues with community nurses that they might not otherwise have raised. Participants conveyed satisfaction with the support they received through the DCI. The use of care pathways detailing interventions to manage clinical problems and ensure systematic integration of the best available evidence into care delivery can improve end-of-life care.

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Section: Introductionmentioning

confidence: 99%

What’s Dignity Got To Do With It? Patient Experience of the Dignity Care Intervention

et al. 2017

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“…(3) being the most commonly identified research settings. Beyond this, the theme has been linked to broader constructs of dignity and dignified care (Bosek et al, 2003;Kehl, 2006;van Brussel, 2014;Campbell and Black, 2014).…”

Section: Affirmation Of the Whole Personmentioning

confidence: 99%

The ‘good death’ and reduced capacity: a literature review

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MacBride-Stewart

2017

Mortality

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Research effort into what a 'good death' entails has generally concentrated on six themes initially established by Steinhauser et al. (2000): pain and symptom management; clear decision-making; preparation for death; completion; contributing to others; and affirmation of the whole person. This review explores these themes, specifically examining their applicability to those who lack mental capacity to make their own decisions. Some of Steinhauser et al.'s themes appear more relevant than others, with clear decision-making and affirmation of personhood predicating issues related to reduced capacity. Largely, however, the literature on a 'good death' builds on an underlying assumption that the dying patient is cognisant and capable of rationalising their death. Those instances where Steinhauser et al. do acknowledge mental capacity within their model have been met by criticism from numerous authors.Factors such as the subjectivity of substitute decision-makers (Kaufman, 2000) and the complexity associated with medico-legal interpretations of current legislation (Michalowski, 2005) help to highlight deficiencies in the application of principles of a 'good death' in practice. Further specific consideration is required on how to achieve a 'good death' for those with reduced capacity.

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“…Social media technologies, for example, have given rise to the phenomenon of 'automated mourning' that can have profound implications for our capacity to mourn the loss of friends and relatives (Gibson, 2007). Another remarkable feature of twenty-first century life is that, through a range of scientific developments, death has moved decisively into the province of old age even while the timing of death continues to be pushed further into the distance; and yet cultural representations of older people as well as old age living and death remain outdated and rather pathological (Johnson, 2005;Van Brussel, 2012). Key questions emerge in the wake of such an investigation; for example, what norms and practices reinforce and reproduce an experience of blocked mourning, thus inviting us to interrogate and contest them?…”

Section: Death National Identity and Beyondmentioning

confidence: 99%

The Social Construction of Death

Brussel¹,

Carpentier²

2014

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Autonomy and Dignity: A Discussion on Contingency and Dominance

Cited by 15 publications

References 27 publications

What’s Dignity Got To Do With It? Patient Experience of the Dignity Care Intervention

What’s Dignity Got To Do With It? Patient Experience of the Dignity Care Intervention

The ‘good death’ and reduced capacity: a literature review

The Social Construction of Death

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