Autism Spectrum Disorder Parent Report for Outcome Monitoring: A Preliminary Report of Development and Clinical Utility

Abstract

Please answer all questions as they apply to your child OVER THE LAST 6 MONTHS. All children function differently from very early skills to more complex skills. If there is a skill listed that your child has already mastered independently without prompting or reminders, please mark as Always. If there is a skill listed beyond your child's developmental level, please mark Never. Please fill this form out to the best of your ability and discuss any additional concerns with your physician.Please fill in ONLY one bubble in each row. Communication and Social SkillsWhen your child wants to communicate, how often does he or she use each of the following: Never Rarely Sometimes Often Always 1. Spoken language 2. Sign language 3. Picture communication system (e.g., PECS) 4. An electronic communication device (e.g., iPad, iPhone, Dynavox) 5. What is your child's primary form of communication? Spoken language Sign Language A picture communication system An electronic communication device 6. When your child communicates, how many words/signs/pictures does your child put together to communicate? My child does not yet communicate (Note: please skip questions 8-15) My child uses one word/sign/picture at a time My child uses two words/signs/pictures at a time My child uses three words/signs/pictures at a time My child uses full sentences

The Lancet Commission on the future of care and clinical research in autism

“…On the other hand, patient-reported outcomes are a major interest in many HICs. 214 In HICs, adults coming for a first diagnosis usually do not have intellectual disabilities, 215 and often have other mental health conditions such as anxiety, depression, attention-deficit hyperactivity disorder, 15 vulnerability to sexual exploitation, and learning disabilities, 216 as well as disorders that are less commonly associated with autism but have some overlapping features, such as schizophrenia. 16 Thus, the diagnostic assessment of adults requires familiarity with autism and other adult mental health conditions, and knowledge of associated services.…”

Cross-Sectional Analysis of Caregiver-Reported Expressive Language Profiles and Associated Covariates in Individuals with Down Syndrome

“…Based on previous ASD-PROM analyses, a single unidimensional construct was developed to describe the behaviors from the measure associated with expressive language that showed internal consistency and reliability. 22…”

“…The x 2 test is accompanied Based on previous ASD-PROM analyses, a single unidimensional construct was developed to describe the behaviors from the measure associated with expressive language that showed internal consistency and reliability. 22 Latent Classes in Expressive Language A latent class analysis (LCA) was used to identify subgroups of children with DS based on their expressive language skills as evaluated using the ASD-PROM, referred to as CREL classes. This approach was selected to evaluate the hypothesis that a single latent factor best describes the skills and competencies in expressive language in children with DS.…”

Development and implementation of a longitudinal clinical database for down syndrome in a large pediatric specialty clinic: Methodology and feasibility

“…Items address communication and social skills, behavior, adaptive skills, and sleep, using Likert scale responses from Never to Always. The ASD-PROM was created by a multidisciplinary group of clinicians and researchers at our institution, including two members of the DSP, for children of varying ages and developmental levels (Levin et al, 2020). The ASD-PROM is hierarchical and directs caregivers to the most developmentally appropriate and relevant questions, which can be more palatable to complete than other available standardized developmental questionnaires.…”